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TKR Need Help and Encouragement, please...

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Just keep telling yourself that you are not abnormal to still need pain meds from time to time. I am twenty days ahead of you and still need pain meds at night...my pain even wakes me up between 3 and 4 every morning...and my OS is still willing to give me percosets 50 pills at a time when I ask for them! I am only using them when I need them but sometimes you really do need them. I hope some day your OS has an orthopedic surgery and has a doc as kind and thoughtful as he is!
 
Hi BEG! I remember you the first time you posted and my heart just melted and went out to you - I can't believe your jouney! So hard. But let me tell you something I know for sure - this is going to get better! You will have days that seem impossible and then there will be one good day - then 2 and then 3.... I promise you! I worried about taking meds (although getting them was not nearly as difficult as you have experienced!) I worried I had crippled myself and that I would never feel OK again - I feel OK again! You will! I still ice, elevate, rest and come here for support...but I am getting better and you will too, I just know it. I wish I lived close enough to visit you - I am alone too - you hang in there and give you what EVER you need to feel better! xoxoxo
 
I am with nms BEG, my right knee (Oct. 30) still acts up - the last 2 days in particular. I tried to wean myself off meds after the first surgery too quickly. I was glad for the 2nd surgery because of the flare-ups with the right knee. Going much more slowly this time 'round. It could be your oncologist - who sounds like a gem - can work with your GP on the pain management front.

We all so support and care for you BEG. btw, as a lawyer, I would ask your insurance company to request a copy of your surgical report from the hospital and/or OS. Just to have the record. I also concur with one of our friends above to document, to the extent you can, who you spoke to, when, and response with respect to the OS and his nurse/asst and what you told them at the time. It will be helpful for that letter to the PA licensing board. Huggs!
 
To one Widow to another, You are having a hard time right now but it will get better. You will have a moment in time of peace, then another and more and more. Then it turns into a morning, an afternoon then a evening. Then all of soon a day , not saying you won't think of you Husband but with less pain and accept the fact that he is not where you want him to be. I found that writing a letter to my Husband after he died help me to get the pressure off How much I missed him. Nothing is wrong with this or sitting or laying in bed and talking to him. I was told to talk to a stuff animal and tell the animal all my pain and hopes I had . A dog or cat is even better if you had one. I used this to help solve my problems that I was having because I always talked to my husband when I was having a problem. It sounds a little difference but it works. I also yelled at the poor stuffed bear for leaving me. Crying helps and so does laughter. I do know that you will work at your own pace. Please don't give you a deadline for getting over this. Its like the surgrey you don't know when you will be healed.

The fact that you beat Cancer I know you are very strong. Remeind yourself of this everytime you feel weak or that OS makes you feel dume or weak. Have you thought about writing to the doctor and tell him how he let you down and how he has left you in pain. I don't mean you to send it because use any language you want. Be blunt and let him verbal have it. Then lay the letter aside for a while. You can add more anytime you want. Then some day you will want to let go of it and when that day comes. Get a jar and put the letter in it with some water. Put it in the ground and bury it. When you do this its called "Giving it to God" and letting go of it and let God solve it. I had a God Garden at my house. I totally forgot about before I sold my house. :shocked: So some day the new owner will be doing some work in the yard and run into lots of jars with water and paper will be long gone. They will wonder what this are was used for but who cares. :eeeuw: They will no dought throw it all away and turn into something beauiful. I don't know if you live in a house or apartment so maybe it won't be able to toss it in a hole. Now that I live in a apartment I write the letter and then I go to the park and go to the barque pit and build a fire and watch it burn. It feel good to do this if it works for you. Remember there are lots of people at this site that may not be close but we do reach out and hug you every chance we get. Remember you are not alone and if it would make you feel better hug the computer. :heehee: Just for today remember you are loved by many people through out the world. Do take care and be careful . We love you. Tashia :friends: :flwrysmile: :console2:
 
What a incredible idea. I WILL write him a letter and bury it. That may help. I feel so much anger for him and so let down. If I did not fall, I would not have seen him until March 22. That was my next appointment. His assistant saw me, the knee was the same bend, and said he would not touch it for 3-4 months and made the appointment. Now is is urgent to have a MUA? I think it is someone trying to shut me up. grrrr Enough of that, I will be amused to see why my med prescription was not ready for me yesterday. I am too tired to fight them anymore. My GP said, lets see what they will do today before her prescribes some for me. I may not need them but just want them there, just in case I do. If that makes sense.

My insurance agent actually records all calls. They say that at the beginning so she has proof of this day to day horror story.
I was almost totally weened off the meds before the fall. I basically took one or two before P/T and then one or two after. I still take my ibuprofen every six hours to try to manage the swelling. That was my idea. If it were up to them, I would be on nothing except his Omega 3's. Seriously. I think they actually sell vitamins.

Missing my husband has really been hard for me right now. I guess, when you hurt and can't walk or even sit, with this ROM, and a doc that does not care, I just wish he was here. I always wish that, but now it seems even harder. I started a journal and I write to him. It helps sometimes. What beautiful ideas you have Tashia.

Again, all of you give me hope. Sometimes I just feel like I will never walk normal again. I know that is silly, but I can't believe I have been going through this for 8 weeks. It seems like years. My pain mainly comes when I use it too much but one thing that really makes me happy. When I am just sitting, I feel NO pain. Before the surgery, I always felt pain. So THAT is a good thing? :)

Today I will hear from my OS nurse regarding the meds. I asked them last Friday, what he meant by a small window, but of course I have heard nothing on that and don't expect to.

I will also here from my GP's nurse who is setting up a Pain Management Doc for me. They are faxing info back and forth. I just thought I would need that for the long haul or for MUA aftermath. I have never had such problems with any other surgeries, etc. I did have problems with a meniscus tear repair and whatever else they did in there. Terrible pain. I don't understand why? Me and knees.....ugh!

