TKR Oh Baby feel the (k)need in me - the sequel ..

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Hi everyone @DogLoverx3 @Ellejay @Jozilla @TexasTee @zlady @cafecortado @hopefaith - thank you all so much for your very kind words and support yesterday.
As you rightly say @cafecortado, Mums feel the pain worst of all. I would have back to back Knee replacements tomorrow if it would repair her hearing.
We were all a bit shocked, and when my daughter arrived back from the hospital yesterday she looked as though she had been kicked hard in the stomach and had all the stuffing knocked out of her. Still, we chatted about it and she went home to change and then travelled straight up to London for a round of business meetings! Her biggest fear currently, is that the hearing she has will degenerate quickly. If it is merely damage that will remain in its damaged state, she is fine with it. She says that what you don't have you don't miss, and as she has managed this long with no problem she can continue doing so. She is also grateful that it explains a lot of things - her extreme tiredness when she is working flat out - and the fact that when she is extremely busy, and then relaxing, she sometimes appears to not listen - her brain is actually recovering then from the strain of lip reading and 'tuning in' so she effectively 'switches off'.
Any form of hearing aid she needs will be dictated by her particular problem - but we have already looked at options: a disposable one that is left in for 4 months and then replaced, and one of the invisible deep ear canal options that are completely invisible. You are right @TexasTee, advances in this area are spectacular. Plus as you say, she is dynamic and achieved so much already, goodness knows what will happen when she is firing on all cylinders!
As soon as our friends get back with recommendations of top specialists, she can have the MRI, be seen and become better informed.
It saddens me @Ellejay that if she couldn't afford to pay for these state of the art unobtrusive devices - the NHS would only provide external hearing aids. She is also mightily miffed that she will now have to inform any prospective employer about her 'disability' - whereas no one asks if someone has poor eyesight and wears contacts. Typically, my husband was saying how these hearing aids are undetectable and come in a variety of flesh tones - but daughter said 'If I have to have the things I will have them in a wicked colour!

Poor kid - just to make the day 100 times worse, she got home to find Gilbert the rat in a very poor way, lying in a pool of bloody urine. I knew she'd need some support after everything that had happened, so I went and picked them both up for the trip to the Emergency vets. They have given him pain killer and antibiotic shots but he doesn't seem to be rallying very quickly. Back to her own vets tonight after work - I am taking him and meeting her there, but the prognosis doesn't look good at all. He is very old and I don't think he has much fight left. As if she hasn't got enough to deal with .....

No matter how strong and grown up they are - you just want to absorb all their pain and worry yourself.

Will keep you posted, but I think it will be a rather sad few days.

Take care everyone - and thanks again for the support, it means so much to have such caring friends.

XXX
 
Your poor daughter - what a horrible week!! Sending good thoughts from across the pond.
 
@dogwheels hope you get a diagnosis after the MRI. I had a stapedectomy when I was about 32 because of otosclerosis, and now where hearing aid. I feel her pain.
good luck with the MRI.
 
Oh, poor Gilbert, do update us on how he is. As you say, she just doesn't need this now, what a horrid week for her. Lots of love and hugs xxxxxxxxxx
 
So sorry to hear about your daughter's hearing , and about Gilbert. What a day for your daughter, poor girl!
 
:sad: I'm so sorry Chris. When it rains, it pours, huh? My thoughts are still with you and your daughter. And now with Gilbert as well :sad:
 
Hi everyone - thank you yet again for your kind wishes.
Gilbert was not great but took him to vets and thought that would be it, I was amazed that they gave him some IV fluids and painkiller and antibiotics. My daughter arrived and spoke to the vet who she knows quite well now. The vet said that the next 48 hrs were crucial for him and all being well he would start to eat, drink and be more alert. Sadly he took a turn for the worse this evening, his little lungs filled and he was having trouble breathing and so daughter was back to the emergency vets and they confirmed he was too poorly to save, so he was put to sleep. We are all so very, very sad.
My poor daughter is in pieces, after such a lovely birthday weekend she has had the worst 48 hours ever. Thankfully the useless BF is there, but evidently blubbing and not being a lot of help. I despair.

I feel sad and drained myself and so am off to bed now.
Take care all and will chat tomorrow

RIP Gilbert
XX
 
Oh Chris, I've just been catching up, I'm so sorry. Not what your daughter needed, she is indeed having a terrible week. I hope you are ok and manage to get some rest. Take care xx


Bernie UK
RTKR 22nd January 2014
LTKR 2nd April 2014
 
Poor Gilbert! I'm so sorry. :console2:

Our son's friend had a rat (Rattie) who used to arrive to visit, hidden up the friend's sleeve. Rattie would sit quietly and watch TV with the boys. We were all sad when he passed away.
 
Hi @dogwheels. Your poor daughter. I know exactly how you feel about Gilbert. We lost my daughters dog Stella so quickly this past Mother's Day. My daughter is still so devastated. We had her cremated and they put her in a lovely wood container you can put her picture in. She cannot bring herself to look at it. I have to say I love your daughters spirit with the hearing aide color. Good for her! Please take care! Xoxo JoAnne
 
oh no...I'm so sorry for her - I don't care what the type, when you give your heart to a beloved pet, it's devastating when they pass. RIP Gilbert.
 
