THR Marvellous Marvin's New Home

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Carol, tomorrow is June 12. We want to know what the new OS comes up with. Waiting to hear from you.
 
Hi, Carol....so sorry to hear you are having problems. Please let us know how the appointment goes. I hope this person is the one who can determine why you are still in pain. You have lots of ((((HUGS)))) from me!!!
 
Yes Carol, curious minds from down under are hoping for good news :)
 
8:21 pm
Week 68 POP

Hello Everyone

After a 90 minute ferry ride and one hour drive to the ortho clinic I saw the surgeon in Vancouver (BC Canada) today and what a difference.

The clinic is run very professionally but not clinically. All the people I dealt with were so very nice and obliging including (most importantly) the OS.

He is in his 40s, an associate professor at the university medical school, research scientist in his field and specializes in complex and reconstructive ortho surgery. He is no slouch. But he is genuinely interested. You can feel it. Yes the appointment is not long but I came prepared with the operative surgical report, previous scans/xrays and a bullet information list of my situation so not to waste our time together.

I took a little walk, w/o my cane . He shook his head and said not good :sigh:. He then asked When was your surgery? He then took one look at my X-Ray and:

“It appears that part of the acetabular cup has not bonded with the bone. What that means is for every step you take and actually in several parts of each step the cup is moving in very small increments against the bone. This will cause pain much the same as bone on bone. I need another bone scan with emphasis on the acetabulum to be sure but I strongly believe that is the problem and yes you will feel this pain over the whole pelvis.”

My hubby and I almost fell out of our chairs. :shocked: In those 10 minutes we may have a diagnosis. But even if that is not true he said he has a plan or checklist of all the things he can check to remedy my situation. After 16 months I took a deep breath. :happydance:

If this is the case I am in for revision surgery but if this is the case maybe there is hope. I didn't ask what the surgery entails and I would appreciate any info from the gang.

I will keep you in the loop.

My sincere thanks to everyone who has been pestering me for updates and sending me good luck wishes. I hold each and every one of you in a special spot in my heart. Bless you all….:thankyou:
 
[Bonesmart.org] Marvellous Marvin's New Home
[Bonesmart.org] Marvellous Marvin's New Home
[Bonesmart.org] Marvellous Marvin's New Home
[Bonesmart.org] Marvellous Marvin's New Home
Mad Rocker, Carol, this is just such GREAT news!!!!! I am so happy for you----your post just about brought tears to my eyes.


To read thread of those who have had revisions, just find someone in the recovery forum with a yellow oblong that says Revision THR in from of their thread title, click on the yellow oblong and you will get a list of all the hippies who have revision threads.

Take care---and keep us posted---I can tell you everyone is going to be pumped by this news. You know we care. [Bonesmart.org] Marvellous Marvin's New Home
 
Carol, I'm glad you are finally getting some answers! Do keep us posted, okay? That's what we're here for.

I had a friend (jimbo) on the forum a few years ago who had his THR revised due to the cup being loose. He no longer comes around much because he is fully recovered and back to his normal life. Here are a few of his threads, if you would like to read more about his experience.



https://bonesmart.org/forum/threads/out-an-on-the-other-side-of-revision.8368/

https://bonesmart.org/forum/threads/recovering-with-revision.8862/

https://bonesmart.org/forum/threads/appreciative-near-a-year-after-revision.12120/
 
I consider you fortunate to have an answer and a plan. You will get there!
 
:yahoo: I am so delighted, Carol, that you have finally found the OS who not only knows his stuff but is kind, thorough, and compassionate! I look forward to hearing that soon the pain and dysfunction you've been experiencing is a thing of the past!
 
Great news Carol, finally.. Sad you had to wait so long in so much pain, but now you have a diagnosis.. Stick with us.. :)

Xx
 
Amazing visit. Sorry that you have a significant problem going on, but I truly believe that we are better off knowing what is going on and having to make decisions such as more surgery or whatever, than being in the dark, in pain, and not knowing ... and that goes on with no end in sight. At least now you have a doctor who sounds like he will work with you and do the best for you. Best of luck, and keep us posted. Dorothy
 
Ditto Dorothy... we all need answers, different issues, but still need the answers :)

Take care my good friends :)
 
9:07 am
Week 84 POP

Hello Everyone

I know it has been 4 months since I talked to you last, but I had not heard back from the surgeon after I had my subsequent bone scans 24 Jun so I just curled up into a ball and hunkered down until I heard from him. That's what depression can do. Its very consuming when you get more on your plate than you can handle.

I had talked to my GP about the bone scan results and there was no apparent loosening of the apparatus. That was back in early Aug. So if fact I did know the results, I just needed to hear from the new OS.

Well I heard from him this morning. He told me there was no loosening and what did I want to do. I told him life was sucking big time and I did not want to continue with a level 5/10 pain and being on morphine for the rest of my life.

He said he generally did not do exploratory surgery but he was willing to do it to see if there was something hidden that was causing all the grief. I asked about impingement or a wayward tendon because there is something rattling (actually it feels like something catching on a rough gear right in the area of my incision). He said there are lots of things that do not show up on standard diagnostic tools. He indicated there is no guarantee that I will come out of surgery any different than I am now and then there is the risk of surgery itself. I told him it is my decision for the surgery and I will take whatever I am given.