Once that is done I make my next move. I will then ask for my operating reports etc. Can I personally get everything? Then I will start calling docs. First will be the one that will not see you until 3 months. I am hoping.

In the meantime I am just resting and massaging. The swelling is slowly getting better from the fall. I will let you all
know what happens!
 
Wishing you all the best for you today, that you get the care you need and deserve.:angel:
 
"Once that is done I make my next move. I will then ask for my operating reports etc. Can I personally get everything? Then I will start calling docs. First will be the one that will not see you until 3 months. I am hoping. "
BEG,
Yes you should be able to get all your reports, x-rays, etc from your DR. You probably will have to sign a release form but you records are yours for the asking. You might have to pay a small fee for copying the reports but don't let them tell you you can not have them. That is wrong.
 
Thank you! Today, we talked and I asked why there was not a prescription waiting yesterday. They said it was overlooked and was doing one for me today. I am not feeling the best today and the knee is hurting so I am planning to pick it up tomorrow. I want to get it "filled" before asking for my records. The last time, they refused to give me a prescription. Then I will go down there and get them all for ME, not for another doctor. That way I will have everything in hand.
Then I will try to get into see the other surgeons explaining that I am not with ANY surgeon and give them my GP's name. I spoke with my insurance and I never need any referrals. I let my GP know that they filled out a new prescription so there is no need for him to. I am waiting to hear from him regarding the pain management. The last time I spoke to his nurse she was awaiting a fax.
Now, I told my OS nurse I wanted to know why he wanted to to a MUA immediately. She seemed surprised and questioned that he said that. She said that he waits until you are at least 12-16 weeks. I reminded her I just turned 8. I told her to ask him about that closing WINDOW and I would wait for the answer. I reminded her I asked Friday and today is Tuesday. She said she would get right back to me. She then called and said that HE said 12 weeks! I knew something was wrong. He probably never even looked at my chart since he was not scheduled to see me. I insisted that the assistant bring him into the room. Well, I am not worried at all now anyway....he is NEVER going to touch me again. whew!
One of these days I will be giving all of you some good news...and I will be walking normally again. Maybe one day "I" can help someone on here. I still can't thank all of you enough....
 
BEG, You are already helping others, by sharing your story and giving us feed back to the outcomes you encounter!:thumb:
Others may run into the same issues, as you have been dealing with, so by reading your post they will learn how to handle the situation. So my dear, you are being of great help here! That's what we do as BoneSmarties, help each other through, the good, the bad and the ugly!
You are making some headway, albeit frustrating at times, and hope your road will go a lot smooother from here!:friends:

Stay well and stay positive my friend!:thumb:
 
Sounds like you are feeling stronger in yourself, that took a lot of guts to go in there and stand up for yourself. You CAN do it.
Hope you're feeling a bit better after venting, you should be proud
 
:console2:Glad you have a sensible GP and are sticking up for yourself and looking for a new OS.
 
BEG - Anytime one of your doctor's offers you a prescription - take it. Given your situation I would not turn down anything especially since the other clown is unreliable and you don't have a script in hand from him yet.
 
Dear BEG, I am so sad this is still going on with you and you are only 7-8 weeks post-op!
I had considered an OS who had a bad reputation for not being warm and fuzzy, but a good surgeon. When I looked up his Vital ratings (and a few others) MOST of the patients HATED his bedside manner! That made me cross him right off the list! Sounds like you had his twin!
Have you tried anyone in the Rothman Group? They have offices in Phlly, Bensalem, and others around Eastern PA. It might be worth a try. I went to them for my knee treatment for the 2 years prior to my TKA, but had my surgery in NYC.
I wish you the best, please keep us posted.
 
I read what you said and I hear strength. I know you don't think you have it but you do. Look at already all the things you have done. You took care of yourself during all this mess. When the swelling goes down you will feel so much better. I know I did when my knees started looking more like knees instead of swollen legs. One of the things that helped me very much when I lost my husband was me getting a big stuff Bear. I know I keep saying this but it does help. And something to hug. And you deserve all the hugs you can get. When I was reading I say not only strength but a lot of bravery. You said that you were going to get some books. What did you get? We have a list of books that people have read, maybe that will help you choosing a book. Remember all you have to do is take a step at a time. Everyone here at the sight do that Just a step at a time. Here is a hug from BoneSmart. :console2: I hope you can hold on to it all night and know we love you. Take care :friends: :puppysmooze: :flwrysmile: Tashia
 
I too hear your strength in your post. I am so happy you got more pain meds. I just want to hug you so tight. This surgery is hard enough on its own, and then for you to have such a crappy doc. Ugh! I hope you are able to find a different ortho doc and he can get you back on to the road of recovery. Giant and gentle hugs!
 
Good Morning, How did your night go. Are you sleeping well? Today is going to be a big day for me. I need a root Canal. :shocked: Wish me luck. Please keep us posted on how you are doing. Please take care. Tashia :friends: :console2: :flwrysmile:
 
Tashia. Good luck! I have a terrible fear of dentists and had my first root canal about 4 months ago. I was petrified and it was truly no different than getting a tooth filled. I was shocked. They numb you the same way, just takes a bit longer. I did not even need tylenol afterwards. I know everyone is different but it was not at all what I expected. Again, good luck.
I did not have a good night. My knee has gotten pretty swollen and I am trying everything. It won't budge. First time in a while I had to take pain meds in the middle of the night. Hope tonight is better. Let us know how "you" are doing.
I went and picked up my meds, yep, only a 4 day supply and another $40 co-pay. They won't budge on that. Well, here is hoping I never have to talk to the again.
 
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