Revision TKR Never give up, keep trying, don't settle - that's me, Bonnie

While I do not do yoga. I have had great success with stretching my quads and hamstrings while in a whirlpool.

I let the legs warm up, and then do quad stretches and hamstring stretches. I would ice both afterwards. I let the jets directly hit the tight areas.

I miss that Tim, in that with my first TKR I did have a pool with nice warm water and hot Texas sun warming up my knee. The digging for the pool at my new house starts this Friday. We've also included a heater in the plans so as soon as it's done and filled (about first part of May) I can heat up the water really warm for my knee. Ordinarily a pool heater is not necessary in Houston in the summer months as the sun keeps it really warm. But this way we don't have to wait for the sun to warm it up and can use it year round when the weather cools down, October thru April.

Another hot yoga class today, I've not sweat this much since I was out running 20 mile long runs in the Houston heat and humidity. My knee feels great without stiffness when class us done. I'll keep at this for awhile.
 
Bonnie, I sincerely hope that your yoga classes will help. But I was thinking you may still have some interior swelling that is keeping you from bending more, if that is the case heat will not help.
I think what you may need is to take a week or so of complete knee rest, iceing and elevating around the clock to get rid of any swelling. With all the PT, bike peddling etc., the swelling seems to me the only reason you cannot get more ROM. Just my humble opinion, I'm not an expert, just old age experience.
Wishing you the best.
 
My two cents.
Oldie makes a good point on swelling. Heat promotes blood flow and can cause swelling to compromised tissue. It can be effective to loosen up the joint before exercise but is not a good idea afterwards as it tends to cause swelling.
Cold restricts the blood flow to the area resulting in reduced swelling which is the goal. On the other hand , Bonnie says she sees no swelling with the warm yoga exercise so the heat may no be impacting her negatively. She previously had issues with scar tissue and I wonder if it could be again inhibiting progress. Perhaps an MRI could tell although it is still early days. I had some scar tissue that the PT told me to press on and massage. It fortunately was in a position where I could get at it and I pressed it so hard and so often that I think I created a permanent indent along the upper inside area of my knee cap.
 
@patbike Yes absolutely I am worried about scar tissue again. With what I went through after the original TKR, who really could blame me? But its still too early for anyone to take me seriously with that thought. I do know that this time I actually made scar tissue break when I was doing some assisted backward lunges and really stretching my quad. It went POP!! I never had that the first time, it just grew and strangled me. I know that it is there because of that, but how much...who knows. I guess time will tell.

I did a little better in Physical Therapy yesterday, got to 116 ROM with less effort and discomfort than I had last week getting to 112. My PT attributes that to the Hot Yoga. I'm going to make myself get out of bed tomorrow morning and attend a 5:30 am class.
 
At Physical Therapy on Monday this week, my PT had me using the step box to work on ROM to be able to do stairs. I totally cannot go down stairs except one step at a time with each foot. I ordered my own step box from Amazon on Monday evening and I received it yesterday. I've been practicing at home and the more I do it the better I get. I can only use one riser so far, it came with two risers.

Monday my knee was tight, could not get better than 110 degrees (with work)... Yes, feeling discouraged. But on the upside I've been able to pedal the bike at PT each and every time I go. The medial side of my knee has been hurting...I never even mentioned it at Physical Therapy (mostly because I've been discouraged). Today I went and I did tell that I had been hurting on the medial side. Turns out that with some soft tissue work discovered that my abductor muscle (inner thigh) was as tight as tight could be, tugging on the side of the knee. So after some massage to loosen it up, (and it was still tight) he did acupuncture on the abductor muscle and OMG almost immediately it released. I was able to bend to 115 degrees, 5 more degrees than I had on Monday and without the pain.

Moral of the story...Tell the Physical Therapist everything that you are feeling! He told me to continue practicing the step over the weekend, pedal my bike on the trainer and s t r e t c h!!!

I've not been on here too much lately, mostly because I've been feeling down, I wanted to have something good to report, not that in still just in the same place. I'm not giving up, I'm not settling, I WILL. Get more ROM!

Here is my step I can do in front of my new mirror to make sure that I am doing it correctly. Several more weeks and the pool will be done. I'm heating that thing up to 90+ degrees and getting in and working on my bend as soon as it is ready!

[Bonesmart.org] Never give up, keep trying, don't settle - that's me, Bonnie
 
Glad to hear of your success. You 90 degree pool sound wonderful.


