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Revision THR Complex Revision poor outcome Ehlers Danlos

Flowerfloosey69 said:
Pumpkin said:
@Lexus05
I have a hinged knee, it works great, my knee is stable.
During pre op the OS said he was considering a hinged knee and another type I cannot recall. I told him I would need a hinged knee. When I saw him after surgery, he said you were right.

The question I would ask with all your revisions, is "Why didn't they give you a hinged knee sooner?"

Hinged knees work as well as other knees, and will work better than the ones you have now.
Will this be for both knees?
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Wow. Have never heard of a hinged knee! This gives me hope! Would love to know how it is working for you these days? I also have ligament laxity due to Ehlers Danlos. Hope you were able to find the right surgeon.
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Well, after my hip revision, I desperately need a second revision on rt knee, and my other natural knee is going but I hope it hangs in there for a while longer. I'm going to do some research into a hinged knee as this old revision is going south to the point sometimes I can't straighten my knee and lots of pain. Left knee aches a lot and feels like it could go completely out from underneath me.
Flowerfloosey69 said:
MsJunebug said:
Hello,

So sorry to read about your repeated dislocations.I just happened to check in on the forum tonight because I’m experiencing a lot of pain from my hip all the way done to my knee. Both replacements (LTHR) and (LTKR) are hurting. I’m thinking it’s an iliotibial band issue or tendinitis.

Anyway, I was diagnosed with hEDS by a geneticist in 2016 after all the tendons and ligments in my right foot and ankle spontaneously ruptured. My LTHR was done in January 2020 and the surgeon did use a dual mobility implant due to my Ehlers-Danlos. He’s the same surgeon who did my LTKR in 2017. He seems to have a good grasp on EDS.

Although I did get relief from that awful bone on bone pain with both replacements, I’ve never been completely without pain. Seems to be some sort of inflammatory issue because I feel wonderful and totally pain-free only when I’m on high dose steroids. Unfortunately, I don’t take them very often because of the major side effects.

Wishing you good luck with your revision.

Debbie
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Debbie, I'm so sorry to hear you are still having pain! I agree about steroids!
My new surgeon is reluctant to use a dual mobility cup because of removing the cup from the last revision 7 mos ago. He said he would have to use a larger cup which means he would have to cut out the old one. My bone is not healthy enough. My preop is on the 7th so I will be able to hear his final decision on a DMC.
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my Preop was last week. I didn't get to see the surgeon as he was still on vacation. During the consult in June, he told me constrained liner, but he said he would have everything possible available to him in the OR as he said a lot of the times the exrays don't tell the whole story.
 
Sounds like your surgeon will be well prepared for your revision, and will have everything he needs in the OR.

Flowerfloosey69 said:
I desperately need a second revision on rt knee,
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Please post the surgery dates for your TKR and revision, let us know and a moderator will add the information to your signature.
Thanks,
Chris
 
Looks like you had all hip surgeries in your current signature. Not sure what happened to the knee dates.
Chris
 
My re-revision all set and prepared for a week from today on July 21. This time I'm really nervous, even tho I believe I have a much more competent surgeon!
 
Happy to hear you have a date so soon, and a new surgeon with superior skills.
All the best next week.
 
I know this is post op area but those that have read my story...
My 2nd Hip revision is Thursday July 21 afternoon! I'm really nervous this time.. I'm having a lot of pain in rt Shoulder, c spine and lower spine. Hope I can walk into the hospital to have my surgery. Last time my blood pressure tanked and my blood glucose went high. I'm not diabetic but pre diabetic. Am praying for a good outcome.
 
I’ll join you in prayer for an uneventful surgery and recovery. Peace of mind and comfort now and as you begin healing. :prayer:We’ll be here for you! :friends:

FYI, you can record your recovery right here, on this thread, or begin a new one the day before your surgery if you wish….your choice. Hugs and Best Wishes.
@Flowerfloosey69
 
Will be thinking of you tomorrow and looking forward to an update once you’re feeling up to it. Wishing you only the best!
@Flowerfloosey69
 
Thank you Layla! I dislocated last night 10 min before I was going to bed. I couldn't believe it. I had pulled myself over to sit on the toilet so they spent a lot of time getting the big sling around me to carry me down the stairs to the ambulance they were able to get it back in but the pain was horrendous.
We are on our way to Fremont. Surgery tomorrow afternoon. The was # 4 anterior dislocation!
 
Ugh! I’m so sorry, you poor dear. It is awful that you had to endure that once again.
Sending a hug and wishes for safe travels and an uneventful surgery and recovery. :prayer:
@Flowerfloosey69
 
Prayers for an uneventful surgery and recovery! You have been thru enough!
Thinking of you tomorrow! You got this!
 
Oh Flower, how awful for you! Prayers going up and sending you some good healing energy.. You deserve to get a good resolution this time.
You have many of us rooting for your good outcome.

Last night sounds so very painful..:console2:
 
Very sorry you had another dislocation.:console2: Wishing you all the best tomorrow for your revision, and an uneventful recovery.
 
Adding to the well wishes and will be looking for your update when you are up to it.
Healing Hugs xxx:friends:
 
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