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No surgery for me

Discussion in 'Hip Replacement Pre-Op Area' started by Gidget, Jan 25, 2018.

  1. anny

    anny graduate

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    yes no matter how good the organisation is, it only takes one disinterested (being polite here!) staff member to leave you with unpleasant memories. Are you going to put in a complaint? It's really not good enough to ignore you like that!

    As for the prices for anyone who is not bog-standard, well don't get me started on that! Apart from services and goods my daughter needs (such as a banana board....that bright yellow bit of plastic to help with transfers.....$256 if we buy it!! or months of emails and red tape if we try to get it thro 'the system'. I am coeliac, so have to be gluten-free.....just got back from another shopping trip when I've spent the same on 1 g/f loaf as I did for 3 loaves for my husband. Now see what you've done, got me started :rotfl:. I work for the Citizen's Advice Bureau and often get people at the end of their tether because they can't work due to disability, so claim disability benefit, for which they have to produce a doctor's certificate ($70) every year to prove they are still disabled.....if you're an amputee you're really not likely to grow back that missing limb!! As you say, it's the vulnerable who suffer, they are the ones least likely to be able to stick up for themselves.

    Off my high horse now, hope your nursing staff are now much more helpful and that you won't be there much longer :yes:
     
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  2. Gidget

    Gidget member
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    It’s a bit different here I think. I don’t have to renew my certificate for disability benefit. I have been deemed totally and permanently disabled and can never work again. My Docs actually wrote that I was terminal. So far proved them wrong on that one . Maybe other people have to reapply every year. I know there was a case here where someone had their leg bitten off in a shark attack and he was refused disability pension but I think it was because he was young and could be retrained into a suitable job. Personally I think it’s much better for your self esteem and mental health if you can earn an income. I know I appealed the “not permitted to work” ruling but it was upheld. I wanted to keep working for the sake of my personal self worth. I’m not even permitted to do volunteer work. It’s awful to go from being a productive, contributing member of society to feeling like a useless burden. It took a long time for me to come to terms with it.

    My nurses today have been awesome. Never judge a book by its cover. My main nurse today looks like a hippy (no pun intended), speaks non grammatical ocker English and is covered in tattoos...and she is great. Caring, compassionate, hard working and efficient. I’ve had a lovely foot massage (to reduce swelling) from the PT and a volunteer popped in to see if I want anything done. I don’t feel so abandoned today. Even my Doc had a chat about his job and his ambitions and the sacrifices his family makes to support him. That personal touch is nice.

    I’d almost kill for a coffee frappe about now.
     
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  3. anny

    anny graduate

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    Oh so glad today is an improvement......so much better when people relax their professional mask and treat you like a human being. Hope someone sorts out that coffee for you.....Australia looks to be on the warm side at the moment....we had a long heatwave, then it got cooler and pretty wet, today is pretty warm again and muggy....never satisfied really :heehee:
     
  4. Gidget

    Gidget member
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    Yes, I heard cyclone Gita got ya. My Dad told me it was 37 on the back verandah today. They keep it cold in the hospital and I’ve been wrapping up in blankets and asking for warm packs for my ankle. I was icing but now the PT says warm and I’m happy about that. Oh, those massages to get the swelling down....ecstasy.

    It’s full moon here and I when I pointed it out to the nurses they said it explained why a lot of the patients are not quite right tonight.

    Counting down the days. If all keeps going well I should be able to go home early to mid next week and see my little dog as well as my two old cats. Miss them so much.
     
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  5. Mojo333

    Mojo333 FORUM ADVISOR Forum Advisor

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    I hope everyone is respectful and sweet to you while you wait to go home.
    I know you have some real contributions for this world...
    Keep on keeping on, Gidget
     
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  6. anny

    anny graduate

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    massages eh....you'll be getting used to those and wanting home visits :heehee:. Know what you mean about the animals....my daughter has just spent 2 weeks in a motel while her place was refloored (flooded), and she was most excited about getting back to her little dog (I foster him when she's unwell etc) and her 2 cats. Hope discharge comes very soon, and that your temps are down a bit....37? sheesh! think I'd melt
     
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  7. Gidget

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    Don’t get your hopes up...don’t get your hopes up....don’t get your hopes up.

    My mantra.

    It’s hard to keep telling myself to prepare for bad news.

    The physician mentioned hip surgery again...I’ve been told no but he’s made me think a second opinion is called for....careful...might get disappointed again.