Sent from my iPod touch using BoneSmart®
 
Hi there .... I'm sorry about your Molly .... about a month ago I had to have my Abysinnian cat (Amber) put down, and I understand hard it is. I still wish she were here, snuggled along side of me.
Your story and mine are somewhat similar. I had a RTKR 3 years ago, a year ago I had to have scar tissue removed from that knee. It started hurting about 2 months later and some days it's awful. In talking to my Physical Therapist and doing a lot of reading and asking questions here, I have an appointment with a doctor who specializes in revisions. I have not seen him yet - could not get an appt. til mid June, but I'm on their cancellation list. I wish I could go now, find out what's going on, and take care of it. I have a feeling it's loose because it hurts on the right side of my knee and it's now started hurting down the outside of my calf. Maybe it's just something I have to live with, I don't know. The doctor and hospital are about an hour away in Baltimore, but he gets very high ratings and the hospital does also. So, we'll find out.
My heart goes out to you with your sweet Molly ..... it's really tough to lose a good friend ..... that's how I feel about Amber also.
abby
 
Hi there .... I'm sorry about your Molly .... about a month ago I had to have my Abysinnian cat (Amber) put down, and I understand hard it is. I still wish she were here, snuggled along side of me.
Your story and mine are somewhat similar. I had a RTKR 3 years ago, a year ago I had to have scar tissue removed from that knee. It started hurting about 2 months later and some days it's awful. In talking to my Physical Therapist and doing a lot of reading and asking questions here, I have an appointment with a doctor who specializes in revisions. I have not seen him yet - could not get an appt. til mid June, but I'm on their cancellation list. I wish I could go now, find out what's going on, and take care of it. I have a feeling it's loose because it hurts on the right side of my knee and it's now started hurting down the outside of my calf. Maybe it's just something I have to live with, I don't know. The doctor and hospital are about an hour away in Baltimore, but he gets very high ratings and the hospital does also. So, we'll find out.
My heart goes out to you with your sweet Molly ..... it's really tough to lose a good friend ..... that's how I feel about Amber also.
abby
Hi Abby @amberpep thank you so much for you nice message. I too am so very sorry about your losing Amber, it hurts so much to lose a pet, they are like our children, they love and trust us unconditionally.

You had your RTKR on May 24, 2011, I had my RTKR on March 28, 2011. You are right, we are very much the same. You had your scar tissue removed quicker than I did and I suspect that mine would have been done sooner had I had a doctor who cared to listen to me and had I gotten a second and third opinion sooner. Of course if you read my thread then you know that I hurt a lot with the scar tissue and after my scar tissue was taken out I hurt I think even more. Only thing left to do was see a revisionist who did indeed take care of me as you know.

I am sorry that you are not able to get in sooner, maybe you'll get lucky and there will be a cancellation. I know how you just want to get on with it, get it done and get your life back. But I do know this...you should never say "Maybe it's just something I have to live with, I don't know." If there is anything I have learned, it is to 'NOT SETTLE'. Keep looking for the answers and don't stop until your pain is gone and you have your quality of life back. I put up with it much to long and in hind sight I wish I would have found a new doctor much sooner, but that is water under the bridge now. It's never too late to start the journey so one day you can say, "So 'this' is how it was supposed to be!" And start living again!!

Take care, please let me know how you are doing and hugs to you for the loss of your Amber. Molly is with me everyday, as I wear a necklace with a sterling silver dog bowl with her name engraved on it.
 
Like you, I absolutely believe I'll see Amber again .... that red fur and green eyes and big ears (my kids used to call her E.T. when they were young).
Did you have to get your entire replacement part removed and a new one put in? Was the recovery about the same as the first time around? I really have got to rest if I do have this done .... I cannot do what I did before. I'm pretty sure it was my own fault. Living alone, it's hard not to overdo it. When I came home I was alone for 1 week, then a girlfriend came from PA for a week (she was my angel), but when she went home that was it. My son did come on the weekends and got groceries, but that was about it. I was pretty much on my own. He did take my dog for a few weeks, but after that, I had to do it and I live on a second floor. I wish I had a first floor condo, but when I bought it I didn't have this problem - 12 years ago - and really was not thinking ahead very far. My girls are hounding me to move down there, but I really am dragging my heels on that. They live about 4-5 hours away (in the Shenandoah mountains) and I know practicality wise it would be smart to do, but having lived in this area since 1971, have organizations I love, my church, doctors, etc. I really don't want to. A real dilemma.
Thank you so much, Bonnie. I'm sure at some point I'll be back asking all sorts of questions.
abby


1990's - 2 meniscectomies
2011 - RTKR
2013 - scar tissue removal
 
@amberpep Hi Abby! Yes, I had my entire knee replacement removed which was a Smith & Nephew Legion knee. My doctor replaced that knee with a new Stryker Triathlon Revision System....much longer implant stems!

