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THR Need a friend who has been on the other side of a late infection

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BarbieJ

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I am new to this and not too techy, but I have found this site helpful. I had my TLHR on Nov. 29 , 2011. Prior to my surgery I had a dental clearance first by my dentist and then a second opinion from an endodontist. I had a crown in October that didn't feel right and both said it was an uncomfortable crown with TMJ. They each cleared me for my surgery. I was even told my dental X-rays were textbook perfect. After my anterior approach surgery I never felt good. I had severe pain in my groin it was worse than before my surgery. I still cannot lift my leg to get into a car and I have difficulty going up stairs and anything that requires lifting my leg. I am so disappointed because I had heard such good results from anterior approach. My tooth continued to get worse. I ended needing a root canal and when that didn't work, I had to have it extracted. I also had a UTI in May, that was stubborn and left me with interstitial cystitis. I have an appointment in one week at Mayo. I did not have my primary surgery there. I will be having an aspiration and blood work. I am scared to death. I don't think I have the courage to do this. Guess what. My neighbor is 80 and had hip replacements on both hips, replacements on both Knees and both shoulders and did well with all 6 surgeries and has been going strong on her bionic parts for years. Anyone care to share thoughts that may help me be brave.
 

Dee205

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Barbie,
Sorry to hear about these problems. Medically, I can't give advice but hoping everything goes well. I did have a surgery sight infection after the second hip but 30 days on high dose antibiotics cleared it up. Hoping it works out as well for you. I'll tag some of the moderators, they will be more helpful.
Dee
Josephine, Poppet
 

tashia

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Oh Im so sorry to hear about this. I see that Josephine and Poppet have been taged. Let me see if I can get someone.Josephine Jaycey . I hope you hear soon. Take a deep breath and try to relax. Are you on medicane for this. I do hope your pain is under control. Poppet Take a moment at a time, if you have to. Do know you can come here whenever you want. there is always someone here. I do hope one of these three will be with you soon. Please take care. :friends: :console2: :console2: There are more hugs to be sent. Tashia
 

Jamie

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Hi, BarbieJ....welcome to BoneSmart. I'm glad you joined and decided to become part of our caring family. We'll be here for you in whatever way you need. Don't hesitate to post any time...even if it's just to pop in and say hello.

I know you are worried about an infection, but you really don't know at this point if that is the problem. There are other things that can cause pain following hip replacement surgery. Do you know if the surgeon you're seeing at Mayo is a revision specialist? It would be very important to have one at this point. These guys are used to dealing with the more difficult cases and, even if you didn't need a revision, they would be more likely to spot the problem. If you don't know about your doctor, call and ask.

In the meantime, let us know what in particular is scaring you. We can talk you through it. And, hon.....you ARE strong. You've gotten this far, haven't you! You're going to do just fine.
 

lncrwley

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If you are scared to death of the aspiration, you can ask the doctor to prescribe something to calm/relax you. I was faced with an aspiration at one time. I told the doctor that I was scared and wouldn't let them do it. He offered me all kinds of drugs to almost knock me out. I still declined. This was because I had osteomyelitis in my hip 30 years ago and he wanted to be sure it was gone. I told him that he could do the aspiration at the beginning of my surgery when I was knocked out and if he didn't like what he saw, he could cancel the surgery.
I have no words of wisdom to help you along but I know you can ask for drugs to help you along with it.

Lynne
 

RestAssured

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Hello Barbie!

Well you have found a friend with a great deal of "experience" in dealing with infection!

The first thing I will say to you is NEVER compare yourself to anyone else! Please know that some people have great outcomes and some have longer roads and eventually recover, and less than 1% end up with an infection.

Was I scared to have the procedure done? Well yes and no. I was in horrible pain as the incision had split open when they went in to do the washout debridement and spacer replacement that when I saw the doctor I had about 30 min to be scared before the happy juice kicked in.

I have been to Mayo Clinic in Scottsdale Arizona. I would recommend Mayo to anyone who wants to find an answer! They are very caring and extremely thorough.

