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Hi Sue,the chemo sounds grim.
I am so pleased you are feeling some benefit with you leg swelling reducing and an improved ROM.
You are truly inspirational.
Hope you feel better again tomorrow,
Hugs Toothfairy x :flwrysmile: :console2:
 
Sue, I'm glad to hear that your reaction to the chemo has settled down. I know it's so hard to rest when you're feeling that agitation, but glad you're leg has settled down.

DDorothy
 
Ha ha yes, he's thrilled, his start date is 2nd Dec!
leejaa they seemed to think the bone marrow is affected but apparently it's usual with my grade of disease and doesn't make any difference to the chemo, they can't cure the cancer but I hope to get some maintenance therapy and have remission, then they can do more aggressive chemo. I've been a bit low at times, I'm on high dose steroids now for 5 days which elevates my mood. We plan little treats and I've just chosen some paint for my husband to do the sitting room walls, a nice cheerful deep yellow. It's such a relief that my knee seems OK, it would be awful to have to cope with that if it hadn't been, the scar is turning whiter now, but I show it off at chemo!
Thank you both for your kind words, it does all help to keep me strong.
Sue.
 
The deep yellow sounds wonderful. I have always been partial to cheery yellow colors around. When I was a teenager and into my twenties I would paint my bedrooms yellow and accessorize with greens to feel like the sun was with me and things were green and spring like. This will certainly provide a cheery sunlike spot for you through the winter months. :SUNsmile:
 
Hi Sue. Chemo is a horrible word never mind the experience of having it. Something I've not been through myself but a few of my friends have. It makes you feel helpless and inadequate because you're unable to do anything to help. My friend had non hodgkinsons lyphoma which I suspect is not as bad as yours . She's been cancer free for almost five years now. Glad your knee is feeling a little less swollen and your ROM is improving. Hope you have a restful and good recovery week ahead. I will be thinking about you. Hugs :friends:
 
Thank you for your kind comments Bionic woman2 Toothfairy turtle68 patient 99 robynhood
I had a chat on the phone today, basically the grade and staging put me in the medium/advanced disease diagnosis, a lot of cancer cells in all the major lymphatic glands and probably bone marrow. The prognosis is probably a 50% chance of 10 year survival. Having said that it's mostly a statistical figure and my general health is quite good and I seem to be responding to the treatment. I'll have a CT scan after cycle 4.
As my husband is retired I'm able to rest a lot and don't need to worry about shopping and so on.
We have a green front door and I'm hoping to have the kitchen painted in yellow and green as we've French doors into the garden, restful and cheerful and as you say, bringing the outside in. I love deep red but it's getting a bit overdone these days.
Do you know, I haven't started B B yet!
What are the Finger Lakes like?....I really must improve my knowledge of the US, I'm becoming increasingly interested in seeing it, if I can get travel insurance.
How is everyone else doing in the knee department?
Sue. :bicycle1:
 
Hi Sue, I've not been to the Finger Lakes but I understand they're beautiful. The U.S. is such a huge country full of beautiful, spectacular places. Washington D.C. and Boston are two of my favorite places. You asked about the knee department. Well mine has survived the move, unpacking, lifting, etc. We absolutely love our new home and as soon as we get it just a little more straightened out I will post pictures.

I'm trying to rest a little bit before I get started on my closet. I think I have joined the ODIC but mostly with my lower back. I love decorating and your color ideas sound great. We are a mixture of so many things but not true collectors of anything. Love Italian - in fact I watched Under the Tuscan Sun while putzing around here yesterday. One of my dreams is to visit the U.K. and spemd at least a month there.

patient 99 Toothfairy Bionic woman2 - Sue, you sound so very positive and I wanted to share with you that our realtor's mother who has lymphoma, she is your age, has been in remission, so they are doing her knee replacement on 26th November. She is a very active woman and so happy that she can finally have it done, so there's no doubt in my mind that if the time comes you need to have that other knee replaced, you will be able to have it done. Happy American Thanksgiving to you all. We had two invitations for dinner, and they were both from Brits, so it is kind of an British/American thanksgiving. We'll just have to make do with roasted potatoes instead of mash, but we will bring our own pumpkin pie. Just hope my pastry chef Brit friend brings her mince pies as :angel: :angel: I absolutely love them.

Hugs to you all, Dorothy
 
Hello Sue,
How are you feeling ? I hope your treatments haven't left you feeling to exhausted :) I have been keeping
You in my :angel: I love a light creamy yellow, will be painting laundry room that color, it is my winter
Project :SUNsmile: I hope you & your family have a wonderful Thanksgiving & continue to rest, so you will get
Better.
Sincerely,
Diana :flwrysmile:
P.S.....I haven't started B.B either..... :shrug: just haven't been in the mood.
 
I live in the Finger Lakes Region and it is the most beautiful spot. Hills, green and lakes. Every time my husband and I talk of retiring elsewhere we decide there really is not a more pretty spot. It is rural but there are cities not far away so it suits our desire for farms and quiet and nature and yet have other options. The United States is a huge country and there are many marvelous areas but for me this is just about perfect. I have been in the US since age 9 (born in Poland) but have not been back since.

I do get wanderlust and want to travel more including Europe and plan on it with retirement so can take longer breaks than work allows. I know there are spectacular places everywhere and would like to see them even if the Finger Lakes have been home for about 25 years now. I hope you get to travel as you wish and see some of the places on your list - it is so much fun to see new things and know that home is always waiting.

