Hi Josephine,
Thank you very much for the detailed response. I will give you some answers to the questions asked. But firstly let me say...it might just be me but I always feel a bit intimidated when talking to the consultants, and they all have been very nice.
Not according to my research. Who recommended him? And why go to TW hospital when you could get the very best of the best at in London in the body of Sarah Muirhead-Allwood who is the hip surgeon other hip surgeons go to! She did the late Queen Mother's hip too! If I ever need a hip done, she also the one I would choose of I could. You do still have insurance, don't you?
Who recommended him, well a friend of mine has just had a revision (he is in his 70s and had his first op 27 years ago) he told me what a great job he had done and when I went to the GP (not my own) she looked down her list and mentioned the same name??
TW is very close to East Grinstead and the Horder Centre has a really good name around these parts.
Its about money my insurance company will only pay the "given amount" they say I would have to make up the rest...I don't know, but Ms Muirhead-Allwood might be a bit out of my price range.
Trochanteric bursitis doesn't get red and it doesn't make you feel unwell. It's just horribly painful and limits your activity. As I believe I said previously, my GP sorted mine in a trice with a shot of cortisone. Have you not had this done yet and if not why not!
I meant that I might have a infection, but I think that unlikely.
After you mentioned cortisone, I went to my GP and he said "As your under Mr Parnell I think that he you should ask him" Mr Parnell seemed to think that stretches and Physo is the way to go! Then a couple of weeks ago I saw another GP and she just said she would not do that and referred me to a consultant??? Out of the two GPs and two consultants not one of them has offered this??
When you first said that your surgeon 'feared he had destroyed your femur' I was appalled. Good revision surgeons have techniques and special tools to remove difficult stems and would never say such a thing. I worked with revision surgeons for a number of years and there wasn't much they were intimidated by as they have pretty much seen and done everything - if they are actually revision specialists and not chaps who 'have a go at' a revision from time to time. Sadly there are far too many of them. Ms Muirhead-Allwood is not one of those. Go see her and get it done properly.
I think this was said in a light hearted matter , like "it was in there so tight I might have caused damage getting it out" so really just saying "its not loose" Mr Parnell has a dry sense of humour...and is a highly thought of surgeon around the Sussex area. As a mechanical engineer myself I sort of got what he said and took it in the spirit it was said
As for the stem being loose and still not being able to be removed, this is possible because the tip of the stem can wiggle whilst the top, larger part is still firmly fixed. As the tip toggles within the bone, it remodels the inside in a very particular way as bone doesn't much care to have metal constantly moving against it and dies back slowly. You can see this remodelling in this xray - it's this that causes the pain
From the xray it looked to me that the bottom of the stem was OK but there was a gap about half way up until the head, he also mentioned some bone growth (I can’t remember its name) on the outside of my femur which he said could be caused by a loose stem??
How can I get hold of the new Xrays and bone scans, I would like to go back to Mr Parnell and show them to him...as I have mentioned he is a top surgeon, I really went to
Mr Michael Fordyce for a second opinion, thinking he would tell me to carry on with the stretches or even give me a cortisone injection, I was pretty shocked when he came back with a loose stem theory.
One thing that did surprise me after the X-rays taken 3 days after the revision, I have not been asked to have any done over the last 15 months...is that usual??
Again thank for your help it gives me some confidence to lead this rather than being led.
XX
#heterotopicossification