- Dec 30, 2018
- New York
- United States
I am reading all this with interest and am grateful that you share it all. I am now three weeks into the first stage of the two part revision and finding the brace a necessary nuisance, particularly at night when i cannot seem to get it comfortable to sleep well. I am receiving a gram of teicoplanin intravenously every day which has reduced my CRP to 5 now but I find really it tiring and most afternoons I end up having a doze. I am trying to walk a little on my crutches every day as much as anything to get out of the house and that is ok but the spacer makes a lot of noise clunking and clicking as i move, which is a bit alarming but others on the forum reassure me is ok. Today it seems a very long way indeed to getting finished....its hard to stay positive
Hi Crowwood, hang in there…you are right in the middle of a really challenging time, I found the IV antibiotics to be exhausting. I was definitely napping more than once a day. My spacer experience was a little different as my surgeon implanted a regular prosthesis with temporary cement infused with antibiotics. This was left in place for 1 1/2 years, until the cement failed and then he did a final implant. So I never had to deal with the block spacer, which sounds like “fun”. I would just encourage you to take it easy and be careful, do you have a walker you can use when you are tired? And I understand the urge to get outside, but I imagine it’s pretty messy outside right now, manage your risk appropriately. and finally I would say keep your chin up, it’s hard. It’s also lonely. It could be time for a new hobby or try joining an online book club. It helped my mood when I added some more structure to my days. Home PT, phone calls, organizing drawers, fussing with plants... I made a list of things I could do, creating little islands I could escape to. and reach out here. Good luck friend, you are not alone and you’ll make it through.