@Layla For sure Layla there will be lots of research and meetings before such decisions will happen. I have 3 months of daptomycin which is going to take me up to August so plenty of researching time!
I am so so tired and feel and look about 100! My poor body, my skin is dry. It's an ongoing battle to combat the antibs. I take probiotics and supplements and the nurses who come every day check my skin and such like. At my appointment on Tuesday, we covered lots of things going back to my original infection 5 years ago. It is thought I had that for 3 years before being identified, no wonder I hurt a lot whilst working for GPs. It's amazing how the body copes!!
I think the truth is I am nearly at the end of options. Yes they can keep opening me and cleaning out and trying to stop the infection but my skin is thin after so many surgeries. I have a horrendous inverted scar and they have tried to bring it upward this time with stitches instead of clips. My stitches come out tomorrow and he is very anxious there is no residue from the wound or I will be straight back in, only time will tell.
Crutches for now, no physio at all ever. If anything hydro over at the hospital. It is definite the first hospital did not get the dislocation back completely and this why it went again. Thank goodness all the prostheses looked perfect. All was measured examined several times, it took 2 of them sitting on my leg to get it back in!!
I am seeing him every 2 weeks and in constant contact on text. I am lucky it is a team specializing in bone tumours and the consequences of bone infection. I couldn't be in better hands, but I know he would be the first person to re refer me if he thought someone else could do better. He flew back from a conference in Prague to operate on me and back to Prague the next day.
Big hugs for better sunnier happy days, but, I am so much luckier than many. xxxx
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