As far as recovery, I dreaded the very worst because my original TKR recovery was so horrible but I was so pleasantly surprised that this complete total knee revision recovery was about 100 times better that the first TKR.

I would tell anyone to go ahead and do it, anything to get rid of the pain and get your life back. Having my revision was the best thing on Earth that I could have ever done for myself. More than likely you'll do just great!!!
 
Hey Bonnie !, Just checking in on you. Its been alittle while. Im sorry to hear about Molly. Its sad to lose a beloved pet. I had no idea your flexion was decreasing. Did I read that you might get a MRI. ???? Could it be internal swelling ?? You are a fighter , you will get to the bottom of this . You have gone too far to cave in . You sound down , but I think its very understandable, considering you had a revision. Ill be following your progress abit more closely to help , lift you up and support you . You have alot of people on bonesmart that wish you the best . I think yoga is great and someday I may even try it. For flexibility. Should be quite a sight . 6ft3 and 250 lbs. And tight as a drum . But my bone on bone pain is gone , however im early in my recovery , maybe ill try January 1 of next year.

What level is your pain ? When is it most painful ? Are you taking meds. I see you have a great setup at your house. Looks like a gym ! I have faith you will turn this situation around and we will be pulling for you all the way through. Congratulations on the pool. I cant wait for our community pool to open up . Im hoping may 1st. Well Bonnie , got to stay positive , even though you may not feel like being positive . The blues are tough. We will pray that things work out for you. Best wishes Iceman.
 
I don't know if this is my thread or not .... I think so and I'm wanting to reply to Bonnie, but I don't know.
abby
 
I don't know if this is my thread or not .... I think so and I'm wanting to reply to Bonnie, but I don't know.
abby
@amberpep You are on my thread Abby and that last post above you did reply to me, in saying you wanted to reply. Just start typing in the box below my post here and then click reply.
 
Hey Bonnie !, Just checking in on you. Its been alittle while. Im sorry to hear about Molly. Its sad to lose a beloved pet. I had no idea your flexion was decreasing. Did I read that you might get a MRI. ???? Could it be internal swelling ?? You are a fighter , you will get to the bottom of this . You have gone too far to cave in . You sound down , but I think its very understandable, considering you had a revision. Ill be following your progress abit more closely to help , lift you up and support you . You have alot of people on bonesmart that wish you the best . I think yoga is great and someday I may even try it. For flexibility. Should be quite a sight . 6ft3 and 250 lbs. And tight as a drum . But my bone on bone pain is gone , however im early in my recovery , maybe ill try January 1 of next year.

What level is your pain ? When is it most painful ? Are you taking meds. I see you have a great setup at your house. Looks like a gym ! I have faith you will turn this situation around and we will be pulling for you all the way through. Congratulations on the pool. I cant wait for our community pool to open up . Im hoping may 1st. Well Bonnie , got to stay positive , even though you may not feel like being positive . The blues are tough. We will pray that things work out for you. Best wishes Iceman.

@icep707 Ahh thank you so much Iceman for checking up on me. I have been around here for so long I am pretty much old news to everyone with so many new Bonesmarties coming onboard.

Molly died the morning of my first TRK just before leaving for the hospital. That with the TKR and my Dad dying 4 months before my first surgery it was a horrible time in my life. In less than a years time after my TKR my husband was very near death as well, hospitalized for two months in ICU. He is here with me now though and got me though my revision. Yes, I am a fighter or I never would have gotten though all of that.

My flexion is not necessarily decreasing, it is just not going anywhere. At 4 weeks I reached 115 degrees for the first time, and now today at 19 weeks I am still at 115 degrees albeit if I am having a good day. I'd say I have 110 degrees functional and anything beyond that is hard work pushing to 115, or trying to pedal a bike, which still I cannot just hop on and do. First I have to heat my leg, stretch it and work up to being able to make a rotation. I have trouble bending my leg to get it under the sheets when I go to sleep at night, I CANNOT go down stairs. When I saw my OS at 3 months post op, they said you are doing great, come back in 8 years! Yes, he said 8 years.

