Knee Infection* 4 surgeries, 2 revisions, 1 staph epi infection

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laralealu

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I am reading all this with interest and am grateful that you share it all. I am now three weeks into the first stage of the two part revision and finding the brace a necessary nuisance, particularly at night when i cannot seem to get it comfortable to sleep well. I am receiving a gram of teicoplanin intravenously every day which has reduced my CRP to 5 now but I find really it tiring and most afternoons I end up having a doze. I am trying to walk a little on my crutches every day as much as anything to get out of the house and that is ok but the spacer makes a lot of noise clunking and clicking as i move, which is a bit alarming but others on the forum reassure me is ok. Today it seems a very long way indeed to getting finished....its hard to stay positive

Hi Crowwood, hang in there…you are right in the middle of a really challenging time, I found the IV antibiotics to be exhausting. I was definitely napping more than once a day. My spacer experience was a little different as my surgeon implanted a regular prosthesis with temporary cement infused with antibiotics. This was left in place for 1 1/2 years, until the cement failed and then he did a final implant. So I never had to deal with the block spacer, which sounds like “fun”. I would just encourage you to take it easy and be careful, do you have a walker you can use when you are tired? And I understand the urge to get outside, but I imagine it’s pretty messy outside right now, manage your risk appropriately. and finally I would say keep your chin up, it’s hard. It’s also lonely. It could be time for a new hobby or try joining an online book club. It helped my mood when I added some more structure to my days. Home PT, phone calls, organizing drawers, fussing with plants... I made a list of things I could do, creating little islands I could escape to. and reach out here. Good luck friend, you are not alone and you’ll make it through.
 

Catalien45

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I am reading both your posts, @laralealu and @ crowwood..... I am in awe at all you have both, individually, been through! I experienced an infection roughly 5 weeks after my initial surgery. I was in the hospital for 6 days, & had a cleanout surgery there. My Dr feels pretty sure that it was confined to the incision itself, so I consider myself fortunate. And I had excellent care even though the nurses were understaffed & overworked. I feel every patient there was well cared for, & the nurses were caring & compassionate.

I’m still regularly seeing an Infectious Diseases Dr & having blood draw & 3-6 months of oral antibiotics following the PICC line & IV antibiotics for 6 weeks. I found that I felt much better soon after finishing the IV treatment. My ID Dr said that the IV antibiotics can be pretty tough on the body. Sure enough, I started feeling better soon after starting the oral meds. And I faithfully take a good probiotic. But, during that time, I was Very tired, & slept a lot. I just didn’t fight it this time. Multiple surgeries do take a big toll on your body!
And, the. IV antibiotics!

I love @ Laralealu’s idea of “ creating little islands”! I find myself seeing So many things I want to do, so much was sorta “ shelved” while my knee was in such pain from the bone-on-bone. I had good reasons to fight it & put it off . ( admittedly, one aspect of that was being very hard-headed). One very big reason was having our 6 year old grandson with us 2 days each week to help out his parents, both working from home; they would have been totally supportive had I done this sooner, but, I did not want to miss Any of that time.... and, no regrets! He is started in-person school this fall & is thriving. We FaceTime a lot & see them regularly, as much as possible. The delay was definitely worth it to me... and, to him.

But I am doing so much better now. And maybe some of that is due to my making sure that I did listen to my body this time, and rest, any time I needed to. It took a good while, probably 2-3 weeks, and getting on the oral antibiotics. But now I seem to be rebounding. We are walking daily, and doing exercises, both the ones my PT gave me, and some I did before my surgery. You may need a little more time, I think your surgery was more extensive than mine....or, it might happen sooner. I see more & more, on this forum, we are all different. But, we will all get there. Some of us just have more detours along this journey. I find that I regularly am learning new techniques & ideas here. And, a lot of things that were not necessarily covered pre surgery. My Dr is great, & his staff gave me a folder to study, that covered a lot. But there was sooo much I have learned here, and ideas for coping.... and, so much encouragement. And incredible people.

Btw, just re-reading prio posts, & see that I have repeated some things, in an earlier post, my apologies! And, looking at the date of that post, realize just how far I have come since then... encouraging. And I know you will also. And, as one earlier post reminded me, patience can be one of the most difficult tools we’re all having to learn to use. . Thankfully, we have so many helpful folks here. I’ll be keeping you both in my prayers.
 

Crowwood

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Thank you both for your words of encouragement. As an active, outdoors person I have to admit to finding this process very difficult indeed. The cabin fever can be dreadful some days....... but great to know I am not alone. Very best wishes from the UK.
 

Starsfan22

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Cabin fever you say? I was and still am, confined since Oct. 1st, when I had my spacer surgically inserted. After IV antiobiotics I was able to get the knee replacement. So it's been a long haul. Suddenly I can get out and Mr. Omnicron shows his ugly self. Notice he is a male cabin fever is hot at my house but I'm determined to get out and about and live my life!
 

Crowwood

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Hey. I am jealous ! so good to hear you can leave the cabin !! I noticed you had to wait near enough 8 weeks between stage one and stage two. I am nearly a month today living with my spacer and brace. I am hoping my stage two will happen no later than yours did. Here our wonderful NHS is badly affected by Omicron and many hospitals are suffering staff absences which is delaying lots of surgery. I am keeping my fingers crossed for my second operation to be on schedule at the start of March. Best wishes........
 

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