BoneSmart® Hip / Knee Replacement Forum
Joint Replacement Patient Advocacy
and Online Community
  1. Announcing BoneSmart's NEW Joint Surgeon Locator tool

    We are pleased to now offer a tool to help you find just the right surgeon for your needs.

    Read more about this in this announcement:

    Dismiss Notice

[MUA] TKR Revisions 24 months after Original TKR

Discussion in 'Knee Replacement Recovery Area' started by Cherey, Sep 21, 2016.

  1. Cherey

    Cherey junior member
    Thread Starter

    Member Since:
    Feb 28, 2016
    Age:
    57
    Messages:
    35
    Gender:
    Male
    Location:
    Pennsylvania
    Country:
    United States United States
    Have finished with one consult. His recommendation is RFA and no revision. Going to get more and try the RFA
     
  2. Cherey

    Cherey junior member
    Thread Starter

    Member Since:
    Feb 28, 2016
    Age:
    57
    Messages:
    35
    Gender:
    Male
    Location:
    Pennsylvania
    Country:
    United States United States
    Have sought a second and third opinion neither of which think a total revision is the answer one stating that there is an increase risk of infection and revisions do not last as long. The second said it was a 50:50 chance of success with a total revision. Going to see if radiofrequency ablation (RFA) is possible. Both doctors are at HSS so I am comfortable with their knowledge and it seems that the implant is fine. It just does not bend and becomes excruciatingly painful when the weather changes. If RFA does not work I am going to pay $500 and have the “Reconstructive Joint Group which are 12 orthopedist at HSS who review and decide amongst them what can be done and who will do it. There are two Dr. Sculco at HSS and both seem to be recommended for arthrofibrosis. Anyone have personal experience?
     
  3. Cherey

    Cherey junior member
    Thread Starter

    Member Since:
    Feb 28, 2016
    Age:
    57
    Messages:
    35
    Gender:
    Male
    Location:
    Pennsylvania
    Country:
    United States United States
    Here is he diagnosis and update. HSS has determined that I do have fibrosis and pain of unknown origin. It is considered a complex knee but are recommending against a revision due to risk and only a 50% chance of success. An attempt will be made to control the pain doing a genicular RFA with no guarantee of success. If not successful then I will need to consider long term opioids I know that the risks of a revision is to great at this stage of the original to undergo one. I am signing off for now
     
  4. Cherey

    Cherey junior member
    Thread Starter

    Member Since:
    Feb 28, 2016
    Age:
    57
    Messages:
    35
    Gender:
    Male
    Location:
    Pennsylvania
    Country:
    United States United States
    Starting to feel like I am talking with my self. But maybe someone will respond. The trial block in preparation for the RFA worked as it did after the RFA. Over the weekend we have had weather change and I have been in excruciating pain. I contacted the Pain Management specialist at HSS and he feels that if I am still having this much pain that the RFA did not work. In preparation for if it did not work I made an appointment with a local pain management specialist who was baffled with me traveling as much as I have. He seem reluctant to work with me but when I got a call several days later to set up a follow up I assume that he will. He is talking about Oxycotin or similar medication. I am not really happy about all of this since I seem to loose a little bit of myself when I have to take oxycodone on multiple days. I have called HSS and left messages for both of the doctors I have seen in hopes they will call back. Just want to cry
     
  5. Pumpkln

    Pumpkln FORUM ADVISOR Forum Advisor

    Member Since:
    Oct 27, 2011
    Age:
    68
    Messages:
    19,918
    Gender:
    Female
    Location:
    United States, West
    Country:
    United States United States
    @Cherey ,
    Moving right on to Oxycotin seems like a choice that should be reserved only when all options are over. IMO: I would stick with HHS for now.
    Has anyone spoken with you about Therapeutic Neuroscience education? It can in addition to every thing else you are doing it can help you better cope with your situation and begin to get your life back.
    Places you can start are the Curablehealth.com, Retrainpain.org, and the Pain Reframed Podcasts on iTunes.
     
