Wow, Bill - it sounds like you're doing really well despite the various challenges you've faced along the way. By comparison to mine, your July 4th celebration was an out and out blow out! That size of a crowd and that much hosting would be out of the question for me right now!! Glad you had a great 4th.
I wanted to weigh in on the questions you posed about PT. Like you, I was having a very difficult time trying to understand why my doctor, PA, nurse practitioner, and 5 PTs (3 in the hospital and 2 at my home) all told me to do the exercises, and BS was saying the opposite. I spent a long time looking at the PubMed website to read scientific articles on the topic. It is difficult to go against directions from the medical staff I chose and trust. I wanted some scientific evidence to show them. The conclusion I drew from the research articles I read was this:
1. Rehab after TKR is an under-studied aspect of joint replacement research. Much more is needed! Maybe that explains why there are such different expert opinions about the best way to rehab.
2. Compared to TKR outcomes even 10 years ago, today's TKR patients are doing really well and way better than they used to, regardless of rehab approach. We are lucky to be doing this now!!
3. Some research seems to conclude that aggressive rehab after TKR does not do harm. (My thought - SO WHAT? Who wants to put themselves through agony if they don't get way better results by doing so?)
4. It seems like physical therapy may help patients achieve rehabilitation somewhat sooner than those who do much less physical therapy. For me, I am not in any big rush. I am trying to avoid pain and suffering. If I was trying to return to a professional career in sports, I may be pushing myself more than I am now.
5. One hospital studied whether two PT sessions a day in the hospital improved outcomes over one session per day, and they concluded it did not make any difference long term. I'm not sure if this can be extrapolated to post-hospital rehab, but it is something to think about.
6. I believe several studies concluded that around 94% of TKR patients gain sufficient ROM to move as they want when it is assessed one year post op. So chances are really good that we'll be great no matter what!
After my own reading of these articles, as well as all the advice on BS and from my medical team, I came up with my individualized approach. I am so determined not to be in pain, and so many BS folks (yourself included!) have warned me about the Over-Did-It-Club. I am trying very hard, and thus far succeeding, in not doing too much. I am doing the exercises my PT gave me, but I had her just show me how to do them and told her I'd work on them on my own. When she visited, I showed her how I was doing them, so she could correct me if it was wrong. I started very slowly, and I build up just a little bit more each time. I am doing exercises 2X/day. I'm a bit uncomfortable right when I finish (each session is almost an hour!), but if I ice and elevate right away I get instant relief. If the discomfort continues whatsoever, I would cut back, but that hasn't happened.
I think maybe one of the reasons this approach seems to be working FOR ME, is that I have two to three adults nearly full time waiting on me hand and foot. (Embarrassing but true!) I think if I was doing all the necessary tasks myself, like laundry, meal prep, dog care, etc., then I wouldn't do as much PT. You, on the other hand, are amazing to me with the energy you have to mow the yard, drive yourself around, BBQ for a crowd, etc. So maybe in your case, that's enough. As long as we're seeing improvement based on what we're doing, and we're not hurting ourselves, we're probably good. You have really helped me prepare myself for how I will talk to outpatient PT. I'm always so compliant, and you are a good example of someone who has stuck up for himself. I'm sorry this post was so long! I would have preferred to have a chat with you in my living room, but writing will have to do!