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Op was off - and then on again!

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Yep, that's what she said. Eeh, girl - don't know what to say - again! (((((((((hugs))))))))
 
Nat-
oh Nat. What can I say? It must be heart breaking to get news like that again after doing all of this. I'm struggling too with it right now. Just went back for my yearly complain to the doctor trying to tell him it is not right.... something is wrong. He finally felt the snapping I've been trying to explain. Even after the CT scan of last year with all the scatter from the prothesis it is hard for them to tell what's going on in there. He's not eager to go back in nor am I. So next week I start back with my massage therapist to try and work my hunk behind my knee in the hopes its scar tissue and not SC. We'll start with the least invasive strategy first. Did you get a CT scan? My prothesis feels fine. It's just all the soft tissue around my knee that hurts. Is that how you feel too? I wish we lived closer so we could have some tea and talk this all over. Hope the brace helps you feel more secure.
Martha
 
Thanks so much for the support everyone it means so much xxx

I felt really down yesterday but feel more positive today.

Rebecca they do think it's back or should I say they don't think it ever left he said even though they thought they got it all it's easy to miss some which all us SC succeeded know so well!
They didn't seem too worried about it they were more concerned that he could physically feel the knee clicking and grinding and that I hadn't managed to strengthen my muscles enough to support it so hopefully the brace will help with that and more PT.
Martha I'm getting 2 different types of pain a very severe shooting one across the knee cap when I walk or stand on it and then a dull ache around the area where the fluid is that feels very similar to previous pain I had a few years back.I'm so sorry you are having so much bother too and I really don't blame you for not wanting to go back in I don't think I will ever want to be in that position.
They didn't scan me just XRays and I could see small floaters!!
I don't think I ever expected to be pain free if I can just get enough mobility back to lead a normal life I'd be happy :)

Jaycey I struggle with diflofenac,Arcoxia is the only one that's not really bad so I will try that again xxx

Thanks again everyone xxxx
 
Hang in there Natalie! All I can say is we are certainly here for you! Please keep us updated.
 
synovial chondromatosis, a chronic inflammatory disease that makes the lining of the joint over grow and become constantly inflamed.
 
Natalie,

I've been thinking about this. If these are pieces that were not cleaned out during the replacement, it is possible that the disease is not active? For the pieces to show up in an x-ray, would they have ossified? If that's the case, they can't be new pieces because they wouldn't have had time to grow and ossify (I wouldn't think). I'm hoping the disease is not active at this point. I know time will tell, but I'm going with a positive thought. Please hang in there!
 
Yes I've been thinking that too Rebecca hopefully they aren't active and Hopefully no new has grown.
I'm not sure I will find out properly unless they scan me and they weren't willing to do that.
I'm back on 18th Feb I think I will go armed with a list of questions!
 
Rebecca-
That is a very interesting question. How long does it take to ossify? And what is the difference between calcified and ossified. That is my thought process since I went into the doctors a week ago regarding my old xrays. Luckily I have a time frame of several xrays in about 21/2 years to compare. I have calcifications in the lateral ligaments and fragments behind the knee. I know I have old pieces of SC behind the knee from my last SC surgery 4 years ago. So have they ossified? And is that what they are seeing now. Or are they bone fragraments from a fall right before my knee replacement. And can't scar tissue ossify/calcify? Could that be it? I wish I xray vision to see inside!
Martha
 
Natalie.....so sorry that I am a bit late catching up to your posts. Gosh, I can't believe you are going through all this....again! But at least your last appointment with the doctor had some positive outcome. I know you will be dedicated to this latest round of PT and the old rest, ice, elevate, pain meds routine. I pray you will see some relief very soon, hon! It just ain't FAIR!!!

Oh....and do use that great comeback when people want to know why you're still complaining of pain after "all this time." It's PRICELESS!!!:th_hugzz:
 
rerodriguez said:
Natalie,

I've been thinking about this. If these are pieces that were not cleaned out during the replacement, it is possible that the disease is not active? For the pieces to show up in an x-ray, would they have ossified?
Click to expand...
Some soft tissue shows up quite well on xray, especially if it is abnormal as in this case. And it only needs to be calcified not ossified which is a different thing. Calcification is when it grows with abnormal mineralisation, ossification is when bone cells begin to be laid down in it and it essentially starts turning into bone.

A case of synovial chondromatosis
Note the white clouding around the joint and extending up the thigh


On the lateral xray (right hand one) you can clearly see the hamstrings coming down the back of the femur and also the capsule at the back of the knee. But what's missing is definition.
 
Natalie:
this happened to me too.
My knee started to feel very unstable an would hyperextend ( flamingo leg is what I call it)
The brace makes it better. Iam going to massage as well (she is breaking down all the nasties in my knee) Not a fun massage. I bring percocet.
It is helping and I an re-starting physio and went back to the gym today for the 1st time in 6 months. (I won't go into details but my leg is weak). I am very adept at over compensating with the good leg.

This is wayyy fun huh???

Like a root canal.

