Hi Abby,
So sorry to hear about your trials. It sounds like you have been through a great deal and with little support, it can be a huge challenge. I hope this is the last surgery for a long time!
I have had scar tissue removal but mine was done as an open procedure through the original TKR incision. My issue was missing extension, and the scar tissue had grown behind my knee and into the spacer area, then up behind the knee, around it, etc. it was a mess, took two hours to remove. They replaced the spacer and sewed me back up.
I was advised by many to control swelling and do very little except for gentle stretching, walking heel toe, etc. I was able to get ice all the way around my knee and that helped a lot. I didn't worry much about pt and she was on board with the less is more approach. She did some lymphatic massage and we took it slow.
This was exactly what I needed. I have a tendency to form scar tissue as knows from previous procedures. This slow approach helped my body heal in the way it needed to stop that from happening again. I am over a year out from the procedure, saw my OS about a month ago and he is thrilled with the outcome. I am at 2-3 from full extension and 125 or so for flexion. This gives me the rom I need to do the things I want to do. There is little pain that can't be controlled by OTC drugs. I feel liberated.
Please keep the faith and don't give up. You will get better, but do go slow. I don't know about the growths you mention and the tendency for them to come back, but don't worry about that now. Focus on what you can control and stay in the moment.
And by all means come here for at least a virtual hug and support session. We are always around!
Thanks
Pumpkln for tagging me, you are such a caring person!
Be well and post your updates, I'll be following your string!
Dawn