THR Need a friend who has been on the other side of a late infection

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I would just have a two stage surgery and if that fails be on antibiotics for life or amputate. None of this sounds like what I want to hear or think about.
I can only imagine, my dear. But there are other options before that last extreme one. We'll keep an eye on you and make sure you are guided in the right direction should it ever come to that.
 
Hi HappyHippy,
I completely understand what you are trying to say! I left my OS before my 6 month checkup because I never ever saw my OS, only his PA, who just sort of sneered at me like there was something wrong with ME because the surgery was perfect. To be honest, after reading my surgical notes, it sounded like the PA did the surgery.
I want to discuss Gabapentin with my doctor. I too have damage to my femoral nerve from the anterior approach. It feels like constant burning stinging and hurts to have my pants or clothing touch my skin on my operated leg. I have psoas impingement and leg length problems. I am almost an inch too much on the operated leg and now can only wear tied shoes with a shoe lift, but its no fun to try to tie my shoe! My kindergarten students are always asking me if I could tie their shoe for them, ha, I want to say, "I can't even tie my OWN shoe."
I have figured out this is going to be a slow brew until I get to the point where a revision is done. I believe you are right and I have another year of more and more pain. What is making this even harder is the chills and nausea that I have. Without hard facts from labs, there is nothing that can be done. I am now also suffering from anxiety attacks. They come when I get increased pain. I can be pain free at times, and then suddenly a hideous pain in my groin or outside of my hip.
I have always been a bit of a health nut, was raised that way with whole grains and fresh vegetables so with Metamucil and my fiber from my diet, I guess I am managing my bowels. The IC is the worst. I cannot have any citrus, alcohol, vinegar, nitrates, tomato, coffee or tea or chocolate. I miss my morning joe and an occasional sip of wine. The constant feeling that you may have a UTI also brings the anxiety.
I will read your post. Thanks for being a new hippy friend and giving me hope that I may manage well after a revision.
To those who wonder about anterior approach, it has plenty of success stories, but I am not one of them and now can only wonder if I would have had success with more traditional surgery. Looking at the bright side, at least I did not get the foot drop too! It took four months after surgery to get my foot to lift high enough to reach a stair step. I can do stairs now providing that I hold onto the stair rail.
If I miss and catch my toe lightly on the edge of the stair, Lordy that is painful. My groin pain has improved since my surgery. It was horrendous
RestAssured, I walked my dog in the bright sunshine today. Nearly forgot what a sunny day looked like. All of my doggie friends were also getting a walk and my dog was in heaven. i cannot wait until spring. Want to move to Texas where it's warmer!
 
BarbieJ,

If Mayo finds you get relief from Illipsoas injections, they may offer to do a Psoas release now. I had mine at 15 months. It was great for a month, but since my stem was loose, it didn't last, but it may with you.

It's hard when you have bad results from an Anterior. It can be so frustrating, and the pain gets you down, but Gabapentin is a lifesaver for me. Feel free to ask more questions or for anything you need. Your case sounds so similar. There were times when I wondered if I had an infection, because I thought something must be serious to cause the amount of pain I was in. Lucky for me that it wasn't. But my joint capsule is full of scar tissue, and the stem was movable. With new parts, I'm much better. Just have he surgical pain.

Keep us posted.
 
Barbie, I am so glad you were able to take your beautiful dog out for a walk and I also am glad that HappyHippy has given you some reassurance! Something we all need! I am not a hipster, but I have been through the revision and infection, and I can tell you, I am so grateful that you don't have infection to worry about also! Keep me posted on your progress! I care! :friends:
 
When it rains it pours. So if I didn't have enough on my plate, I am experiencing pain at the area that my two teeth were extracted. One was done three months ago and the second was extracted over a month ago. I have an appointment with my dentist. There is nothing visible, everything seems to be nicely healed and the pain comes and goes. Please don't let this be necrosis of the jaw bone or anything horrific. After my surgery, I repeatedly visited my dentist (fired my original one).
Every visit with my concerns of my molar left me with a wait and see approach since X-rays, and usual diagnostic tests were ambiguous (hot and cold, percussion tests, etc.). Finally had a root canal which was 8 months after my surgery. Had pain for months though. Even when doing the root canal, my dentist said he did not see any signs of infection, and nothing showed up on the X-rays. Root canal didn't work, so it had to be extracted. So what is going on now? I am also very nauseated, especially in the early morning. No temperature, but I do get very chilled easily.
 