So in about two months I will be going under the knife for no real reason except a bit of hope that the OS can find what is driving me crazy.

On another matter, I got a call from my employer and they want to meet to give me some options. That was very suspicious so I called my union and I will be taking a rep with me to the meeting. I have done some research and I know they want me to retire so I am off of their books. I have told them that I want to come back to work I just can't at this time, but that is something that employers don't want to hear.

It's always something....

Take care Everyone
 
Hey Carol, it's so good to hear from you but I can feel the frustration in your post! The good news is your surgeon is at least willing to explore what is going on. And do hang tough with your employer. Some options better be mega $$$$$ or returning to work when you can!

Please let us know when you have your surgery date. We will all be rooting for you again!
 
Hi Carol, I'm glad you at least have someone working with you dedicated to figuring out what is wrong. But, sorry you have to undergo a surgery.

How will the surgery be done? Arthroscopically? Open?

Dorothy
 
Hey Carol My Date is the 13 of Nov for MY REVISION on my left hip. I will read up on your Story tonight at work (early Afternoon on Thursday) See if we have the same complaints. I liked the doctor looking at the Xrays and kept repeating himself over and over "I got you right. everything looks good" Me "Then why the Pain Doc?" "I got you right" was the Answer.

This last time I walked in he was all for the look see; swap parts; see if he can find something. Since the rain has started and the cold (45* to 60* Temps) has set in the pain is increasing, I want it over with.


Looks like I need to come back and do some more reading. I will say the right hip has only a few issues that are really small compared to the Left One.
 
1:33 am
Week 85+ POP

Good Day everyone

With so many time zones I really can’t say Good morning and saying just Good… doesn’t seem to make sense.

I took the chance two weeks ago to volunteer at Big Brothers to do some filing, just for a few hours a week. There is still the idea in the back of my fuzzy brain that I can return to work. The first session was great, no pain, and no issues. Then came the next week and the sickening pain hit me hard. I tried one more session where I stood most of the time and now….

I have been having one heck of a spell from hell. Two weeks of pain and I’ve been hunkering down on Vanna (my recliner) most of the time (as the pain is just less, the less I do). So other than spending my day in bed where my pain is the least I have been pretty unbusy.

I went to my GP for a refill of my morphine and asked for an increase in dosage and what a mistake. In the 45 minutes I was in his office he told me I was a drug addict who was just looking for my next hit. He said I’m not calling you a junkie, but I refuse to give you more. The morphine is causing all your pain so I want you off of it ASAP. I hit the roof, a really meltdown; me soft yelling at him and him soft yelling at me. I did get a Rx for morphine but for the same dosage. I have been delaying to get a new doctor but at least I got a referral to a pain clinic (which will take months) and a referral to a marijuana doctor. The GP said the marijuana was a last resort. He also said the surgery was a huge mistake as my pain is only from the morphine and not from anything wrong in my body.

I am so confused. I hate this city. There is such a shortage of GPs. But I have promised my son that I will put getting a new GP on the top of my List of Things to do.

Keep your fingers crossed for me.

Take care Everyone
 
Hi Carol Mad Rocker, it certainly sounds as though you need to find a new GP. You need a second opinion that is for sure :)

Stick with us, we are here for each other :)
 
Carol,
Sorry to see you still have such a difficult time. Addicted, what was that man thinking. Remembering your history, you are in real pain, geeze.:yikes:
Wishing you all the best in finding a new and understanding GP.:yes:
 
1:25 pm
Week 91+ POP

Hello Everyone
Just a quick note to let you know how I am doing.
I found a new GP :dancy: who seems to be on my side. I have only seen her once for a meet and greet but she referred me for a MRI (something I have been begging for for over a year.) And she said that if I need the narcotics for pain control I obviously have that kind of pain and she will not take that away until the time is right. She believes that there is definitely something wrong and surgery is warranted. She also is somewhat reluctant about the surgery which is basically an exploratory so she just wants to do a few extra tests.

I am very pleased that I may have found someone who believes that I am not nuts. She even said echoed that opinion.

I am back at physio as I have not done anything for 4 months. He wants me to strengthen the abductors as much as possible He also indicated Don't kill yourself this is just a wee bit of strengthening.

So it looks like I may be OK for a little while. :)

I'll keep you in the loop

Take care
 
OMG I am so sorry for your troubles. I am about at the same timeline as you only they DID find my acetabular cup to be loose so at least I have an answer and will have revision 12/18. I know how frustrating it has been for me this past 1 1/2 yrs so I totally hear you. It sounds like you are having a fresh look at your situation and that is a good thing. The weird thing that I found over all this time is that people expect great results because it is such a small percentage that has something different, so they keep expecting that, no matter how much one complains. Perhaps these fresh eyes from a new doc will be the answer for you. I hope so honey, I hope so. Hang in there.


Sent from my iPad using BoneSmart®
 
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