Revision TKR Never give up, keep trying, don't settle - that's me, Bonnie
- Thread starter RunA42K
- Start date
Dhare63
post-grad
I had the same experience with my scar tissue removal. It was the best thing I could have done to get going in a better direction. Don't be surprised if you have lots of bruising afterwards. It will fade.
Also, I use the Ted hose, but cut the foot out of it to make getting it on easier, that really helped.
Keep us posted and will keep sending good vibes!
Also, I use the Ted hose, but cut the foot out of it to make getting it on easier, that really helped.
Keep us posted and will keep sending good vibes!
Cflower
member
Bonnie. So gad to hear you are out of hospital and at him. Please keep me posted on York recovery. I'm very interested in if this solves your problem. Here's my email (hope this I s permitted) because I feel like somes the post are buried pretty quickly if there are no response. I wish we could posts new comments are questions that are not part of our original recovery post. I had a deep massage yesterday and I wish you could try this lady. She's out in 1488. I also went about purchased a castor oil pack that I'm trying. I hope I don't become one of those people desperate to try any home remedies. I did give up trying the graston technique on myself. Good luck for speedy recovery. Slmichie at comcast. Net
OP
OP
Cflower, Got it Sherry I will keep it handy if I am looking for good massage, referrals are always the best rather than blindly picking one. What troubles are you having right now? I can tell you that I have thrown so much money at this knee before I got to this doctor, who was actually referred by one of my customers at the store who had gone through the same problems as me. I had spent so much money on RX compounded topical creams and RX topical non compounded. Oral anti inflammatorues, Airrosti, Physical Therapy, massage therapy (one time $160) then the co-pays on bone scan, knee aspiration, and CT scan and now 20% of the scope yesterday. In hind sight I wish I had seen the new doc sooner, but it is was it is. I know I will be ok now! When fall comes to Houston I will be outdoors again! Thank goodness I have this new one story house now...
OP
OP
Dorothy, I have 3 Physical Therapy appointments set up starting Monday. My bandage is so bulky now but have to keep it on 48 hours. I am anxious to see how much it bends without the bandage, I am gradually inching up the ROM on this CPM.
Hi Bonnie,
I'm glad your surgery is over and you are home again.
Wow! All that scar tissue! Let's hope that this time is the charm and you are soon getting back the ROM you need.
Take care!
Caryl
I'm glad your surgery is over and you are home again.
Wow! All that scar tissue! Let's hope that this time is the charm and you are soon getting back the ROM you need.
Take care!
Caryl
Cflower
member
Bonnie. Today I ready throught all our 55 pages of post. I did not realize how sick your husband was. What was the diagnosis? My twin sisters husband sound similar. He started in January with low sodium which caused seizures then bladder problems, cdif, ruptured stomach, sepsis, ventilator then trach and dialysis. He passed away July 4. My sister may get her knee replaced in October and if she does she will probably be lurking or joining this board.
I did not realize you had fallen three times on your bike. If I get out on our bike paths after a storm I'm pretty nervous about hitting pine cones and limbs that have fallen. You've been a sore woman with your running and biking. I just want to have my knees feel normal if that is ever possible.
Hope your recovery this time goes well and you don't try to run too soon. Take it easy for awhile. Anxious to,here about recovery.
I did not realize you had fallen three times on your bike. If I get out on our bike paths after a storm I'm pretty nervous about hitting pine cones and limbs that have fallen. You've been a sore woman with your running and biking. I just want to have my knees feel normal if that is ever possible.
Hope your recovery this time goes well and you don't try to run too soon. Take it easy for awhile. Anxious to,here about recovery.
Cflower
member
Bonnie the trouble I'm still having is the tight band feeling around leg. Usually it is above knee and sometimes tight down sides of calves. I don't know what my rom is but I can ride my bike with no pain. I usually just ride 4-6 miles still do water aerobics two times a week and trainer once a week. I'm going to try castor oil pack. My massage therapist suggested it mi don't want to become one of those desperate people that believes every home remedy that comes along. Good luck to you and hope are doing fine now that you are home
OP
OP
Cflower Wow Sherry, if you read all my 55 pages it must have taken you all day!
