Thank you for your comments everyone. I don't feel courageous but I do try be positive. Sometimes you have to work at it. There is always someone else worse off than me, and this really helps me to keep it all in perspective.
@mystikfairy61 I'm so glad your out and about and enjoying the Y
Well yesterday I visited with the professor of Microbiology and it was an interesting and also scary visit. It's bit detailed so please bear with me if you are interested. I do try to keep a detailed account of these types of things as a reference to anyone else who may have to go through this as I found the information I wanted to know when this all happened sketchy at best.v
So Prof said that my bug was a very difficult one to get rid of because it is very 'sticky' and produces a good amount of sludge. He said, before looking at my bloods, that he wouldn't expect a big reduction in CPR markers this early on. He talked a lot about Golden staf (staf aureus) which is a coagulase positive bug which means it produces little sludge. My bug, staf ludgenesis thinks it is golden staf by the way it does reproduce etc but is a coagulase negative bug. The coagulase negative bugs produce a lot of sludge.
He would prefer the OS removed the implants and not put anything at all in whilst the ABX do their work, in these infection cases. He said there is a risk that the bug can still hang around in the spacer. He said all the OS always tell him that if they don't put a spacer in, it makes it too hard to put the THR back in. He had a chuckle and said that he doesn't really know if any of them have tried it without the spacer. It's just a thing they all tend to do.
He would like me to continue on the ABX as it is well tolerated, easy to take and one of the safest drugs around. He thinks that I shouldn't come off the ABX next week. He prefers that the new THR goes in when my bloods are stable and that I continue on the ABX until about four months after the new hip goes in and the bone has started to attach to the replacement.
The reason for this? With the bug I have, it is:
- Difficult to eradicate
- Not super aggressive like staf aureus (golden staf)
- It tends to bubble away slowly and can for years and then raise its ugly head again
- Even a short time off the ABX like the 2 weeks suggested can allow it to reoccur, although symptoms may not show for years
- If even a little bit of it isn't eradicated it may cause the implant to not bond well to the bone
By staying on the ABX longer and keeping the spacer in, it is allowing my body to really fight the infection.
It was really interesting that he said, ABX do not cure infections as widely believed but actually get the infection under control to allow your bodies phagocytes to be able to get rid of the infection itself. These phagocytes
Eat up the infection. I think of them as like little PACMAN..like the game (just the image that came to my mind!!!)
The good news is that my blood CRP levels are nearly back to normal and though not normal they are staying consistent which is good. The bad news is that I may never get rid of this bug. It may lay dormant and reappear years later or it can happen again with the new implant.
He said that infection only happens to 2% of surgeries and the bug i have most likely lives on my own skin and was Introduced from my skin or someone else's via cannulas which are in place for anaesthetic, IV drugs, fluids etc. I told him how I got pedantic about the nurses disinfecting my cannula before putting anything into it and he said that was 100% correct. I am to think about anything going into that cannula in terms of germs,as going straight to my implant!!!! He said it was impossible to make skin sterile unless it went into an autoclave which of course is impossible and I know this anyway, from vet nursing.
The idea was to get anything foreign like catheters and cannula s out as soon as possible after surgery, as they are all gateways to infection and to my hip. He said he nearly got mobbed, when he gave a talk to a room full of Aneathesist's on the topic of whether the surgeons Introduced infection to the patient or whether the aneathesist did. Ouch, touchy subject obviously!!!!
The worst case scenario for me is that the infection keeps coming back and that I can have no hip implant but would have the girdlestone procedure. Another scenario is that I may have to take low grade ABX for the rest of my life. I'm not even thinking about these...we asked the questions!!! And we got the answers!!!!
One final thing he said was that many OS base their technique for these type of things from papers that other OS write on the subject. Quite often these percentages are incorrect as many patients who do get infections tend to go to a different surgeon as they say they are not going back to the one that did this to them!!! LOL but not really.
Both Wayne and I are really glad we have all this information and now we can have a good discussion with my OS when we go on Wednesday 30th (same day as
@fulafoto and
@Sue629 have their THR....don't panic....all this is rare!!!!). We are thinking that maybe I keep the spacer in for a bit longer and see if my bloods can come back to normal and then maybe not go off the ABX at all. Lots to think about...but as I said we are glad to have the information and both my prof and OS work together which is good too.
I would be interested to hear what
@Josephine has to say
Today in Australia we remember our fallen war heroes on Anzac Day.....all the men and women who gave their lives so that we can live in freedom as we do. My BIL is a commando and has lost many friends in Afghanistan in the last few years. He has often had to carry their bodies out of the action and willingly stood guard over them before they could be sent home to their families and be buried, as is the tradition.
Please take a moment to think of the sacrifices that these men and women and their families make for us.
Have a great weekend....(if you haven't left this very long post yet!!!!

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