Hi,
@shelli22 . First off, I have to say, I'm not a "dog person" but your puppies really are cute-especially the second one!
Anyway, I've been reading the last part of your thread from about 2016-ish and on. Your recovery is so similar to mine it's almost scary....or at least eerie.
I too, have had nothing but problems in the almost 4 years since my TKR. I did have the metal allergy testing at the Chicago lab and I am reactive to nickel as we suspected. I have had non-stop pain of varying levels since about 6 months or so after the TKR (some of the pain and swelling before that may have been partly due to whatever has been going on in there, but it does take a year to heal so some of the pain and swelling was due to healing) that had been getting better at the very beginning but then did a 180 and started going downhill. My knee has been badly swollen the entire 4 years also. It matches the "huge" picture from Josephine.
I swallowed my pride and have been using a cane again lately but my life is basically restricted, at best. I do try to go and do some things regardless, but some things, like riding my bike, taking stairs like an adult, long walks, swimming, etc. are just not possible. And when I do do things I pay for them later.
I would have already had a revision except for the really, really bad reactions I have to pain meds. I scared the wits out of my OS one time-he saw one of the reactions I was having and told me later he thought I was going to die.
But I am having the revision this April because, as my OS says, at some point we just have to bite the bullet and do it (he would do it sooner but we are in the middle of a bad flu season and he wants me nowhere near the hospital until it's over). We have worked out a complicated pain management plan that will hopefully do the trick (although it includes a longer than usual hospital stay....grrrrrrrrrrrr), and with my crazy body there are no guarantees; plus he is using a gold knee so the allergy problem is taken care of.
I've also had a couple of smaller surgeries since the TKR like you, plus all the same tests for infection, which were negative. All this to say, we are very similar, and I really understand what you are going through and I am so sorry you have to go through it all.
I'm glad you are getting things taken care of and I wish you all the best. I plan to follow you as you go through it all to see how you do.