Hang in there.
Sandy
 
Martha said:
Rebecca-
That is a very interesting question. How long does it take to ossify? And what is the difference between calcified and ossified. That is my thought process since I went into the doctors a week ago regarding my old xrays. Luckily I have a time frame of several xrays in about 21/2 years to compare. I have calcifications in the lateral ligaments and fragments behind the knee. I know I have old pieces of SC behind the knee from my last SC surgery 4 years ago. So have they ossified? And is that what they are seeing now. Or are they bone fragraments from a fall right before my knee replacement. And can't scar tissue ossify/calcify? Could that be it? I wish I xray vision to see inside!
Martha
Click to expand...


Martha
I often wonder this too!It confuses the hell out of me???!!!
 
Jamie said:
Natalie.....so sorry that I am a bit late catching up to your posts. Gosh, I can't believe you are going through all this....again! But at least your last appointment with the doctor had some positive outcome. I know you will be dedicated to this latest round of PT and the old rest, ice, elevate, pain meds routine. I pray you will see some relief very soon, hon! It just ain't FAIR!!!

Oh....and do use that great comeback when people want to know why you're still complaining of pain after "all this time." It's PRICELESS!!!:th_hugzz:
Click to expand...

Lol!!!I certainly will Jamie so lovely to see you xxx

I feel determined to get through this bump in the road :thmb:
 
Trainwreck said:
Natalie:
this happened to me too.
My knee started to feel very unstable an would hyperextend ( flamingo leg is what I call it)
The brace makes it better. Iam going to massage as well (she is breaking down all the nasties in my knee) Not a fun massage. I bring percocet.
It is helping and I an re-starting physio and went back to the gym today for the 1st time in 6 months. (I won't go into details but my leg is weak). I am very adept at over compensating with the good leg.

This is wayyy fun huh???

Like a root canal.

Hang in there.
Sandy
Click to expand...

Thanks Sandy sorry to hear you are having bother too,how often did you wear the brace?

I am back at PT on Tuesday and I think I am going to have to ask him to be a bit more pro active he is very nervous about hurting me and as he has no idea of my condition he worries about making matters worse!!

Take care hun xxxx
 
Martha said:
And what is the difference between calcified and ossified.
Click to expand...
Calcification is when it grows with abnormal mineralisation, ossification is when bone cells begin to be laid down in it and it essentially starts turning into bone.
Martha said:
I know I have old pieces of SC behind the knee from my last SC surgery 4 years ago. So have they ossified?
Click to expand...
I doubt it. Ossification requires the presence of bone stem cells called osteoblasts to occur. These are deep inside the bone in the cancellous bone and can only be released to the exterior by surgery or trauma like a fracture. I doubt they would have done much more than soft tissue excision in your previous surgeries. They didn't usually do so.
Martha said:
Or are they bone fragments from a fall right before my knee replacement.
Click to expand...
Unlikely, as I just said
Martha said:
And can't scar tissue ossify/calcify?
Click to expand...
Scar tissue can calcify but rarely ossifies unless, as I said before, there is extensive damage to the bone causing bone stem cells to be released into the soft tissues. Even then it is extremely rare. But then, so is SC!!

(anecdote coming up!!)
Another thing that can happen in rare cases is that under such circumstances, soft or scar tissue can be corrupted by cartilage cells. I saw such a thing once (only ever the once!) when we did a laparotomy on a patient (opened the abdomen) for stomach surgery. He'd had previous surgery in that same place which had been taken right up to the point of his xiphisternum, the lower, pointed end of the breast bone. It would seem that the previous surgeon must have cut into this small bone projection, whether intentionally or unintentionally, we couldn't say, but the result was astonishing! All across the top of his abdomen between the fat and the muscles, a huge, dinner plate sized slab of bony cartilage had grown! It took us ages to dissect it out and a number of orthopaedic tools as well (he was a general surgeon)! The surgeon chickened out of doing what we'd come to do and just sowed him up. Well, it seemed that this was the cause of the chronic indigestion he had been complaining of as he seemed to be cured!
 
Hi Natalie!

I am so sorry that you are going through so much pain again! Hopefully the brace will help you while you go to PT to regain strength in that knee! You have been through so much and you deserve the best! I am "cheering" for you, and I will also be praying for you as well!:snk:
 
Thanks Josephine for participating in this discussion!
I wish I was a smarter person to understand all this. I would love to be a scientist and understand the ways of our bodies. Those of us with SC try hard to get a grasp of what is happening to us and do alot of reading on anything we come across. I am not a medical person but I think from what I read SC sufferers have a synovium that produces inapproriately cartilaginous cells. The synovium nurishes these growth and they grow and break off in the joint where they continue to grow and calcification can occur. "In late stages, the nodules may undergo true ossification via vascular invasion and endochondral bone formation" quoted from EMedicine. This is why I wonder just what is behind my knee that looks like bone. And why I wonder if the old pieces of SC did in fact ossify. OW! my head hurts! Your thoughts on this are welcomed.
Martha
 
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