    The new Rehab Doc is coming on Monday to reassess my need to stay in the wheelchair....careful...might get disappointed again.

    OT came and did assessment for new wheelchair, am eligible for Government subsidy of $8170.00 towards the cost....careful...might be declined due to disability services changing funding model from State to Federal...then what?

    Might be eligible for funding for pet sitting, walking and grooming...this one I don’t believe...seems an extravagant waste of government funds. However, if it’s offered I’ll certainly take it with no reservations.

    Foot, ankle a lot better. The PT said yesterday he couldnt believe that I say it’s causing very little pain due to the amount of swelling and bruising but it really does feel better than it looks.

    The new increased dose of my bone marrow drug is not causing too many side effects so far....

    My little dog has recovered completely to the point she’s driving my Aunt nuts with her hypermania.

    PT hasn’t been today...I think he’s sick of giving foot massages..weird that...thought he’s enjoy it.

    It looks stormy and overcast outside but I’m told it’s still warm at 30C.

    Didn’t get a frappe yesterday but I got one this morning...yum.
     
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  8. anny

    anny graduate

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    Hi Gidget glad you got your frappe yesterday. As for all the other stuff.....cautiously optimistic :thumb:. I'd say take whatever is on offer, and it sounds as if you're wearing your PT out with all those massages :heehee: No tap dancing yet just cos your foot's not hurting much, lie back and enjoy the warm weather :)sigh: pretty humid here, probably the same for you if it's overcast....hope hospital has good aircon)
     
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  9. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    So glad to read things are looking up for you. And your little furry friend has recovered too!

    Wow - can you please send me some of that warm weather? We are freezing in the UK!
     
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  10. Hippielife

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    Yikes sorry you had to cope with late responses. Been there done that. I totally get it. Being in pain waiting is frustrating. I used to be a non buzzer not bug the nurses but I learned quickly I had to be more assertive . It’s their job and sometimes they are overwhelmed. Not pleasant at all for :flwrysmile:you to cope with one more thing on the list. Anyway now that your liberated from the leash tied to the bed you can get thru today with flying colors. Can you take your tether with you and walk around the ward? Be a good girl and eat all you food and ask for protien shakes. My doctor was adamant that it’s important to eat at least 2200 calories a day to help aide in the healing process.
    Did you have a blood platelet IV or sometimes we are asked to donate our own blood before surgery in case we need it, that helps as my doc looked at me I was a bit pale and after the IV I felt much better. It’s of course major surgery and takes time to get back a bit of energy .

    Wishing you’ll have a Great Day...
     
  11. Gidget

    Gidget member
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    7A84D624-7DED-4A49-95C3-238818994C4F.jpeg I’ve been a bit down since yesterday. My Doc was off sick for two days but was back yesterday (Sunday). I’m going to see the rehab Doc sometime this week and will stay here for intensive rehab and physio, so no discharge in sight. Also need to have some heart investigations...just what I need!

    Then this morning I get told I’m very anaemic and need another blood transfusion, that’s 3 transfusions in a month.mvery disappointing.

    Good news is....a very good friend spoke to the NUM of my ward and I got a visit....from my little dog. Wow, she needs a haircut something awful but it will have to wait until I’m home. I spent about an hour out on the rooftop garden with my friend and my dog and we had a lovely cappuccino together. I loved my visit but it’s left me a bit sad. I’m determined to get out of here soon.
     
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  12. Gidget

    Gidget member
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    Well, it just gets better. Doc’s just been, one of my blood tests for my heart was elevated (double normal) and it looks like I might have some heart failure. More tests booked for Wednesday. He said it would explain my lethargy and more falls. At least he wrote a prescription for wine on my medication chart which I’m going to take full advantage of.
     

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  13. anny

    anny graduate

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    Hi @Gidget ....can tell how much your little one means to you from your beaming smile! She really is a sweetie.....and I was going to say you almost have matching fringes, then I read "she needs a haircut something awful" and thought oops, it might sound rather rude :heehee: actually I always prefer longhaired dogs when they've got a real mop.....my Joey looks like a sheep if I let his coat grow, really cuddley, but it mats badly so I keep it shortish. I'm glad you've got such a good friend looking out for you and bringing her to visit, even if it makes you a bit sad when they go.....it keeps that bond between you. So sorry about your latest possible prognosis....hope the tests show it to be less than your dr thinks. Hope you get some respite from all these tests and transfusions soon, and that tomorrow is a better day :) take care
     
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  14. Gidget

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    Anny, the friend who brought Lily to see me fell in love with her and said she’d love to adopt her. Now I know someone who can take her if I need to go to hospital and my Aunt isn’t available...that’s a relief. She’s a very friendly little dog who thinks that all humans, cats and dogs are her friends...can be a bit of a problem, not everyone likes dogs or wants to give in to her demands to be picked up and cuddled. Better than aggressive, defensive and stand offish though. I’ve encouraged her to be socialised to all circumstances. I want her to be a likeable dog.