I just went to my dentist two weeks ago and at that exam he didn't see any concerns, and thought all appeared well. It just doesn't seem to be improving.
 
Hi Barbie J

I was so pleased to see that your posts were sounding a lot more positive a few days ago, but now you have a new worry. I know that toothache is totally miserable, and it must be frustrating not to have a specific reason for it. But to go from that point to worrying about "necrosis of the jawbone" is possibly just taking things a step too far.

My husband never misses an opportunity to tell me that I worry unnecessarily, and get everything out of proportion - and there is possibly just a glimmer of truth in this assumption. But quite honestly, you have me beat. Hands down. If there were ever to be an Olympic event in Worrying, I am sure you would carry the USA honours with pride.

I don't know what has gone wrong with your dental work. Maybe something. Maybe nothing. It is a pretty good start that your dentist can't find anything wrong. Gums are very sensitive. Perhaps it will all settle down soon. I do hope so. Give it a week or two more.

Allow yourself to investigate the vague possibility that some of the problems which whizz round and round in your mind just May Not Happen. I'm sorry to sound patronising. It's just because my mind moves along such similar tracks to yours that I can see how these fears aggregate into One Big Worry, so quickly for you.

Have a good weekend.

Glynis
 
[Bonesmart.org] Need a friend who has been on the other side of a late infection
Barbie, just a little food for thought because we care about you.
[Bonesmart.org] Need a friend who has been on the other side of a late infection
 
Thank you glynis,
I hope you will continue to talk to me like a Dutch Uncle. I need it and appreciate it. My mother died 3 1/2 years ago and she was a very positive and strong person. I miss her and being able to talk to her but I am glad that she isn't seeing me this way, and I am not proud of it.
I do feel like I failed Hip Replacement 101. When I saw my eye doctor (surgeon) last summer, we chatted since his wife had just undergone a knee replacement. I told him that I had a UTI, A root canal (this was before it failed and needed extraction as well as the tooth next to it) and a colonoscopy eight months after my surgery. He said in a friendly way, "you don't follow directions, do you?"
On a bright note:
I have been trying to do the psoas tendon stretches that are on this forum. Haven't graduated to the one with the seated on the floor head toward the floor, but have done the kneeling and tried the lying down on my back one and I feel a little improvement in my tendon.
I have been experiencing nausea which is new for me. Don't know why.
I told my school two days ago that I will not be returning to teach next school year. It feels good to have made that decision.
I wanted to work for 4 more years but its not going to happen. I just don't have the energy that the kids deserve. I had an observation earlier that day and during the post observation conference I was told how terrific I am with the kids.
Unbelievably hard when I feel sick and in pain.
I am ready for a new stage in my life with less responsibility and to focus on a wellness program for myself, mind and body.
Anyone have any tips on where to go for knowledgable yoga or exercise for hip replacement? What about the YMCA?
Would a good fitness place have that knowledge? I don't want to do something dumb!
 
Btw, I had a CT scan of the maxillofacial area of my left jaw one year ago. I have been struggling to get to the bottom of this dental pain.
Every X-ray of my teeth have looked text book perfect so please future hippies, learn by my mistake and do not put your faith in dental X-rays. If I had to do it over again I would have waited for this entire last year for my pain and dental problems to become clearer. I was cleared for surgery by my dentists, endo, and primary care doctor, after examining my upper molar and jaw area, they could not find anything.
On another subject, I have an appointment with the Living Well Center PT. I am going to begin physical therapy assessment and hopefully join an exercise program to hopefully gain some strength. I don't want a weight loss program, it took me a year to put back the ten pounds I lost after surgery. I felt like a skeleton and was not at all happy about that. I do my exercises and stretches every day but I am tired of doing everything alone at home.
I have an appointment next week with a colo rectal surgeon to figure out why I have so much rectal and anal pain. Colonoscopy one year ago did not reveal much.
Before my hip replacement I was so healthy, fit nothing wrong with me except two things. I had bone on bone and walking was difficult. My limp had become super noticeable and shocking for people to see me walk. Sitting was pain free then though, now it is uncomfortable to sit. The other issue was vague pain near my molar, which was identified as TMJ in the absence of any other signs. Wrong!
 