At 3 1/2 months I emailed and asked if I could have some pain pills for Physical Therapy, and they let me have them although they usually don't prescribe them that far out. I was hoping that this would do the trick, but they don't. I might as well just never take one again because it hurts anyway. I've not mentioned having an MRI, must have been someone else since I've not talked to my OS about my non-gaining of ROM since I asked for pain pills. Maybe I should email them??? But everyone tells me to be patient. How long do I have to be patient before I've been patient so long and lost my window of opportunity for any kind of intervention? When I do bend my knee to a point, I get a SHARP pain in the side of my calf, this has been going on for months. My Physical Therapist wonders if it has something to do with the long stem down my tibia and the bone maybe not being completely healed yet. So each visit, we warm up my knee/leg do soft tissue work, sometimes acupuncture, wall slides until I have enough ROM to pedal the bike. I pedal for 10 minutes but not without raising my hip or pointing the foot, I can't do it normally yet. Then do some strengthening exercises. Next time I return I am never at a starting point where I left off. If I gain 5 degrees in Physical Therapy the next visit I still start at 110. No gains that are being kept. I am quite sure that my visit today will be the same.

My first TKR had scar tissue growing in every section of my knee and wrapping around tendons. That had to be removed surgically and truly I don't think that anyone can blame me for worrying about that again. Everyone tells me I must be doing too much. I tell you, I am not. Sometimes I wonder if I should be doing more, maybe its my fault...My first TKR I achieved 135 ROM at 6.5 months, I am 5 weeks away from that and have 110 degrees. Yes it was a different knee, but my therapy is the same with the same person. I know the routine, I've not been overdoing it and he stresses that we don't over do and push to hard. I've been to Yoga only 4 times. The first 3 times were good, although I could not do everything because of the lack of ROM, the 4th time I went I did a lot of sitting or standing doing nothing because the routine that day involved much more ROM and it was impossible for me to do. I've not been back since.

Am I discouraged? Yes I am. I'd be lying if I said I was not, but at the same time I am a very positive person and I tell myself that I will achieve more ROM, but I just don't know 'how' or 'when' at this point.

Good luck to my sister today who is running her 6th Boston Marathon. She is 5 years older than me and obviously still has good knees!
 
Bonnie....sweetie....you will never, ever be "OLD NEWS" here on BoneSmart!!! You are a valued and loved member of our family and we always want to hear what's going on in your life. So please never allow yourself to think otherwise, okay?

That said, I can tell by your latest post that you are frustrated and impatient. As you know, that is something we all go through at one time or another. Your revision surgery was this past December. You had so much going on with this knee prior to the revision. Surely you know in your heart of hearts that being less than 6 months out is way too soon to be writing yourself off as a candidate for more improvements!!! Heck, I just had a regular TKR with no issues and at 6 months I was still kind of gimpy! Now at a year out things are beginning to normalize. But.....my strength is way, way gone and needs work to gradually build back up.

There is no window. You are doing the right thing by working on your activity levels slowly to keep irritation and inflammation at a minimum. It's just going to take time.....like a year.....maybe more. Your knee has been around the world twice and that's a LOT in such a short time. Try to focus on the positives of where you are at any given time in this recovery journey. Maybe it would be a good idea to have a chat with your surgeon about your progress. Most people go in for a 6 month check up. Why not make an apointment and have a heart-to-heart talk?
 
Bonnie,
I agree with Jamie, and you are not old news around here. I have benefited greatly from your posts and support, and know I am not alone in going through this revision process, which can cause a lot of :hairpulling:.

Here is a photo of the adjustable short arm crank on my exercycle. It is set at about 160 to 165 cm, the full length of the crank is 175 cm. I have had this exercycle short arm crank since 2001, not sure if it is even still available. The exercycle was my Dad's from the late 60's, Schwinn made in USA.
I cannot tell the difference between the two lengths, except it is easier to get around with my knee. You can use any pedal on the crank arm. The shorter arm crank allows me to use good technique, and develop good habits, with out having to compensate elsewhere.
Many thanks to your sister for running the Boston Marathon today!

[Bonesmart.org] Never give up, keep trying, don't settle - that's me, Bonnie
 
Well Bonnie, we are here for you. And you are not old news. But I know what you mean. I rarely post on my thread and im barely 10 weeks out. But I frequently post on others. Its been a tough few years for you. I had that happen to me once. Its like when it rains , it pours. But things will get better. Hang in there, you and your sister are brave !!! Best wishes.
 
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