I am happy to report that I have maxed out the CPM at 120 degrees today. 120 degrees without any discomfort, I am so happy I've been on the CPM for about 8 hours each of the last two days. Then I get up and spend some time walking around my house (weight bearing is what the doctor said) with hours on the CPM. I am doing exactly what he told me to do, and now will build on that 120 to get my 130+ back again.
Sherry I too had always had that tight feeling, it never went away in two years and five months. Now it is gone with the removal of scar tissue. Don't be afraid of falling on your bike like I did. When I fell on my road bike, my feet were in bike shoes clipped into the pedal, I fell on my mountain bike because I was going up and down hills and curves in the dirt and brush. I am a bit of a rebel, and I know you don't ride your bike that way.
You asked about my husband and I'm sorry about your sisters husband. The sepsis does have a 50% fatality rate. My husband had a micro tear in his colon shortly after a colonoscopy. He almost did not make it, but is here now taking take of me and my knee once again.
I am happy to report that I have maxed out the CPM at 120 degrees today. 120 degrees without any discomfort, I am so happy I've been on the CPM for about 8 hours each of the last two days. Then I get up and spend some time walking around my house (weight bearing is what the doctor said) with hours on the CPM. I am doing exactly what he told me to do, and now will build on that 120 to get my 130+ back again.
Sherry I too had always had that tight feeling, it never went away in two years and five months. Now it is gone with the removal of scar tissue. Don't be afraid of falling on your bike like I did. When I fell on my road bike, my feet were in bike shoes clipped into the pedal, I fell on my mountain bike because I was going up and down hills and curves in the dirt and brush. I am a bit of a rebel, and I know you don't ride your bike that way.
You asked about my husband and I'm sorry about your sisters husband. The sepsis does have a 50% fatality rate. My husband had a micro tear in his colon shortly after a colonoscopy. He almost did not make it, but is here now taking take of me and my knee once again.
Hi Bonnie,
You're doing great!
I'm so glad for you.
Best wishes,
Caryl
You're doing great!
I'm so glad for you.Best wishes,
Caryl
megbabyrn
senior
Bonnie, so glad this part is all over for you!! Hopefully now your progress will be exactly what you expected the first time around!! 43 years, wow, with everything you have gone through, there definitely is a strong bond!!
Good luck with you're recovery. I will be following it, you are such an inspiration for me!!!
Good luck with you're recovery. I will be following it, you are such an inspiration for me!!!
OP
OP
First day of Physical Therapy coming this afternoon. Tomorrow stitches out. I've been bending ny knee better than I have in the past two years! I am so relieved and happy that I got a second opinion.
Now my question is, since my new doctor does not do knee replacements can I continue to see him do you think for knee check ups? I don't want to go back to to my TKR surgeon. I guess if I have any TKR issues he could refer me to some else. What is the protocol for check ups after the 2 year mark? Three year check, five your check? I don't know...
Now my question is, since my new doctor does not do knee replacements can I continue to see him do you think for knee check ups? I don't want to go back to to my TKR surgeon. I guess if I have any TKR issues he could refer me to some else. What is the protocol for check ups after the 2 year mark? Three year check, five your check? I don't know...
Cflower
member
Good luck with your PT today. Was there a lot of swelling? I had a massage last week from the lady I told you about. I have been having that tight band feeling above my knee allthe way around. I don't want to say this too loud because I may bring it back but that seems to have relieved a bit and moved down below the knee. That's weird. The outside of my shines feel extremely tight and the top part of my calf really tight. I may go for another one this week to see if it improves more. I have one of those big calf/leg massagers from Brookstone and I'm going to start trying it. It squeezes pretty hard.