Hi Barbie,

Welcome to the forum, I'm a little late to your thread. I'm sorry that you are having a variety of different problems to deal with and do praise you for trying to get all of them addressed and straightened out. I have a question after reading thru your thread kind of quickly -- what brought you to needing the THR to begin with? I couldn't tell from your thread posts whether you'd had a congenital issue of some type.

Also, do you have x-rays of your new hip that you might be able to post. Josephine is very experienced in viewing things from those films and maybe that would give her more information about your situation.

On your tooth issue, while I don't have vast experience in the dental relm, I will share that I had a deep filling done many years ago and my bite has had to be adjusted at least half a dozen times because it doesn't feel right to me. Over the years of dealing with this tooth at some point my dentist mentioned that sometimes when the bite is off or there are changes in the way the tooth sits in the jaw that a person can experience nerve pain or irritation. I had been thinking of this earlier in the day in regard to what tashia has been sharing about her on-going dental problems. It is actually the nerve in the jaw that gets aggravated by the pressure of the tooth. This pressure can be from the usual motions of chewing as well as clenching or clacking of the jaw during sleep. If you have to see your dentist again for your pain now that the tooth is gone maybe you could ask his opinion on whether it could be related to nerve pain in the jaw and who/what can help alleviate that problem.

Lastly, groin pain. If your OS has added length to your leg with the THR hardware, either on purpose or on accident, this can create tension on muscles and tendons and discomfort. Maybe with your new PT you can show them where you experience discomfort and they may be able to help with some gentle types of stretches and massage in order to help that tendon gradually adjust to the change. I have experienced groin pain/tension in my adductors (my OS added length on purpose) and while there is still a difference in the tension I feel in that muscle/tendon it has gotten to be less painful and problematic over the 17 months from my surgery.

Gotta go for now,
Cardie
 
Cardie, I don't know how to put my X-rays on here. They are photocopies so may not show up good.
I am an identical twin. I knew I had mild scoliosis, but I never knew until my hip became sore that I had some hip dysplasia. Five years ago I was holding on to a rope playing tug of war and I heard and felt it pop. I did not go right away to the doctor. It just got worse. My biggest regret was not going to the doctor right away. Perhaps I could have had another surgery and not had to have a THR. My sister has no hip issues. We both had to have L5 disc surgery for herniated discs a few years ago, coincidentally a year apart.
Three different OS doctors said I needed a hip replacement.
My hip near my anterior scar burns everyday. Now my good hip is beginning to make popping sound and mildly ache. Oh crud.
 
I want to thank you for coming over and saying Hi. I don't plan to leave I find that I need the site too. I enjoy meeting the new members starting their jouney of the new life that the total replacements bring. There can be very challeging times as you know. Don't reget that you didn't do it sooner. We do when we are ready for the challege. You are still very new so remember to be patience is needed here. You will make it. Take care. Tashia
 
Hi Barbie,

There seem to be a fair number of people that come and go from the forum that also had dysplasia that was diagnosed in adulthood, like age 40s. Then there are a few of us that were diagnosed as very young children and had a variety of different procedures lived our lives and then ended up here in adulthood needing THR. It's a big change to adjust to, isn't it. It sounds like you can walk comfortably and that is fantastic!!!! Hopefully with your upcoming PT and your ability to walk maybe you'll be able to cobble together an exercise routine that will help you to feel better both mentally and physically.

I'm sorry that your scar is giving you some trouble. Do you actually feel the pain directly in your incision itself or over to the side, towards your hip?

What do the docs say about your good hip, do they think it seems dysplasic as well? My good hip is not in need of a THR, it's "normal" in comparison to my funky, pre-fake hip. My good hip sometimes makes little pops and feels cranky too, but then again sometimes that happens in my shoulders at different times as well -- some of the stuff that we feel in our bodies comes from use and growing up. We just ain't as young as we used to be no matter what kind of shoes we wear or style of pants or amount of make-up or blah, blah, blah. Plus, sometimes our good hips take a bit more of the burden if we are having issues while we continue to adjust to our fake hip.

I'm not sure if Jo can interpret through a xerox of an x-ray, it may not be viewable in the same way. Maybe your OS office can burn a CD with some of your x-rays on it and send it to you. I have to find out about doing the same thing as all I have are xerox copies of a few of my pictures as well.

