Hi Gingerbread!
I've read through your journey and I am sorry that it has been rough so far.
I m part of the OIDC and the founding member of the "Bonehead Club" along with
@Ghostpipe . My journey has been one of "what not to do during recovery".
I have recently found out that the pain I had before surgery was very excruciating. As a "Bonehead", I was in pain for so long that I just learned to live with it. On the rare occasion I would take some Naproxin before bed. I'd never been on pain killers for any length of time because my spouse always had them around for her surgeries (many) and she rarely took them despite her pain which I always assumed was worse than mine. Turns out I was probably wrong and I didn't find that out until recently.
So when it came to my surgery, I took a "full steam ahead" approach. I was completely off the oxy within 5 days of surgery and completely off of the Tramadol as a regimen around 7 days. I still take one now and again if I over did it that day before bed although it's been awhile, a month or more.
I also went back to work week 2. I also work from home but I have been doing that for a dozen years or so anyway. So my attitude was that I could do it as long as I wasn't doped up. I lasted 4 hours the first day but silly me I tried to sit at a desk in week 2! I then modified my work area so that I could sit with my legs raised in the recliner. I worked roughly 6-8 hours a day, early on I would fall asleep around 2-4 so my team knew if I didn't respond then why. I have a pretty forgiving employer who figured part of my time was better than none of my time.
I also didn't abide by that whole "20 minutes an hour" with the ice. I pretty much had those ice machines running non-stop for the first month. Whenever my legs were up, the ice was on. I also didn't sleep hardly at all the first 4-6 weeks either and to me, that was the worst part.
For me personally, I looked for pain that wasn't right. With the help of
@BoneSmart I was able to cobble together what pains weren't right and what pains were to be expected. I compartmentalized my pain and I "powered" through it. Looking back, I wonder if I would be where I am at if I hadn't. The reality is I will never know as our journey's have so many similarities but also so many differences.
Now being over 6 months out, I am still not 100% but I am 1000% better than I was before surgery. I knew by week 4 I think that I did the right thing. The pain I went through was nothing compared to the pain I'd had before surgery. My goal is to be able to work kneeling. I do a lot of DIY stuff and I would hate to put a hardwood floor or tile floor in not being able to kneel for long periods.
All that being said, the biggest surprise to me was the emotional side. I wasn't prepared for the highs and lows. And I didn't have anywhere near the incoming medical challenges you have had. Thankfully there are many people here who have "been there done that" and that's why we are here.
As far as the lipademia, I have had two family members who have had this. One is still with us although they don't directly treat it and in fact ignore it so I fear they will be gone soon. While I cannot speak to that personally, I can speak to swelling and it's effect on recovery.
My surgeon told me to wear calf high compression socks once the full leg stockings came off. They didn't tell me for how long, just to wear them. So I had it in my head I would get to 4-5 months and stop wearing them. So I have waffled back and forth over the past few months wearing them, not wearing them, etc. Long story short, I just received 5 pairs the other day as I had worn out my original 3. I find them to be really beneficial in keeping the swelling that comes with this surgery at bay and allow my knees to work all day without much bother. The problem of course is that I get lazy and don't put them on and at the end of the day all sore and stiff I beat myself up for being a Bonehead =).
Whether or not I have to wear them the rest of my life I don't care. I don't care what I look like and if I can embarrass my wife in public all the better. So if you see a guy wearing shorts with blaze orange or electric green socks with sandals or Dudes, you'll know who I am

! Seriously I think my wife has come to love that part of my personality because she doesn't say a word anymore.
You are definitely in the right place, chin up ~ It's worth it!