Hi everyone
Well some positive news for me....sort of.
The Professor was lovely and cost nothing!!! I was nervous that he would be rude and wondering why I was there...but he wasn't. I guess it is a serious situation. As he is part of the public system I was extra nervous after Bills @
fulafoto visit yesterday with his OS.
So the news is that I am being taken off the anitbiotics because I am having problems with my Achilles' tendon....tendonitis which is a side effect of the drug. They don't want it to rupture. Also as I am so extremely tired, having temps and bloods slightly elevated he thinks the antibiotics may be causing this.
He took bloods again today to check for lots of different bugs especially since I had pneumonia as well. Then I have more bloods taken in a week and a half before I see him again in 2 weeks.
The bad news is that I may get sick again.....if that happens then I'm to contact the OS and go to hospital and not take antibiotics so they do an aspiration to get some of the infection and can grow the bug and then treat it with the appropriate antibiotics.
He thought that there was a good chance that if the infection came back and was indentified then they could cure it without a 2 stage revision surgery which is great news!!!!!
Even if it comes back and I have to have surgery to aspirate the infection I feel it is better than waiting around till June when I may be in the same boat. He was quite positive whereas my surgeon has been more guarded.
Once again i feel happy with 'my team' of experts and find them both really approachable. I personally feel that the antibiotics aren't causing the temps etc because it is a new symptom and I'm getting a lot of things that I had before hospital but in a milder form.
But hey I'm not the specialist and I've nothing to lose if I get sick again because at least we can find out what I'm fighting rather than all this guess work because even the professor doesn't know what the bug is although he suspects its a gram negative bug.
You guys have been the most amazing support network and friends. I still have a road to go but I know you are all with me good or bad. It's amazing when you are sick that you find out who is there for you. A lot of people haven't been.....but I can always come here and know someone will lift my spirits. I will certainly be more available for people in the future
I really have tried to be positive...no one wants to hang around someone who is always complaining.....
I'm super tired after no sleep last night but will get around to offer my support to you all. I hope you are all well
Sally xxx