Take care and I hope this week is a bit better for you,
Cardie
 
This afternoon my husband and I walked the 2 mile trail around the lake. It was colder than I expected, not even 40 degrees. I have not walked two miles since my surgery. Everday I walk about a mile or less at my normal casual pace in the afternoon with my dog, but this had some minor inclines and the whole thing exhausted me.
I spent the next two hours lying down under a blanket. My new hip hates being cold. I used to do those kind of walks easily.
In my salad years I would have jogged around the lake two or three times. At almost 15 months post op, I am NOT where I was hoping to be. I am grateful to God that I am capable of walking.
I'm just saying, I feel something is wrong.
 
BarbieJ. I was thinking about your jaw pain. TMJ can really be a pain. Also if the tooth has not been replaced yet I wonder if you bite is off. Your mouth is use to all the teeth not being short one. I would have the dentist check you bite expically when you chew. I found that the first year after me getting a new joint the are is very tender and cold weather seems to bother it. Each year it does get better. Have you had your thyroid checked? If it is low you get have chill attacks. Also you can have anxiety attacks. I mean some big ones. Just a thought. I had thyroid cancer and had to have the whole thyroid removed. Afterwords I would freeze and had the most unbeilable anxiety attacks. Now I take medican and all is well. Also if you are very low you can be depressed and think that nothing is right. I am speaking from experience. So if it hasn't been checked please do. You have nothing to lose. As we get older the thyroid can stop making enough and cause trouble. Please take care. Tashia
 
Hi tashia,
It's been a year since I have had my thyroid checked. My TSH was 1.684; with a reference range of 0.510 - 6.270 being within the normal range so normal at that time.
I don't know what to think.
I have a question, is my thread too long and is it better to start new threads from time to time? I have no experience in how forums
Guess what? Today one of the teachers told us in a group meeting that since her building had such declining numbers, that she will be losing her job next year. I wanted to say across the table, "no you won't, I am leaving and you can go for my job, not to worry!"
I had to sit quietly since I have not gone through the appropriate chain and I have not informed my building principal and the HR director yet that I am leaving.
I can't talk about it yet without getting teary eyed. I wish I didn't have to quit, but alas, I cannot physically continue.
 
[Bonesmart.org] Need a friend who has been on the other side of a late infection
Barbie, this is your recovery thread, and we like for you to keep everything about your recovery in one thread. It's not too long. Don't worry about that. So please do not start another thread. Thanks!

Take care and keep us posted. We care. [Bonesmart.org] Need a friend who has been on the other side of a late infection
 
Thanks for saying that bottomshollow. I like it all together because when I want to reread one of your postings all I have to do is come here and all is here. Please remember that every person has a recover just for them. Mine has been going on since 2010. So do keep with it. One of the reason it has taken me so long is I have had three replacements which I think I have mentioned before. I do not regrent doing it at all. In fact I have more of a life now than I did when I started the journey. Sometime trying to figure whats going on is a endless loop. Take it from someone who knows. When I relax and attend to the problem at hand the answer comes to me sooner than spending all the energy to think I can find it by myself. Getting a good doctor is the first thing and sometime other people have to also be in the loop. I believe that all of us will get to recover when its time for us to get there. Stay with us and we will get there. Take care. Tashia
 
Getting a good doctor...
I thought I had a good doctor when I had my primary hip replacement. I say primary because I know deep down that this journey for me will most likely be heading toward some kind of revision. I have read Josephine mention many times on other posts and threads about getting a good revisionist. How do you know that your doctor is a good revisionist?
I have a new ortho here where I live that my internist referred me to this year. His bio states that he did his fellowship at MassachusettsGeneral/Harvard Medical and that he is experienced in complex and revision arthroplasty. I don't know anyone who has had him do a hip revision. I do know people who had primary knee replacements with him.
Also my OS that I saw at Mayo has copublished a book titled Revision Hip and Knee surgery.
I asked at Mayo if he did two stage revision for infection and I was told on the phone that he did.
I do not know anyone who has had a surgery done by him but my OS here where I live told me he knew him and that he would take good care of me. Stats here show that this Mayo is ranked second in the US for orthopedics, with the first being HSS in NY. One of the OS surgeons who is co author of the book on Revision Hip and Knee is past president of AAOS and does list that he does revisions on his bio.
 
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