You need answers that we cannot give you. We will be here to support you to cheer you on, and even cry with you if necessary! We are one of the most caring groups of people I have ever had the privilege of being a part of and I have been helped tremendously by so many people! :happydance: :friends:
 
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BarbieJ

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Thanks, RestAssured! I will keep you posted. I have an identical twin sister who is the picture of health and has no hip problems. I have lots of problems to deal with. My surgeon got my leg lengths wrong. I am about an inch too long on my operated leg.

I started crying when I read your reply. For the first time I feel I can talk to someone who can understand.
I am so grateful to all of you who have given me words of encouragement.
My skin burns all of the time especially on my left leg but there is nothing - no rash. I am taking an antihistamine to help with that. My only med is a Tylenol from time to time. My left outer thigh is tender as if it was bruised but there is nothing visible and has been since my surgery over a year ago.
I feel sick all of the time with exhaustion, and my hip gets these off and on jabs of pain like someone just stuck a syringe needle in my thigh. That happens from time to time throughout each day.
I had my tooth extracted one week ago. Took my premed. Worried something is going on there so I am calling my oral surgeon. He may put me on antibiotics which I will have to reschedule my appointment at Mayo since they don't want any antibiotic in my system.
How long has it been since your two stage revision. I did this surgery so that I could continue working and go on a vacation. Haven't travelled for 5 years. Also wanted to dance at my daughter and also my son's wedding. Now I just hope I can be around. Thanks, RestAssured. I am worried about being allergic to all the antibiotics and losing my ability to walk with two legs.
 

RestAssured

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Barbie,

I went to see one of the foremost specialists on infection! He does a one stage revision and I had that done in May! They had a hard time keeping me down in rehab, I left the regular hospital after 3 days and I have been flying along! :happydance: I don't know where you live but Dr. Maale is in Plano TX. When he first meets you, his bedside manner is that of a soft rock, but I am breaking him in for future patients! He only takes the most severe cases and he is very good at what he does. He does knees, hips, shoulders, etc. he deals with cancer, infection, fungus, synviovial crondromytosis etc. so he is well versed. The Mayo Clinic is well versed, but if you want another opinion, he is worth it! I still have kneecap issues but they are getting better all the time! Stay as positive as you can my friend; you have a lot of living left to do, and I will be here to help you celebrate! :happydance:

After I had my first knee done I was an inch and 1/4 shorter on than the knee that had not been done yet! I don't know if it is the same for "hipsters"" so I will ask my friend Poppet

One last thought, are you running a fever? Do you have headaches that are "unbearable"? Do you find yourself with no energy to get out of bed? Are you crying suddenly for no apparent reason? Those answers and questions will be extremely valuable to the doctors atMayo!

Is the pain worse when weight bearing? At night? After exercise? When you say pain, is it throbbing, stabbing, dull, intense? How long does it last?

I hope these questions are helpful to you!

P.s. I also have a sister and she is three years older than me. We are as different as night and day! She does not have osteoarthritis, so no back surgery like I have had, no knee replacements, no neck problems with herniations!

But you know what? She has had to wear glasses since she was in 3rd grade, tried laser corrective surgery and still has to wear glasses.

My point is everyone has something they have to contend with. That is why I only focus on God and my attitude. I cannot change anyone but myself, but if I make myself a better person, I have taken one step to seeing a better world! I love to laugh and see the lighter side of things. If you read my threads you will see I am not always upbeat, but I try! Yesterday is gone! Today is mine! I will make the most of it while it is here! :happydance:
 

Jaycey

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Hi Barbie, welcome to BoneSmart. I do understand your concern but honestly - you will get through this. Please don't worry about infection. It does not happen often and if indeed you have an infection there is plenty they can do to help you. Mayo is tops - you are where you need to be.

Can you answer Sonja's questions about fever, etc? Please keep us updated after your appointment. You are now a part of our global family!
 

tashia

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Barbie, How are you doing? I was very alarmed when I read your post. We are a big family and we will help you with this. Please keep us posted. When I had my first knee done I had a slight infection and I was able to use oral drugs. My knees were so sore. They felt like they were on fire. I have to say when I read you post I had forgotten about the infection. It happened so long ago I had forgotten about it. I know that sounds a little hard to believe but I had. Its been almost three years ago. When you feel scared or hurting please come here and post. It really helps. Also read other people stories it also helps. One night I was in so much pain I needed to be busy so I went to the Social Room and stayed there for hours. Welcome to the sight. Will be looking forward to hearing from you. Tashia
 

Josephine

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1. Prior to surgery had a dental clearance
2. had a crown in October
3. THR on Nov. 29 , 2011.
4. ended needing a root canal and extraction.
5. had a UTI in May
Hi there - I'm a little confused by the sequence of these situations. Have I got them in the correct order? If so, can you tell me the dates of 4 and 5? You could forget about 1 and 2, they were pre-op and unlikely to cause a problem with your hip.
 