OP
OP
Cflower, Physical Therapy went really well today. I've had moderate swelling, am just 5 days post op so very manageable. When I arrived today my PT took a baseline/starting point ROM measurement of 105. I did quad sets, heel slides, and before long I was peddling a stationary bicycle. I've not been able to pedal for months. After that another measurement of 117. Did some wall slides and ended up at 123 ROM for the day. I was very happy, 5 days out, first trip to Physical Therapy and 123!!! When they asked how my surgery went I told them that compared to TKR the scope is like having a paper cut!
referee54
Former BoneSmart staff member
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Life is to be lived---and to be enjoyed and not to be lived in fear---I agree whole heartedly---I have fallen twice whle clipped into my pedals---I maneuver the bike to land somehow on my hip, and it bruises, but I love cycling so much that I have gotten over my early fears of "What if I fall?"
patbike
senior
I am wearing knee pads for xtra knee protecton. The particular model from GForm is great because u don't even know it is on and it offers very good impact protection.
OP
OP
Here are the pics of my scar tissue during my scope surgery 8 days ago, and also one of how far they bent my knee when I was out! Today in PT I peddled the stationary bike 2 miles and got a ROM of 121 degrees! Happy happy!!
![[Bonesmart.org] Never give up, keep trying, don't settle - that's me, Bonnie](https://bonesmart.org/forum/attachments/rom21august2013-jpg.14998/ "[Bonesmart.org] Never give up, keep trying, don't settle - that's me, Bonnie")
![[Bonesmart.org] Never give up, keep trying, don't settle - that's me, Bonnie](https://bonesmart.org/forum/attachments/kneescope21august2013-jpg.14999/ "[Bonesmart.org] Never give up, keep trying, don't settle - that's me, Bonnie")
I'm really glad things are going so well for you, Bonnie!
OP
OP
I am really, really hoping that someone has some input on this...I am sure that you thought that since I've not been on here for a couple of weeks was because I was out and about physically living life again. Well, its been just the opposite.
When I was 9 days post op from the scar tissue removal I woke up in the wee hours of the morning with horrible stiffness and pain in my entire leg in addition to my knee with greater swelling in my knee. It was just before the Labor Day long weekend on August 30th. I sent my PT a note asking if what we did on the 28th could have caused this. He felt sure that we didn't overdo things and instructed me to compress, ice and elevate all throughout the day. I did this and still did not help at all. By Sunday I could barely walk, so much pain. Didn't matter if it was weight bearing or not. I called to the on call doctor for my OS. Of course he could not diagnose me over the phone, but after asking me a number of questions that would rule out infection and blood clots. He instructed he to keep up the the ice and elevation and to use the CPM to keep my now stiff knee to keep moving so ward off new scar tissue growth. He paved the way for me to get in Tuesday morning for an appt with my OS.
I got myself into the doctor and was all I could do to keep from crying as I was so uncomfortable. I have to wait over an hour to see him, I didn't mind as I was just glad to be worked in. When I finally go to a room and saw the doctor, I did cry! It was so painful to walk from the waiting room to the exam room. I was worried that he would just dismiss it as pain and swelling due to surgery (now 13 days post op). Well he did take me seriously and he poked a big needle into my knee and drained out a bunch of bloody fluid. He said that would help with the pain to take down some of the swelling. They sent samples to the lab to test for infection. He extended the rental of my CMP for another 2 weeks. I heard back by the end of the week that there was NO infection. He had told me to come back the following week if I was not improved and if I was doing better to come back in 2 weeks.
