@kayow11 - Although you and I are likely headed for revisions for different reasons, I am going through the same process of looking for a second opinion (and maybe a third) and seriously examining whether I want my original surgeon to do a revision. I'm seeing her for my one-year review on Jan. 24. I expect I will sign up for revision surgery after that, quite possibly with a different surgeon.
You asked why I am facing a revision. I'm still in a lot of pain nearly 10 months after my LTKR. I have not had one day without pain since my surgery. For 10 weeks post-op, I went to physio at the rehab facility in the specialty hospital (they only do joints) where I had my operation on Jan. 3. This was after the surgeon told me I had "a challenging knee to operate on." Apparently my femur and tibia were different sizes. She said I was "bigger on top," and she chose the larger of two tibial trays because a smaller one would supposedly pose a risk of fracture. I thought she knew what she was doing. But I had a very difficult time trying to recover. Twice a week for two hours I went to rehab and although I told the physiotherapists that I had extreme pain on the lateral side of my knee, the told me to "ignore the pain" and pushed my leg repeatedly under the tabke to the point of agony. (Some other patients actually screamed or cried when this was done to them!) and they said if I didn't cooperate, they'd call my surgeon! They also told me that more, intensive exercise - including at home - would help my pain. It didn't. It hurt so much. I ended going to physio for several weeks longer than most other patients, before I "graduated." (They actually gave out certificates!) The sole goal in that rehab was to crank everyone's knees under the table to at least 120 degrees flexion. I never got past 110, and that's when they finally released me.
I went to follow-up appointments with my surgeon at six, 12 and 18 weeks and was told I was making progress, although I was "a little behind," and that I could still "expect pain at five months." The surgeon said my expectations were too high...and to exercise more. I tried to stay optimistic. However, I suspected things were really amiss when nearly everyone else was more recovered by about five months. Going for walks and stationary cycling hurt so much that I had to stop. When I went to my GP for my annual checkup in July, she confirmed that I was not having a normal recovery and advised me to keep going to physio and "working through it" while my muscles, tendons, ligaments, etc. got used to my new knee. (My leg was also straightened during surgery.) But as time went on, the swelling went down and my pain was concentrated in my joint on my lateral side. I described it as feeling as if an alien is living in my knee. I cannot walk more than a few yards, bicycle, get up from sitting or go down stairs without extreme pain. The only time it doesn't hurt is when I'm sleeping. I haven't had a pain-free day since Jan. 2. This is so much worse than my pre-op arthritic pain. And I was more mobile then, using a cane. Tylenol doesn't work, nor does Voltaren. Icing helps a bit, as does wearing a neoprene brace when I go out. I still use a cane, except for when I'm home in my condo, which is most of the time now. I can't do the things I want to do, like travel. It wasn't supposed to be like this. I really regret having knee surgery and already wasting a year of my life at my advancing age. I fear I will be out of commission for at least a couple more, if my knees become functional again at all.
Long story short: after a long look at my surgeon's clinical notes and my post-op X-rays, combined with what she told me post-op, I searched BoneSmart and other websites and found excellent information on tibial tray overhand impinging on soft tissue, especially the IT band. There's an excellent explanation by
@Josephine here and I also read some academic medical papers. All say a revision (seems drastic!) is the only solution for eliminating this pain, but there's no guarantee, as with most things medical. Armed with this information, I made an appointment with my surgeon for Oct. 4 and insisted on new X-rays to make sure my new knee wasn't failing. After examining me and looking at my fresh X-rays, the surgeon and her resident actually agreed with what I suspected: there's tibial tray overhang (which I can clearly see) that's likely impinging on my soft tissue. The doc said that out of 10 identical X-rays, only one patient would have pain. Lucky me! She said to continue physio and exercising for the months until my one-year review. She said, "If it gets better, fine. If it gets worse, we'll have to discuss a revision." That was four weeks ago and my pain is no better. In fact, it feels a bit worse. It's definitely chronic and debilitating. I'm disappointed, frustrated, angry and depressed. I had a difficult time for months after this surgery and I'm terrified to go through another one (or two!)
I've been given the name of the surgeon who's supposed to be "the best knee guy in the city." He's at another hospital and is also a top revision specialist. I am about to call his office so I can get a second opinion - and maybe even a revision, with him. (I also badly need my painful, arthritic right knee replaced.)
I apologize for this long post! I sincerely did not mean to hijack your recovery thread, but you asked why I needed a revision and I got excessively wordy. (I'm a writer for a living and got carried away!) I promise I'll keep any future posts very short.
But I wanted you to know that there are others of us whose TKRs did not go as planned, unfortunately. I can't believe that so many of them go so smoothly that most patients have great outcomes and pain-free, fully functional new knees just months after these operations. Poor us!!
All best wishes to you!!
Judy