ONE YEAR APPT WITH CONSULTANT
Well, I had my one year appt and was lucky that I actually saw my Surgeon as I last saw him at my 6 week appt. He asked whether I was happy about the surgery and I said yes, in that the pain has gone but still not happy that I still cannot walk without my crutch. He tested me and said I was trendelenburg positve which I knew.
He said that he understood my frustration but that due to having CDH and my history he couldn't say for sure whether I would be able to walk independently as he does not know if my hip muscles will strenghten further. He said he hoped I would improve over the next 6 to 12 months and said the 2 year mark would be the final date to know how much I could do.
I questioned him about why I was able to stand on my right leg pre-op without no support and now I find it very difficult. He said that pre-op I was not using my hip muscles to stand as my bone was literally fused so they were not being used. Now with my new hip it can move and it is the first time my muscles are being used so no-one knows whether they will be able to get back to 'normal' strength. You learn something new everyday.
So all I can do is to keep at it and hope that my muscles get to a point where I can walk independently. Otherwise there have bene improvements, mainly that I have bettter posture and my back ache has reduced alot. Also my ROM has improved a bit which is good but I had hoped for alot more so still unable to tie shoelaces etc.
In relation to my knee and foot pain he could not answer that question either and said he doesn't know if that will improve. That was upsetting when I thought about it, as now my hip wants to do more but my knee and foot can't take it so I am walking and doing less.
My hope was for the surgery to allow me to do what I was doing before but of course I wanted more. I have to get there as I do not want a crutch for the rest of my life as that would be too depressing. But one lesson I learnt was that I can't wait to live my life, as I was saying before that 'when I'm off the crutch I'll do ....'. Now, if I want to do it I have to go for it.
He was actually more empathic then previously but I still don't understand why they can't say all this before the surgery as it has been so frustrating at times due to the many plateaus and very slow progress I have made. He even said that I look younger after the surgery :biggrin:, but then again I have just been on holiday and caught a bit of a tan :wink1:.
So he has said to come back in a year's time - that's 2013!!
Am looking at other therapies to help me get there so will let you know what happens next.
Best wishes
Jyoti
