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Knee Infection 4 surgeries, 2 revisions, 1 staph epi infection

KarriB

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You’re right, they left the hardware in. I am still taking 100mg of doxycycline and see my ID annually for blood work etc.

How much weight are you allowed to put on the spacer?
 

poptarts

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I wish I had words of wisdom for your extremely difficult situation but all I can say is never give up, there is always hope. If you do not mind, I will pray for you.

“It always seems impossible until it’s done.” ―Nelson Mandela
 
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laralealu

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You’re right, they left the hardware in. I am still taking 100mg of doxycycline and see my ID annually for blood work etc.

How much weight are you allowed to put on the spacer?
Full weight bearing with the immobilizer. I was using a walker, but I’m transitioning to a cane. What do you think of that, too soon? Is it normal to remain on a maintenance dose of anti-b’s for so long?
 
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laralealu

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I wish I had words of wisdom for your extremely difficult situation but all I can say is never give up, there is always hope. If you do not mind, I will pray for you.

“It always seems impossible until it’s done.” ―Nelson Mandela
Thank you!
 

KarriB

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My ID seems to think it’s ok. I went to 200mg after the IV and oral protocol, then at about a year she cut it to 100mg. I’m sure it’s not the ideal situation, but so far my labs come back normal on kidney and liver function.

If your OS is ok with transitioning to a cane with full weight and you’re comfortable with it go for it, but the moment there’s pain put the brakes on.
 
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laralealu

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Big news since Friday... I’m done with the immobilizer, hurray! And I started PT at home today. Knocking on wood, things are going well. I’m so grateful for all the support. But I’m nervous, and trying to take things slowly. My fall happened when I was a bit overconfident and stopped focusing. ROM at 100, wow.
 

skigirl

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How frustrating to be dealing with this instead of moving on!! It sounds like you have a really great team---you are fortunate there!! I am glad that Karri is here to help you with this situation.
 

KarriB

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That’s great news! You’re absolutely right, take it slow and easy.
 

PegGar16

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Hi @laralealu. I am also a staph epi and 2 stage revision person :)...There is hope!!! I was just reading through your thread and hopefully add my experiences with what you are going through.

one resident blurted out that I might never achieve a good ROM again
I have great ROM and please don't think that you can't.

I went almost one year with 2 different spacers. The first one I was able to bend and put weight on. There was also the PICC line and Vanco. The PICC line actually makes it so much easier especially with all the blood draws that they have to do with monitoring everything. I found that I was a lot more mobil being able to tuck the Vanco ball in a pocket or even the bra with baggy shirt....I was not stuck in the house because of it.

I know what you mean about so many surgeries in such a short amount of time..it is good that they are trying to save the soft tissue I know it seems like a long time but it will be worth it to have everything go right.

Patience was the hardest thing for me to overcome.

P.S...I also had my mother in-house for quite a while. We were both ready for her to go home...LOL
 

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