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BarbieJ

BarbieJ

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I take my temp every day and I have not had a fever. I have aches in most of my joints. I never had that before. I feel feverish with no temp followed by chills off and on but especially in the morning. I. have very bad days and if I spend a day mostly off of my feet some of the pain goes away. My back aches so much. I already have degeneration in my spine, and MRI showed narrowing of space between discs. I can put weight on my leg and walk without a limp now which is pretty crazy since it hurts to sit, or lie on that side. The constant burning, stinging of my leg and all over itching of my skin all over my body is driving me insane. After my surgery I could not bear to have clothing touch my incision. My knee has these crazy sharp stinging pains. My shoulder has been really hurting too. MRI of that showed arthritis, never had a bit of shoulder pain before this. My theory is that my problems with my teeth, root canals and extractions (2) and also my UTI that became a chronic condition have seeded my hip in a low grade chronic late infection. I don't know how I will be able to have a two stage revision with interstitial cystitis.
Other than my hip, before my surgery I was a fit and healthy person. My oral surgeon checked me today and said I don't have any oral infection right now.
 
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BarbieJ

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What I know now: Dental X-rays DON'T show cracked teeth. I now feel I must have had two cracked teeth for years and never knew it. Before my hip replacement I had a crown on October 11 on a tooth with a large filling which felt a little different after a teeth cleaning. Days prior to my permanent crown my endo checked and told me he saw absolutely nothing and cleared me for surgery as did my dentist. I told them I felt a vague ache that came and went. no problem chewing at all. They said it was TMJ and I stupidly believed them.
Surgery: Nov. 29, 2011
First day home:
Discharged with UTI pain and went to urgent care on first day home. Urine test showed no bacteria but urgent care doc said I should go on Cipro and they would send urine to lab. My urine culture was lost because they forgot to put my name on it.
Took 10 days of Cipro.
Week three after discharge. Called dentist with toothache. He put me on Clindamycin which I took for 10 days. X-rays showed nothing and viability tests show no problem with hot or cold or pain. Dentist said I was a mystery. No treatment.
Christmas Eve:
To endo. More X-rays and he used the same odd expression. I was a mystery. He told me not to worry and the tooth would not affect my hip.
Christmas Day:
Woke up with itchy rash all over my thighs and stomach from clindamycin
January 7: noticed blood in stool. Don't know if this had been there before.
January 15: can't stand or eat. May have been close to getting CDiff. Start taking probiotics.
March 21: colonoscopy for blood in stools every day for over three months. Took premeds.
Result of colonoscopy: Hemoirrhoids and polyp which was snared off. I think I also had an anal fissure.
May 22: UTI, prescribed Cipro
June 5: tested for contiinued UTI symptoms, three more days of Cipro. Urine tests show no bacteria.
July 10: urologist diagnosed me with Interstitial Cystitis. I had never heard of this condition. Prior to my TLHR it had been 5 years without having any UTI.
July 12: Root canal on that textbook perfect tooth. X-rays were still textbook perfect on day of treatment. Premeds.
Sept. 13: Root canal retreat. Premeds.
Nov. 8, 2012: extraction of said tooth. Premeds.
Jan. 4, 2013: extraction of tooth that was right next to the extracted tooth! What has happened to me.
I have had blood tests and X-rays three times looking for infection.
My last was on August 15: sed rate was 2 mm/hour and C Reactive was 0.5 mg/dL.
So, I have pretty much figured this is a matter of not IF but when.
Please forgive me for boring everyone. I just wanted you to know that I am worried for solid reasons. I basically feel that I was not counseled properly about my presurgical health. My primary care doc chided me when I mentioned my tooth issues at my pre surgical check up and said, You are just grinding your teeth at night because you are so worried about this surgery. You'll be fine. I still cannot figure why all three of those doctors were so dismissive about it. I trusted their expertise and knowledge. Not one of those doctors told me that X-rays of teeth don't show cracks in teeth. What I know now. For future hippies. YOU are the only one who is watching out for your welfare. Doctors must assume that if it doesn't show up on an X-ray it isn't there. I feel that if i had talked to someone on this website before my surgery I would not be in the position I am.
To make matters worse, I get to look at my identical sister for the rest of my life with two perfectly good hips and legs. I love her dearly and I have asked her to take care of my children if I don't make it. She doesn't understand what I am going through but I feel lucky to have another me in the world to be there for them and love them. It's not the same as your real mom, though. Thanks again to all who have read this post or showed compassion.
 

