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What your quote is saying is pretty much what I said previously "Ossification requires the presence of bone stem cells to occur". In some circumstances, the 'vascular invasion' (i.e. creation of aberrant blood vessels) can carry these stem cells into other tisues and cause them to ossify - but a it's very uncommon occurrence. It takes a skilled eye to tell the difference between calcified soft tissue and bone.

I made an article in the Library Synovial chondromatosis of the knee which contains info from a doctor's lecture.
 
This is really interesting. I don't know if the pieces in my hip had calcified or ossified. I had gone to doctors for years and nothing would show up in the x-ray. I finally stopped going to doctors about my hip. About 13 years after I started having pain, my family doctor took an x-ray of my hip. At that point, you could see a lot of pieces (loose bodies) on the x-ray. That's when I had my arthroscopic surgery. There were still many pieces left behind after that surgery, and they either grew or joined together (or something!) because in the last several years, they looked like big rocks in the x-ray.
 
Hi Natalie
I am still wearing the brace for everything. I dont sleep in it.

I like it, especially the compression part. It feels good even though I have no swelling. As far as stabilizing, it is reassuring to get the support my knee needs as the hamstrings are like spaghetti.

I have restarted exercizing again.(we are talking heel slides! Nothing fancy)
Yesterday was rough but I still have access to pain meds so at least I can get comfy aftewards.
Best
Sandy
 
rerodriguez said:
I don't know if the pieces in my hip had calcified or ossified. I had gone to doctors for years and nothing would show up in the x-ray. I finally stopped going to doctors about my hip. About 13 years after I started having pain, my family doctor took an x-ray of my hip. At that point, you could see a lot of pieces (loose bodies) on the x-ray. That's when I had my arthroscopic surgery. There were still many pieces left behind after that surgery, and they either grew or joined together (or something!) because in the last several years, they looked like big rocks in the x-ray.
Click to expand...
What you think you see as loose bodies are more likely within the soft tissues of the hips. If you look at the xrays I posted, it looks almost like a heap of lentils in the patient's leg but it's all embedded in the muscles. Eventually the 'lentils' can get bigger and more profuse and even seem to join together. But I can assure you it's all in the soft tissues.
 
Josephine said:
What your quote is saying is pretty much what I said previously "Ossification requires the presence of bone stem cells to occur". In some circumstances, the 'vascular invasion' (i.e. creation of aberrant blood vessels) can carry these stem cells into other tisues and cause them to ossify - but a it's very uncommon occurrence. It takes a skilled eye to tell the difference between calcified soft tissue and bone.

I made an article in the Library Synovial chondromatosis of the knee which contains info from a doctor's lecture.
Click to expand...

Thankyou so much Jo xxxxx
 
Trainwreck said:
Hi Natalie
I am still wearing the brace for everything. I dont sleep in it.

I like it, especially the compression part. It feels good even though I have no swelling. As far as stabilizing, it is reassuring to get the support my knee needs as the hamstrings are like spaghetti.

I have restarted exercizing again.(we are talking heel slides! Nothing fancy)
Yesterday was rough but I still have access to pain meds so at least I can get comfy aftewards.
Best
Sandy
Click to expand...

I find mine really annoying it makes my leg ache and I feel worse after having it on all day!:th_DOH:

My hamstrings are exactly the same I am doing heel slides and very small leg raises!!
 
rerodriguez said:
This is really interesting. I don't know if the pieces in my hip had calcified or ossified. I had gone to doctors for years and nothing would show up in the x-ray. I finally stopped going to doctors about my hip. About 13 years after I started having pain, my family doctor took an x-ray of my hip. At that point, you could see a lot of pieces (loose bodies) on the x-ray. That's when I had my arthroscopic surgery. There were still many pieces left behind after that surgery, and they either grew or joined together (or something!) because in the last several years, they looked like big rocks in the x-ray.
Click to expand...


Mine never showed on Xrays either Rebecca they didn't even find it on an MRI to begin with it was only when they did a scope and biopsied it that they found out wheat it was.
 
