Hello to my BoneSmartopian buddies, and my sincere apologies for that ghastly, horrible way I exited. You deserved so much better. Please forgive me, if you can. I had severe pain for two solid weeks after that PT session. I was not fit company around here, though I know PT can be helpful for some people. I didn't want to rain on anyone's parade. I've also hesitated to report how I'm doing because I didn't want to discourage anyone. I know everyone loves to read the success stories, but I can't post any. And I've felt guilty because I know there are others who are much worse off than I am. So I haven't felt that I fit in anywhere. But I also think it's just possible that having all stories, even the murkey in-betweens, of a THR experience might just might help someone down the road. So here I am, once again.
My problem, at 4.5 months after surgery, is that I cannot figure out even remotely what causes what pain. And what to do or not do about it. I haven't seen a simple "I overdid it, so that's why A, B, or C or all 3 hurt."
I can do more things than I could do a few months before surgery, and I see some recovery from the surgery. But my life has not changed a whit since this time a year ago. It really hasn't. I still have erratic pain daily, cannot figure out why, and thus can't be reliable as a friend, helper, or whatever. If I rest on the weekend, that's too much--and I'm very stiff and very sore. If I do anything exercise wise, that's too much, too. I went walking in the park, thinking the gravel and dirt would feel better than concrete. Wrong. My knee started hurting so much, I was limping badly and had to stop. That's no different from this time last year. Except, the operated hip is mostly pretty good. The lower back pain has come back daily, screaming loudly on weekends. I walk through the pain anyway, because I have to do SOMETHING. I can't just lie around all day. I also have noticed that sitting for any length of time, even as little as 10 minutes, and I am stiff as concrete on both sides. Also, a new thing: the unoperated hip is now throbbing daily. I guess it's now gone bad? I don't know.
I know we're supposed to "think only of the positive and all the things we CAN do," but I never end up doing things the way we're supposed to. I don't mean to rebel; I just don't see things the same way, I guess. ANyway, I find it more helpful to me to think about the things I can't do, so that I don't become complacent. So I will remember I need to work on things and not just rest on my limited laurels.
But ... I will say that I can get to work and work all day and function. Until this week I was sailing around the carpeted hallways very nicely, and felt good on my lunch break. By day's end, I walk a few blocks to the bus, ride for half an hour, and get off early to walk anywhere from half a mile to one mile. The one mile kills me. I am physically too spent to do that. I come home and at best, can sit in a chair without pain. Or, like tonight, am in pain no matter if I sit, lie down, or walk around.
I just don't see much progress at all. And I don't have time with work to run around to various specialists trying to get assessments and try different things to see what might help. I also have to save my sick days as I have very few to last me till next summer.
Yet ... I know doing nothing to help with all the various erratic pains is not the answer either. I know that. And I hate being passive. But I have little faith that trying X, Y, and Z therapies will necesarrily help. And as I've learned the hard way, some things can set you back, way back.
More that I can do: I've been taking the subway daily in the mornings for about a month, I think. I consider doing the stairs, regular style, a form of PT. Occasionally I also take a long staircase once a day, either at work or at lunch. Just to do it. This week, with my non-op hip suddenly flaring up, stairs hurt where they didn't last week.
I'm not sorry I had the surgery. The hip was fixed. But the lifestyle filled with erratic pain here yonder and there is the same as it was been long before surgery. I never know when I can participate in anything. I hate being like this. I am trying to perhaps just work on acceptance of "a new normal" and recognize that that might not mean bungee jumping, line dancing, etc., etc., etc. But just having at least one hip that works. But it's hard. I was so hoping to have a life that would enable me to start being more physical, and be able to do a little more wthout pain jumping out from the corners and spooking me.
I was NOT expecting miracles and the life of a 40 or even 50 year old. But I was expecting a more or less straighter trajectory. I thought doing more activities, even slowly, would mean over time I am less sore and stiff and in pain. That has not been the case. Yet ... I feel as if I am able, strangely, to walk quite sturdily and swift enough and strongly. Till day's end, or till yet another pain elsewhere rears its ugly head.
Recovering from this surgery is NOT, in my experience, the same thing as getting in shape or training for something. It just isn't. Working "harder" or "willing yourself" to "work through the pain" or thinking positive thoughts or whatever does NOT necessarily yield the right results. So I don't respond well to the rah-rah PT vibe that I get when I've talked to PTs.
Having said that, I did have a positive experience with the hospital PT and the one who did at-home visits.
I so wish that OSs would have a PT on their staff, whom they would supervise, along with their PA, secretary, and various cast of characters, and the patient could work out with that specific PT. And I also wish the OS would get X-rays of the knees and back routinely, so we could cut out all the guessing and speculation as to why everything hurts. To just go to some random PT and hope for the best just seems very dicey to me.
So this is where I am these days. It ain't pretty. So now you know why I'm reluctant to post much.
I am eager to read up on what all of you are doing, and how you are doing. My fingers are crossed you are doing much better than I am. I so wish I will be able to somehow say the right thing to help you when you need it. But as you can see, I don't have any answers about this recovery. It just boggles my mind that somethng that is supposed so damned successful can be so enigmatic.
I don't know what this was ... not really a "progress report." Just a "state of the hip" report.
I appreciate more than I'll ever be able to say how much your support meant to me while I was here regularly. I hope you understand why I haven't felt up to snuff about posting. I truly wanted to sometimes, but ...
Take care.
Your partner in crime,
Peaches