    Lily looks better in a puppy cut but luckily her hair doesn’t matt much. Just a daily brush and she’s ok.
     
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  15. Mojo333

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    Oh I love Lily. And you look so glad to see her.
    Just don't know what to say...about all the bad news you keep getting.
    None of us are promised tomorrow, but we all need hope for better days.
    I'm praying for you ...
    Hope you get to go home soon.
     
  16. Hippielife

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    Hi Gidget in Australia,
    How wonderful your friend brought Lilly to visit. It's such an amazing gift and lifts of our spirits . A puppy hug is so important. You sound so strong & positive and that is a great attitude . Sorry about the recient news.
    I had a leak in a small capillary vein in my intestines and lost a lot of blood. After two blood transfusions the internal cam was ordered. The prep is awful that white chalky stuff to clear the area. Then swallow the pill cam and wait for it to go thru the intestins and back out. Doctors finally found the leak and plugged it up.

    It's a bit concerning when you're in between the not knowing why or where that waiting stage . Wishing you lots of puppy hugs !
     

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  17. Gidget

    Gidget member
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    Sometimes it’s hard to remain positive but you don’t always get a choice in life and life isn’t always fair...

    I’ve just had the new rehab Doc come for a second opinion. It wasn’t good. No more walking for me...wheelchair only with stand transfers to bed etc. So he agrees with original rehab Doc. I know my physician is going to be disappointed for me. He’s so nice...bless his cotton socks. Having another blood transfusion as I type but then I should be free as a bird . One good thing is that because I’m not allowed to walk any more I won’t have to stay in hospital for intensive PT. So as soon as my heart tests and meds are sorted out I should be able to go home to my little girl. Then I can organise her hair cut. What do you think of this style?

    DEA3047B-6414-450F-8B30-10681267C6DD.jpeg

    I think it’s kind of cute.
     
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  18. Hippielife

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    image.jpeg
    Picture of GRACIE MY BIG HELPER UPPER COLLIE .
    Awww GIDET....Oh look at LILY, what a curtieeee! :dogwalk: Perfect picture. Lily deserves her own you tube channel...Such an face....adorable. :puppysmooze:Makes me send lots of gooey kisses to Lily! AND lots of cuddles & gentle hugs to both Lily and Mom.

    I don't know how you handle all the news. Makes me sad I can't imagine how you must feel. :shrug:
    there's lots of support here and many who adore you and Lily!

    My beautiful collie Gracie! She is my helper upper. I get down or fall she comes running from no where inside or outside and stands beside me then digs her feet in locks her legs and I lean on her back to get up. She just started doing that all by herself . She's rescued me many times. Bless our sweet furry angles! I know Lily brings you lots of happiness and warm cuddles. There are studies that support animals and pets can make us happier and feel better on a daily basis.

    I used to sneak my gramas pet chihuahua in my purse to see her in the hospital in the 60's when I was a child. At that time animals were not recognized as mood picker uppers! The nurses knew I had the dog they said nothing! Put such a huge smile on my gramas face, I'll never forget that!

    Take care GIdget!
     
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  19. Hippielife

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    NAMASTE !
     
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  20. Gidget

    Gidget member
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    Your Gracie is gorgeous. You’re lucky she is tuned in to you and knows if you need help. Lily is still too young and scatterbrained. I have noticed that if I’m not very well that she will cuddle in and be still for a little while but it doesn’t last long. Does Gracie take much grooming? That’s a pretty long coat she has.

    I love the meditation dog...that’s exactly what I need to do right now but I think I’ll pass on the crossed legs. I have a zen meditation app and it’s been my go to for when I feel overwhelmed. My GP recommended it and when I first started doing it I couldn’t get in the zone then one day...zap...could see the colours and visualise the spirit. I’ve been calmed down by it many times over the last year or so. It just took practice to learn how to block out external stimuli.

    They’ve just come to get me for a chest X-ray. See ya.
     

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