Yesterday (Sept 10) was one week and I returned to the doctor because I was still in so much pain. I could not sleep at night, could not move in bed with out pain, trouble walking and the day before on Monday of this week, my ROM was 98 (measured by my PT). Where I had been using the CPM at 120 degrees, now I had to start at 70 and work my way up, not getting past 105 which was of last night. So the doctor has referred me to some other specialists thinking that I have Complex Regional Pain Syndrome. Of course I knew nothing about CRPS and he explained a lot to me. In a nut shell he said that some of the nerves have gone haywire, they are signaling my brain that I am very much in distress and thus the brain sends out the pain signal to the affected area. The pain is disproportioned from what the surgery/trauma/injury. The surgery I had should not have this much pain associated with it. He likened it to when your computer freezes up and you have to shut it down and restart it, then it works. He wants me to see a couple of doctors (same practice) who specialize in injecting the nerves involved to numb them, put them to sleep so when they wake up they will be reset so to speak, just like shutting down the computer and restarting. I have to have a consultation appt with them first and as I type this I am, phone by my side waiting to hear from the as to when I can come in. Meanwhile, my doctor said that the scar tissue is getting a head start since I don't have enough ROM. He talked about my scar tissue again saying it was the worst he had seen, that is was intwined through every section of my knee, a big thick sheet of it that also went after some tendons too.
So now I sit here in pain, waiting for a call, ROM about 90 to start the day, and worrying about scar tissue going after me again. So please, has anyone ever had anything like this or know someone who has had CRPS? If so, how was the treatment and did it work?
When I was 9 days post op from the scar tissue removal I woke up in the wee hours of the morning with horrible stiffness and pain in my entire leg in addition to my knee with greater swelling in my knee. It was just before the Labor Day long weekend on August 30th. I sent my PT a note asking if what we did on the 28th could have caused this. He felt sure that we didn't overdo things and instructed me to compress, ice and elevate all throughout the day. I did this and still did not help at all. By Sunday I could barely walk, so much pain. Didn't matter if it was weight bearing or not. I called to the on call doctor for my OS. Of course he could not diagnose me over the phone, but after asking me a number of questions that would rule out infection and blood clots. He instructed he to keep up the the ice and elevation and to use the CPM to keep my now stiff knee to keep moving so ward off new scar tissue growth. He paved the way for me to get in Tuesday morning for an appt with my OS.
I got myself into the doctor and was all I could do to keep from crying as I was so uncomfortable. I have to wait over an hour to see him, I didn't mind as I was just glad to be worked in. When I finally go to a room and saw the doctor, I did cry! It was so painful to walk from the waiting room to the exam room. I was worried that he would just dismiss it as pain and swelling due to surgery (now 13 days post op). Well he did take me seriously and he poked a big needle into my knee and drained out a bunch of bloody fluid. He said that would help with the pain to take down some of the swelling. They sent samples to the lab to test for infection. He extended the rental of my CMP for another 2 weeks. I heard back by the end of the week that there was NO infection. He had told me to come back the following week if I was not improved and if I was doing better to come back in 2 weeks.
Yesterday (Sept 10) was one week and I returned to the doctor because I was still in so much pain. I could not sleep at night, could not move in bed with out pain, trouble walking and the day before on Monday of this week, my ROM was 98 (measured by my PT). Where I had been using the CPM at 120 degrees, now I had to start at 70 and work my way up, not getting past 105 which was of last night. So the doctor has referred me to some other specialists thinking that I have Complex Regional Pain Syndrome. Of course I knew nothing about CRPS and he explained a lot to me. In a nut shell he said that some of the nerves have gone haywire, they are signaling my brain that I am very much in distress and thus the brain sends out the pain signal to the affected area. The pain is disproportioned from what the surgery/trauma/injury. The surgery I had should not have this much pain associated with it. He likened it to when your computer freezes up and you have to shut it down and restart it, then it works. He wants me to see a couple of doctors (same practice) who specialize in injecting the nerves involved to numb them, put them to sleep so when they wake up they will be reset so to speak, just like shutting down the computer and restarting. I have to have a consultation appt with them first and as I type this I am, phone by my side waiting to hear from the as to when I can come in. Meanwhile, my doctor said that the scar tissue is getting a head start since I don't have enough ROM. He talked about my scar tissue again saying it was the worst he had seen, that is was intwined through every section of my knee, a big thick sheet of it that also went after some tendons too.
So now I sit here in pain, waiting for a call, ROM about 90 to start the day, and worrying about scar tissue going after me again. So please, has anyone ever had anything like this or know someone who has had CRPS? If so, how was the treatment and did it work?