Sending you positive thoughts as always. Lee:flwrysmile:
 
I know its ruff right now before all the treatment is over and the Cancer is controled. The United States is a beautiful place and when the weather gets better come and see it. By then the treatment will be over and US will be at its beauty in the Spring. Of course our Winter are great too. I love to travel and I did a lot in between treatments of Cancer. I hit a 7 year Anniversary this next month. Take care and do remember we care. Lots of strength coming your way. Tashia
 
Sue,
Glad you are responding to treatment and looking forward to traveling to the US someday. Your new paint in your home sounds so cheerful, I am sure you will enjoy here very much looking out into your garden.
We are celebrating Thanksgiving, this Thursday, then Black Friday when Christmas shopping gets into full swing.
So I will wish you a Happy Thanksgiving, and continued healing.
 
Dabber said:
it's mostly a statistical figure and my general health is quite good and I seem to be responding to the treatment.
Click to expand...

So lots of reasons to be positive. Sue, I've often heard people say that they view life differently when they have an incurable condition. That they take more pleasure in things - often quite simple things. From all your messages I know you are a canny woman. I know you will take pleasure in everything around you, be it for
10 yrs, 15yrs, 20 yrs or whatever - and the truth is nobody really knows.

Having said that, I have always thought that I would die when I was 76. Don't ask me why I think this. I just do. I'll be in trouble if I'm wrong, because I have worked out all my finances to fit in with this timescale. I'll be in a similar position to that chap who made the newspapers some while ago.

He had cancer (bowl cancer if I remember correctly). They gave him a certain time to live. So on that basis he went out and spent every penny he had, having the very best time he could. It then transpired that THEY had got it very wrong. He responded better than THEY thought to the chemo, and to cut a long story short he went into remission and lived way beyond three score years and ten. Instead of being happy, he spent his time trying to sue the NHS. He claimed it was the NHSs fault that he had to spend the rest of his long life as a poor man.
No pleasing some folk <wink>.

You stay strong my friend, the world is full of people who defied the odds. xx Carol:friends:
 
Hi Sue... :bicycle2: Glad you have a some answers and I'm sad about them. :console2: However, your positive spirit and outlook will yield you more time and a greater opportunity for healing. :yes: I know you will try to enjoy life more than any of us who "think" we have all the time in the world. Speaking of which, my son was in an awful car accident on Monday morning. I'm about to post a pic on my page of the his car that he walked away from. GLORY HALLEALUJAH! Every time I say, "he walked away", I let out a shout of praise because the outcome could have been a whole lot different. :bow:

I see you are painting your place in bright colors, it sounds wonderful. I rent and have dungeon off white. lol I'm about to go into my bright place (my kitchen) and continue preparing my Thanksgiving feast. :egypdance: We are celebrating even more now :cheers: because of my son's miraculous survival the other day. :angel:


I really need to get moving, I've been spreading out my cooking over the past few days. My knees are on the rampage, so I'm resting right now. Monday set me back, but I am glad I took him to the Emergency Room, rather than being called my the police to come to the ER. Thank God!

Enjoy your day. :flwrysmile:
 
TKRs get very stroppy about chemo drugs, they do not mix!! I was reading the Lymphoma Association forum and people were talking (a long time ago) about joint pain with chemo and I thought, you tell me!!
I've hardly done any exercise because of the very swollen leg and biopsy and my leg swelling has now gone down sufficiently to see a shrivelled up calf....so I thought, must now walk a little every day or use the exercise bike for 5 mins a day.....that's all I would be able manage with chemo fatigue, so I wobbled and clunked my way round the block. Clunk, clunk.....I managed without a stick though but Dh accompanied me to hold me upright.:umm:
Other than that I'm OK smiling.....the knee is OK really, it bends nicely, it is just a bit sensitive to infiltration of poisons.
I'm going to now pop to Bionic woman2 s thread to read your posts....your son!! Worst nightmare.
 
Sue, Bravo on making it around the block, and with no stick. Thank goodness for hubbies who can help us out. I admire your ability to carry on with such a positive attitude, and can't imagine what the chemo fatigue feels like. Do you get a break in between phases of chemo. I hope you are able to rest comfortably and appreciate your keeping us posted.

Hugs, Dorothy :angel:
 
Wonderful walk, must have cheered you some to be out in the fresh air and hopefully sunshine :SUNsmile:. Lee
 
Sue, I know that having what your going thru is ruff but your spirit will get you thru it. I realized as I was going thru mine stuff all the doctor said it was for the rest of my life but I did show them they were wrong. I also know mine was a difference type of cancer. I believe if you are healty except for that desease I believe that you can make it. Before you know it a year will be gone and then another. I love to garden also. I live in an apartment so I cann't move things around but lots of sun and postive energy is the ticket. What are you going to do for Christmas? I hope that its low energy for this year and next year you can have more fun. The US is really big. When my husband was traferred to New York from Colorado. It took us almost three days to drive it. The same when we had to move from Wisconsin to Arizona. Really longs moves but such wonderful country and so beautiful. You asked about insurance, I do know that it exsits but I can't tell you what it is. A lot of traveling companies have some very good ones. A travel agent would be your best bet to get some idea of what is out there. I know that when I traveled right after being sick I had no problem finding it but do make sure you read all the material and if you don't understand it. Please ask and get the answer written down. I love the internet its so bug free for us humans. :happydance: I meet germs. :heehee: Please make sure you get lots of rest and know its ok to fell down now and then. Its so normal. Take care. Tashia
 
Glad to hear you got out Sue.
It's good that your swelling has gone down and your knee bends nicely now.
Great fighting spirit.
I'm sending you a big hug and a bucket load of admiration,
Toothfairy x :yay: :yes:
 
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