RestAssured

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Ok Barbie,

Time to take a deep breath! We have all worried about infections getting into the replacements! From the SED rate you posted and the CRP it does not sound like an infection! :happydance:

Now, I know you are thinking then what the heck is it? That's where the doctors at Mayo Clinic are so valuable! You are there for about a week, and you will be referred to several different doctors who will run all types of tests to figure out what is going on!

I am relieved to hear about your SED and CRP! They start to worry when the SED is over 20 and the CRP is over 18? Or 20. Anyway, I am looking forward to you getting the answers you so desperately need! Please stop comparing yourself to your sister though. It just serves to bring you down! Think about all the good things you have done in life, and what you will be able to accomplish once you feel good again! :friends:
 

Jamie

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Sonja is right. I know it's tempting to try and analyze your situation to come up with a medical diagnosis. But it's mighty easy for someone who does not have medical training to go astray. Your body is not showing signs of infection. This is a good thing!! If you still have doubts, it's good to seek additional opinions. I'm going to tag Josephine again so that she can read your latest post with the timeline. She DOES have a lot of medical training and can possibly offer some suggestions for you.

Please know that we do care about you and will support you as you go through your search to get to the bottom of things. You are on the right track in recognizing that you must be your own advocate. In today's world, that's just the smart thing to do. Please continue to post to let us know how you're doing.
 

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Welcome Barbie.. You have been given heaps of good advice in previous posts and Sonja is an absolute wealth of information, having been through so much herself.

As she said... Take a deep breathe.. You are crossing bridges before you are there my dear.. I know and appreciate this is scary for you.. but you will get to the bottom of this and you will get better..

One thing at a time.. lets see what Jo has to say when she reads your chronology...

You have come to the right place, we will support you through this... Sending hugs :)
 
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BarbieJ

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Thank you Poppet. RestAssured and Jamie are right. Just knowing someone is out there somewhere to talk to me has been a Godsend. I slept better last night with this knowledge. I will think positive thoughts and keep you posted on the results of my Mayo appointment. Take care and know that if there are angels out there, I have found them here!! :SUNsmile:
 

RestAssured

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tashia is a real angel. I would not have seen you on the hipster side until she alerted me! :angel:

I believe that God sends people at just the right time into our lives!

I will look forward to hearing your report! Know that we care very much about you! :console2:
 

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Barbie! Honey! So sorry to read about your situation. I too have terrible teeth and was obsessed with the fact that they were hurting before surgery..I had just had root canals, extractions and bone grafts on both sides of my jaw and when that was combined with my post op pain, my fear really got the best of me.
May I suggest a therapist to help you sort through all your fears? I had total knee replacement 13 days ago and it's been a tough slog.I asked the hospital before I went in if I could have access to the staff Psychiatrist if I needed her. I had botched knee surgery years ago, was crippled for nearly 2 years and was clinically depressed from the pain and the morphine the whole time. I nearly killed myself then..I began to self mutilate though and someone finally figured out that I was in big trouble( I was only 18).
I have chronic pain from fibromyalgia and I know that my mental health takes a serious hit if I am in protracted pain. I was aware this time how grueling this kind of operation is and how I don't always fare well psychologically..and THAT interferes with healing.
The Bonesmart forum serves much the same function..such lovely caring and informed people..but don't be shy about seeing a therapist as well. You are not alone, and this too shall pass!xo
 
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