THR Cannot sleep in bed

[Trotter]

Trotter​

junior member​

• Sunday at 11:16 AM
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• #57

@Deni444 Thank you for the reply. Apart from that seem to be OK. Walking 1 to 2 miles most days, unaided around the house. I do though take a walking pole with me outside more for comfort I think.
How are managing ?

 

[Deni444]

Wonderful news! Congratulations on Junior Member and the walking, you're going well! They say using two walking poles, really helps encourage a good walking posture. Something about balancing the whole body, for a full body walk. Maybe you could try it whilst you're using one anyway?

I'm doing OK, thanks. Very much up one minute and down the next. Excited about my progress in the morning and by bedtime, doom and gloom about everything I still can't do. Sleep is challenging. Even though I'm not in pain, I can't get a good sleep. Frequently waking up for the bathroom still, despite trying to limit water through the evening. I'll get there

 

[Layla]

Happy Four Month Anniversary, Trotter! Walking one to two miles daily is great.
Keep up the good work and have a wonderful week!
@Trotter

 

[jjfcpa]

I am nearly 6 weeks post op. I cannot get to sleep at all in bed. I get a pain in my knee and shin on the operated leg. Thank goodness I have a recliner to help me sleep, even if it is for just a few hours at a time. Any tips?

I am 8 weeks post op and I feel I am ready to go back to the bed to sleep. Took a while for the hip to get strong enough to withstand laying on it while in bed. Sometimes, even laying on my back bothered me, but it seems to be a matter of time. I've even started doing more weight bearing exercises at the gym that I was not able to do because I would have hip aches at night.

 

[Trotter]

I know we all recover at different rates, so we should not be harsh on ourselves when we hear of someone doing better. I had to smile the other day though, I saw a friend who asked how I was getting on. I had my walking pole with me and still limp. I told him I was 15 weeks post op. He told me his friend had had a hip replacement but was back playing tennis after 2 weeks. Fair play to them, but I just have my doubts. Has anyone else come across comments like this?

 

[myglasshalffull]

Oh for sure Trotter, we've all heard about these very fast & miraculous recoveries & maybe some people do have them, so kudos to them.
However it took me much longer to get back to my normal daily life than I wanted so hearing stories like that can really annoy us for sure.
We can never compare ourselves to others because we all are very special & unique people & our recoveries are the same.
So don't let it get you down!

 

[Layla]

Has anyone else come across comments like this

Yes, fairy tales...or short memories of the pain and ups and downs of a realistic joint replacement recovery.
It feels ignorant for people to make comments of this nature anyway. A good response is, "my surgeon is pleased with my progress and that's all that matters to me." With any luck, they'll get the hint and....zip it
Have a good one, Trotter!

 

[Deni444]

Oh yes... A friend helpfully (not). Told my husband about his 90 year old Mother who was back at work a week after hip replacement. Hubby was so exciting to tell me all about it a few days before my surgery. No wonder he went into shock upon my return home. He'd probably booked us in for couples skiing lesson the following week!

 

[Annekin]

Has anyone else come across comments like this?

Yep! My step mum enthusiastically reported how a neighbour of hers, in her 80s, was walking like a teenager after her hip replacement. Whilst I know she meant well, it's difficult when you are not recovering at the same rate. But we're all different, & as I pointed out, the neighbour hadn't had congenital hip dysplasia before surgery.

So I would ignore these comments. You body will recover at its your own pace.

 

[Wheatsiebat]

I think people that tell these incredible healing stories think they are giving us hope that our recovery will be as easy. I just find them annoying. Fortunately I only had one person start to tell me about how quickly so & so was back at it.

 

[Deni444]

I'm sure you're right about them meaning well. Also I think even people who have been through it tend to quickly forget those early weeks. They don't mean to but end up being liberal with their story, particularly with timelines. They may not even realise they do it. They fast forward in memory to the day they were doing really well and forget what they felt like that evening or the next day. They probably forget they walked up the road without walking aids but got home and thought with hindsight they still probably needed them. Or they were pushing too hard and went for no walking aid and thought a limp was somehow to be expected and looked somehow better.

You're doing the right thing. Better to walk with aid until you master a really good walk... No matter if it takes longer. You'll benefit in the long run because you'll avoid all the side issues and long term issues associated with a limp... A limp becomes a bad habit and is more likely to become a habit when people come off walking aids before getting a good balance and controlled stride going. A limp is lopsided posture and means soft tissue imbalance and means aches and pains! Long-term!

 

[Trotter]

Saw my Consultant/Surgeon today. The hip replacement looks good, no dislocation. However around the socket I have bone growing instead of soft tissue. It is only the second time in twenty years he has seen this occur. This explains why I still get pain when I move. Going to try some extremely strong anti inflammatories to see if this can halt the bone growth and promote the soft tissue. If this fails then it is either surgery or radiotherapy. On top of this my right hip now requires surgery. Happy days

 

[Jamie]

This is not an uncommon occurrence after hip replacements. It’s called heterotopic ossification. As a Basic Member, you can read about other BoneSmarties who experienced this or are going through it now by doing a search for that topic.

However, given this complication and the fact that you are facing another hip replacement surgery, you may want to consider joining the Insiders Club so that we can provide more information specific to what you may go through. That personal guidance and educational material is only available with a subscription. In the coming months, we will also be rolling out additional benefits for Insiders Club members. You can read more about it here. The small fee that we ask for membership to the Insiders Club is how we are able to keep the forum and website up and running for everyone.

 

[Deni444]

So sorry Trotter! I've read about this and it happens but for sure non of us want to go through it. Hopefully the antiinflammatory drugs will be successful and you'll avoid further surgery. Lots of us on here are double hippies and some of the recovery stories are remarkable, despite the complications many face on their journey.

You strike me as a strong person who takes the punches and pushes on. Dig deep and plod on!

Keep us posted. Sending warmest wishes and prayers for the success of your treatment

 

[Mr.fun]

@Trotter you should probably go over and read my thread. also if you could post your xray. I would be interested to see what the HO looks like in your hip.

 

[Annekin]

[ In UK I don't think we are allowed to have copies of our X Ray's.

You can make a special access request - Google NHS special access request and your hospital trust. You will need to create a login and they will ask for identification (driving licence etc). It's all quite straightforward. I know this because I have a file of my hospital records dating back to 2007. Including xrays & MRIs! Good luck!

 

[Annekin]

[ In UK I don't think we are allowed to have copies of our X Ray's.

You can make a special access request - Google NHS special access request and your hospital trust. You will need to create a login and they will ask for identification (driving licence etc). It's all quite straightforward. I know this because I have a file of my hospital records dating back to 2007. Including xrays & MRIs! Good luck!

Here's a link which tells you how to make an SAR in the UK

https://digital.nhs.uk/about-nhs-digital/corporate-information-and-documents/publication-scheme/how-to-make-a-subject-access-request

 

[EalingGran]

Do you have the NHS app on your phone?
You can register for PatientKnowsBest and then your Xray, MRI results and blood results should come through automatically.
The blood results come through the same day.
There is usually a delay in getting the Xray/ MRI results of a few weeks- so that they have been reported and your doctor has a chance to discuss them with you.
But it means you can access the reports any time afterwards. Really useful if you want to discuss with other doctors.
Also means you don't have to make a data access request every time you want to see something.

 

[Coddfish]

Hi @EalingGran
Unfortunately not all hospital trusts are using PatientKnowsBest yet. If the trust isn’t yet on it (and mine isn’t) then the only information you see (via the standard NHS) app is hospital letters sent to your GP, plus test results for things requested by the GP.