    • Agree Agree x 2
  6. Jamie

    Jamie ADMINISTRATOR Administrator

    Member Since:
    Mar 24, 2008
    Age:
    70
    Messages:
    53,440
    Gender:
    Female
    Location:
    Kansas
    Country:
    United States United States
    @Cherey, I know comments from your fellow BoneSmarties have been rather scarce lately and I'm sorry about that. You are going through such a difficult time and I know it would help to have support and some validation for your decisions. But, I'm sure you know that your situation is quite unusual and that makes it difficult for us to provide specific advice. We're as dependent as you are on what the specialists are telling you.

    I certainly hate to see you having to go the route of long term opioid medication. I hope you can get back to one or more of your HSS surgeons to see if there are any other options for you.

    Forgive me if you've already answered this, but have you had a metal allergy blood test? The particular test I'm talking about costs around $550 and there is only one lab that does it. Usually it's not covered by insurance. If you haven't, I do suggest you get that test done to rule out the problem of any metal sensitivity.

    Please don't give up. We do care about you and want to know how things are going for you.
     
    • Agree Agree x 1
  7. maryo52

    maryo52 FORUM ADVISOR Forum Advisor

    Member Since:
    Dec 5, 2010
    Age:
    67
    Messages:
    3,546
    Gender:
    Female
    Location:
    Maine
    Country:
    United States United States
    I agree with Jamie. Do the Orthopedic Analysis test, and you'll have that information for the 12 doctors when they brainstorm. It may explain a few things.
     
    • Agree Agree x 1
  8. Jockette

    Jockette FORUM ADVISOR Forum Advisor

    Member Since:
    Aug 29, 2017
    Messages:
    10,071
    Gender:
    Female
    Location:
    Delaware
    Country:
    United States United States
    I agree about the blood test, I would gladly pay for it myself to see if it could solve and prevent a problem.
     
  9. Celle

    Celle FORUM ADVISOR Forum Advisor

    Member Since:
    Nov 19, 2011
    Age:
    77
    Messages:
    31,509
    Gender:
    Female
    Location:
    New Zealand
    Country:
    New Zealand New Zealand
  10. skigirl

    skigirl SUPER MODERATOR Moderator

    Member Since:
    May 5, 2009
    Age:
    74
    Messages:
    13,490
    Gender:
    Female
    Location:
    Minneapolis, MN
    Country:
    United States United States
    My husband ended up with long term opiod use after his back surgery failed to fuse. I have to say that he was miserable much of the time. He had constant constipation and so took a variety of laxatives which were draining. He was sort of sleepy much of the time and dizzy too. Also, the pain meds had to be increased at times because he became habituated to them. Oxycontin is the strongest and most addictive of the pain relievers, I am amazed that someone would jump to it first. After my surgery, I took it for 10 days---my doc would not prescribe it for more days because it was so addictive. It happily worked for the first few days after surgery, I ended it after the 8th day.
     
  11. Josephine

    Josephine FORUM ADMIN, NURSE DIRECTOR Administrator

    Member Since:
    Jun 8, 2007
    Age:
    77
    Messages:
    83,235
    Gender:
    Female
    Location:
    The North
    Country:
    United Kingdom United Kingdom
    You might like to know this about oxycotin vs oxycodone: Oxycodone is an opiate agonist that is the active ingredient in a number of narcotic pain medications, including Percocet, Percodan, and OxyContin.
    OxyContin is a specific brand name for a pain medication in the opioid class (narcotic drugs) that contains the extended-release version of oxycodone.
     
  12. Cherey

    Cherey junior member
    Thread Starter

    Member Since:
    Feb 28, 2016
    Age:
    57
    Messages:
    35
    Gender:
    Male
    Location:
    Pennsylvania
    Country:
    United States United States
    Yes I am aware of the difference. The doctor specifically said Oxycotin was his preferred choice since it is long duration. I keep thinking the problem is the arthrofibrosis and if that was corrected everything will be okay but so far no one at HSS is interesting in trying to save the prosthetic. The original surgeon was to revise and HSS does not give good odds if it is done. Thinking of paying the $500 for the group opinion or seeing another surgeon at HSS who is listed as specializes in arthrofibrosis Sculco
     

Share This Page

Sponsors
Close X