The pain is always worse when it is someone you love that is grieving, I totally understand how you must be feeling Chris, I've had to comfort my daughter when her dog had to be put to sleep, and since then two rabbits. There is nothing you can do to make the world a happier place for them, and that is all you want to do as a mother. Just be there with lots of hugs, kind words and food to tempt, as she won't feel like eating. I am so sorry for you all, I'm writing this with tears running down my cheeks as it just brings it all back to me. Just support each other the best way you can and get through these next few days. Xxxx
 
Hi all - @elljay@DogLoverx3 @Celle @Jozilla @cafecortado @hopefaith @TexasTee - once again thanks for all the love and support, you guys are the best!
Yes - quite the worst 48 hours we have had in a long time, but the only positive (for me) is that my daughter isn't worrying about Gilbert anymore. This would have happened pretty soon anyway, IMHO, and in some warped way it was better that it has happened now, tragic as it was - so now she only has to focus on her own problems.
When my GP friend heard what was going on, she said although she hoped Gilbert would pull through, if he didn't, a big old person and cry may be really good for my daughter right now, just to release pent up emotion and stress. I think she may well be right. Daughter will drag herself through work today and then she has the weekend to just let go for a bit.
As for the hearing - have just this minute received recommendations. Our neurosurgeon friend says that knowing our daughter as well as he does, he would be very surprised if the hearing scores quoted were accurate. He thinks with that level of loss it would be much more apparent. He also said that those tests need to be done in a specialist environment and by an expert, not the local NHS hospital audiologist. He questionned how frequently the machinery was calibrated! He asked a whole load of questions and told us of all the info she will need to provide at her consultation. As it is bilateral, it is unlikely to be a kink or lump etc on the nerve - and having ruled out long term anti-malarials which are a common cause ( thankfully we never took them in Jakarta) it is his best guess (although not his area of expertise) that it has been caused by a virus. Scary stuff!

Well hope you are all OK and have good days. Will talk again later.

XX
 
So sorry about Gilbert. Sounds like we are all much the same with our daughters. Yes, their pain is our pain. And hurts us more than our own pain ever could. Wishing you a more peaceful weekend. Love and prayers to all! Xoxo
 
Hi @dogwheels I've just been catching up on your thread, I hope that you are well? I am in so sorry about your daughters hearing. She has coped for a very long time with this. I so understand where she is coming from with this first hand.

I have a deformed bone in my ear which means sounds do not reverberate properly. I too have had this since birth and like your daughter coped and used different strategies. However, the information about the deformed bone has only recently come to light. In the 1960's they used to fit tubes onto the eardrum. I had these three times and yes it helped a bit and like grommets they sometimes came out by themselves or worst of all a doctor would put a large long metal like crochet hook and remove it. The problem was with this procedure was that the operation left scarring in the eardrum which has actually made my hearing worse. I did not find any of this out until about four or five years ago when my hearing had deteriorated so badly I could not hold a proper conversation, I kept mishearing my husband and having full blown rows on him over stuff I'd not heard right! Oh Chris it was so awful. Anyway I went for a hearing test which showed that my right ear was bad but my left one is where the bone is deformed. When they told me this I was flabbergasted! They were amazed that neither me or my mom had been told this in the1960's. The consultant I saw was mortified but explained to his trainee in the room that the procedure I went through at that time was considered pioneering. He explained that the wires if the tubes had left extensive scarring in the eardrum,much obviously affected my hearing. Lo and behold, I had to have a hearing aid. No one knew at work for ages as it was completely hidden under my hair anyway. When I disclosed that I was wearing one they laughed at me as they thought I was kidding. Oh their faces when I actually showed them. Please tell your daughter that it will open up a new world of communication for her and it's a lovely feeling at first but it will also drive her mad at times and that's when my aid comes out and I go back into peace mode!
I hope that this helps you x

Oh poor Gilbert, I am so sorry he was such a sweet little character. At least he had a lovely caring owner and her mom who adored and loved him. He had a lovely life with her and you x xx x x x

I love the pic of the cat...he's gorgeous x x x


Love Ann xxx
 
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@dogwheels I'm also just catching up on reading threads.
I am so sorry about Gilbert. He was quite a character and a wonderful pet.
I think your GP is very wise :) and you are blessed to have doctor friends for advice and direction. We never new that our daughter had a vision problem until she was in high school and I'll never forget when she walked out of the opthamologists office with contacts in and said "Wow --that's how the mountains look". I thought "How did I miss it!" It explained why she was not interesting in reading and math issues. She cannot tolerate contacts and looks fabulous in glasses.
I'm at an age when hearing problems are "normal" but it sure doesn't make it any easier to deal with. I developed tinnitus about 5 years ago --probably medicine related. I never ever have quiet. :sigh: Probably explains why I enjoy being by the ocean as it neutralizes the sounds. I know your daughter will have the best of care.
 
@dogwheels I have just caught up with your thread. I am so sorry with all you are going through. I so get that you would take all of her pain if you could. Mothers. It can hurt to the depths. I know. As I read through your posts it sounds a little more hopeful than the first report. I pray for that. I am so sorry about Gilbert. We truly get attached to our furry friends. I have cried for days in the past after losing one. Chris be gentle with yourself through this. You are a wonderful Mum. :SUNsmile:
~hopefaith
 
Just found your thread Chris and am so glad you have been strong enough through your recovery to help support your daughter through her current trials.

I too, know the frustrations of different diagnoses of hearing issues. My story was I had scarlet fever in 2nd grade. Apparently I went completely deaf, until my parents realized I was "peace out" all the time. I vaguely remember doctor visits and at some point my hearing returned. The long term effect is if there are multiple noise sources, I cannot distinguish sounds, thus, like Ann, I don't always hear what my husband actually said and we get into tiffs about me making things up! No one seems to identify the problem and while I understand they now have directional hearing aids, they've not been prescribed. sigh. Then we add in that I am getting to be of a certain age....:heehee:
 
Hi @NightQuilter it's lovely to meet you. How nice to have another person who understands these hearing issues!i get so frustrated sometimes even now. I cannot wear the hearing aids all the while because it makes the environment unbearably noisy! Xxxxx we cannot win lol x x
 
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