Hi Dave,
I have been on so many sites since my diagnosis in March. Today I looked at a bunch and I did find one saying that yes it can travel to other locations. Great !!
I had severe right knee pain prior to my RTHR and I worried about that and I was told the pain was because of my hip. It cleared up completely after the surgery and didn't bother me again. Then I had a slip and fall at my 4 week mark and it's been swollen since and sore. When I saw my OS on 6/2 I told him about it and he did xray which was negative for any fracture but like he said,it doesn't show anything underneath.
So needless to say, 2 days ago I went ahead and called my GP and explained and he said lets get MRI so when I go for my follow up again this Thursday we'll have results. So now these were the results as I had posted. It sounds like it's a good chance that it is AVN but like the radiologist said briefly, it could be secondary to the other disease. When I googled the other, well not a good thing at all either. Bascially surgery only option and then complete stabilization of the knee and PT. I just can't win !!!
Other than that, my new right hip feels pretty good, but now I'm slowing down because of the knee pain. UGH.
I will make sure to let everyone know when I do see my OS on Thursday what his diagnosis is about the knee.
Like you said, I never even knew or had ever heard about this AVN until my back didn't get better and they finally figured out it was my hip by doing an MRI and then it was a shock factor. My poor GP is the one who has had the MRI's done for me and has been the one to call me each time with the news. He knows I'm at the end of my rope with it all.
We are both a like with where we are at it sounds. My pain too was from groin awful pain all the way down to the knee. Really settled into the top of my knee with my right hip. Guess we'll both be looking at our left hips being done before long.
Best of luck to you as well.