Nat and Rebecca-
Me too. Never showed up in xrays but did in a MRI. So now what is behind my knee? There very clearly is a hunk of bone.

Thanks for the link Josephine. There was a link on the link page too for more xrays. Don't you just love the internet. Unfortunately for us regular folk we for the most part are not sure what we are reading or are reading it incorrectly and self dxing ourselves. Sometimes it works and other times it just makes us worry.
Martha
 
Hi guys how are you all?

I'm still sticking with the brace and I am doing physio so much in fact it's taking over my life!
I am still struggling to leave the house for long periods without being in agony.
I am still experiencing a lot of pain and the knee is still giving way constantly!
Back at physio today and the consultants on 11th Feb.

Sorry I haven't got any happier news guys xxxxxxxxxxxxxx
 
Hi Natalie, so sorry you are still struggling. Please take care and do let us know how your meeting with the consultant goes.

Big cyber (((((((hug)))))))!
 
Hi, Natalie....I'm so glad to hear from you even though the news is not the best right now. I know you ARE working hard and I'm sorry it's not getting better faster for you. Hang in there....I hope you see some improvements soon. In the meantime, here is a BIG ((((HUG))))!

Have you been able to do anything fun here lately???
 
Hi Jamie and Jaycey :)

Thankyou so much for the hugs xxxx

Physio has deemed my knee as unstable and he says he doesn't think it's because of my muscle tone and strength in my muscles he says they have improved so much and are really stoing now he says there is too types of instability mechanical and muscular and he is sure mine is mechanical.

He described my knee as a door hinge it feels like it needs oiling as it is getting stuck when trying to move it!lol!It's very hard to describe but it clunks when you move and it only started a few weeks ago!So he is waiting to hear from my consultant after he emailed him about it!

Not been up to much really it's my birthday next week so hopefully I can go out for a meal it's also getting ever closer to my girly holiday on 1st March fingers crossed I will be ok xxx
 
Natalie I think it will be great for you to get away and enjoy yourself. Just remember to pace yourself so you won't be the party pooper :th_sleep:.
 
Keep us posted, Natalie....and I'll hold on to those good thoughts. I will be interested to see what the consultant has to say.
 
Natalie I am so sorry. You have really had a journey. :cry2: I hope things can turn around for you very soon. I hope you will be able to enjoy your birthday . Its a little early but......... Happy Birthday to you !!!!! :lvshwr:
 
Hi Natalie!

It is good to hear from you even though the news isn't as good as it could be.
It seems that you and I are "running":th_heehee: about the same when it comes our
knees. I hope you will be able to find out some great information from your consultant!
 
Hi guys how are you all?

I had a fab birthday and everybody made it very very special for me :)

Friday was my appointment with my surgeon and some of it was good and some bad!

My replacement is ok. The grinding and clunking is to be expected for quite a while if not forever. But the pain and the swelling and the main reasons I am suffering is the SC (knee disease). He said although they took out as much as possible when they did the TKR, as most of it was on my synovial lining it can't all be removed due to risk of bleeding and infection. So there is some left in there and it will more than likely have grown and for now and until I can't move my knee anymore! There is nothing they can do at all. No meds help. No surgery will. So basically it's time to adapt to living with it. I may never get rid of the pain and I may never be able to walk far and do a lot of activity. But hopefully within the next 6 months when the TKR has healed totally, I may notice some difference.

Thanks so much for following my journey and helping me every step of the way guys xxxxxxxxxxxxxx
 
Natilie,
Sorry about your continue problems. Can they not use radiation to treat your disease? When I was trying to get a diagnosis for my condition one of the Oncologist told me that if it turned out to be synovial chondromalacia they would do a synovectomy and if that didn't get it all they would do radiation. I was diagnosed with Lipoma aroboresence and have had two synovectomies, one artho and one open with a pkr.
I hope everything heals well and you won't have to just live with it.
 
Natalie....so sorry it appears you will continue to have some problems with your knee. That darned disease!!! But I am glad to hear that your TKR is in good shape. Maybe at some point the knee disease will get under control. I sure hope so, hon!

Glad you had a great birthday....we were thinkin' of you!
 
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