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[THR] Severe pain after 15 months<

Discussion in 'Hip Replacement Recovery Area' started by Dickie 1, Jul 24, 2017.

  1. Dickie 1

    Dickie 1 member
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    After Easter I returned to the GP, unable to get in contact with the closer pain clinic. I requested another referral to a dedicated pain clinic in Melbourne, which is 1.5 hours drive away. I phoned this place to make an appointment, but was told that the GP had to send in the referral. I contacted the GP's rooms, they said that some specialists request this now. I waited another week, heard nothing. On the website of this pain clinic, it said that I could email the referral in, so sick of waiting I did. I received a email reply the next day saying that someone would phone me in the next 24-48 hours and they did. However, the earliest appoint that I can get is 12th June, 4 weeks away. I am also on their cancellation list for an earlier appointment if one become available.
    So in the meantime, I'm miserable, in constant pain and just hanging about much the same. Still attending the pool x 2 a week. This pain clinic is a dedicated one, open 5 days a week, full time staff. So I am hopeful that they can assist me. Part of it is definitely nerve damage of some sort.
     
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  2. Mojo333

    Mojo333 FORUM ADVISOR Forum Advisor

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    :fingersx: for a cancellation! So sorry for you being so miserable and I do hope they can help you get some relief!:console2:
     
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  3. Krista

    Krista post-grad

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    It's terrible that you have such difficulty getting appointments to treat pain. I cannot understand the "system" there at all. When you finally get in, I hope they can figure out what's going on and give you effective treatment.
     
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  4. Layla

    Layla FORUM ADVISOR Forum Advisor

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    I'm sorry this drags on for you, Dickie. So disheartening.
    I hope the time flies until your June appt. and that swimming brings you some relief in the interim.
    Keep us in the loop. We care.
    Hugs :console2:
    @Dickie1
     
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  5. Dickie 1

    Dickie 1 member
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    Krista, our system has 2 levels, public and private. Either way you need a referral from a GP before seeing any Specialist. This referral lasts 12 months. Public is usually free, but the waiting lists can be long, private, means that you are charged well above the Medicare rebate, but quicker to be seen. I chose to go private, which means a $360 fee on the day, $130 rebate form the Medicare (Government payment). When I first rang to ask about the wait I was told it would be a about 1-2 week wait. Unfortunately, it is a 4 week wait. Nothing I can do, just suck it up and hope a cancellation comes up before then. My pain has been manageable in recent weeks, but I have been travelling along without too much extra to do. I'm in pain, but mostly I just try to block it out. it is down to 3 weeks now.
    I continue on my crutch, attending the heated pool. I manage most activities of daily living okay, just slowly. Krista, I hope you see some improvement soon, as well.
     
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  6. Krista

    Krista post-grad

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    I know you are hanging in there, @Dickie 1. It's too bad your system can make you have to wait so long - 3 weeks and counting for you. I am not expecting any more improvement after my THR, gluteal tendon repairs and back surgery, but I have gotten as good as I am going to get! At 71, I am glad to be as mobile as I am. I have lots of osteoarthritis and various body aches and pains, but that just comes with the territory for me and my body, and I must accept it.
     
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  7. Dickie 1

    Dickie 1 member
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    I thought I would update anyone that was interested. I attended the privately run pain clinic yesterday and came away with much hope.
    Firstly, the Dr was very professional, no judgement, I felt listened to and heard. Prior to my appointment I had to complete a form asking about when did the pain start? They allowed 4 lines, but I wrote 3 pages, as I needed to tell the full story.
    After a chat, the Dr tested me for the abnormal sensation, right down the left thigh from the most recent THR. I have a strip of very abnormal sensation, when the surgery was done, the OS and GP have said, it was just part of the surgery, but for me it keeps me awake some nights and is not returning to normal. She tested both thighs, found the revision side, was only mildly bothering me, but this strip on the left side the sensation is now hyper-sensitive and the Dr agreed with me. I also explained that although the GP has been supportive, now she is dismissive of my pain and it hasn't been well controlled in recent times.

    The pain specialist also felt that there maybe Tendonitis (psoas) present, like it has been discussed in recent times on this thread. I said I have difficulty with straight leg raising, going up stairs/steps, also dressing when putting on pants or socks and again the OS was dismissive of this at my last appointment in April. So she is sending me to have an U/S of both hips to either confirm or dismiss this problem.
    I have had my drugs changed. I have been prescribed Lignocaine 5% patches for the hyper-sensitive strip along my left thigh. She also changed me from Lyrica (pregabalin 125mg) to Neurontin (Gabapentin) starting at 100mg twice a day, in increasing doses. She wants me to try a new dosage level for a few days before increasing it to the next level. She has introduced a drug called Norflex which is a skeletal muscle relaxant to aid the night aching and provide a little pain relief. She will follow up in the next couple of weeks, after the U/S.
    She explained that if this particular regime doesn't help, we step up to level 2 of drugs. Today, has been my first day and it doesn't seem to be helping any yet, but I have to give it time.
    What I liked about this visit, was I was taken seriously and listened to. I was too exhausted to post last night, as it was an long day.

    Last week, I had my elderly Mother who turns 91 in a couple of weeks and has advanced Alzheimer's Disease and resides in aged care in a single room, was hospitalised with influenza A. She has been vaccinated about a month before at an appropriate time. We thought that we were going to lose her, she was very ill. But she managed to bounce back and is back in care.
     
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  8. Mojo333

    Mojo333 FORUM ADVISOR Forum Advisor

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    :wave: @Dickie 1
    I'm glad you have a plan and hope that the remedies bring you some relief until you have further tests.
    I hate that you had the added stress of your poor mom falling ill. So glad she had turned a corner and I will be praying for her and for you.:praying:
     
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  9. SaraK

    SaraK post-grad

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    Isn't it wonderful to find someone that listens and is looking for answers and solutions! It also sounds like this new doctor understands there could be multiple issues at play and doesn't dismiss this just because the symptoms don't fit into a single check the box format.

    I'll be keeping my fingers crossed. Just remember some of this may take time for effect. Your doctor is also telling you this is the next line of defense, not the last!

    Good luck!
     
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  10. Layla

    Layla FORUM ADVISOR Forum Advisor

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    Thanks for updating, Dickie.
    Luckily you found someone willing to listen and not dismissive in regard to your symptoms.
    I hope you're able to find some relief as you await further tests. Please stay in touch.
    @Dickie 1
     
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  11. Dickie 1

    Dickie 1 member
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    Thank you for the replies. I have booked and U/S for this afternoon and made a booking back at the pain Clinic on the 26th June, was the earliest I could be seen. I am okay with that.
    Yes, it was good to find a Specialist that listens and acts upon what I am saying. It may take a few weeks to sort out, but at least I feel I am moving forward. Thank you, again.
     
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  12. Layla

    Layla FORUM ADVISOR Forum Advisor

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    Best wishes for your appt on the 26th. Please let us know how it goes.
    I hope you have a peaceful weekend.
    @Dickie1
     

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