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Revision TKR Would like advice please, I think knee has moved

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I take it they tested your knee aspirate - ??

You and I do indeed have similar symptoms except I don't have the pain. The effusion seems to be the cause of your stiffness. I wish I could have a drain installed! Any idea when your 2nd opinion gets scheduled?
 
Aspirate came back negative to all tests. Rheumy asked for extra tests on it, I don't know what, but still negative. I wish they would put a drain in as well. I struggled with the bend after the original TKR. Physio gave up because too much pain. Hydrotherapy gave up again because of the pain. I used to have hot baths at home and try and bend and straighten it under the water. I could bend it when I got out of the water but would loose the bend soon afterwards. I got up to 90 degrees doing this but it wasn't sustainable. After the revision/synovectomy the bend got easier but is not good now. I have one leg longer than the other, good leg shorter. After getting a heel lift last autumn my extension got better.

I've been thinking about asking for Low Dose Naltrexone for inflammation. I used a sister drug Nalaxone with Oxycodine (Targinact) for pain relief and stopped about 4 months ago. It didn't work for pain relief. After I stopped it I noticed that the inflammation increased. I can't take NSAIDS. I struggle with pain meds. Morphine does not work. I can't take Oxycodine by itself. Tramadol helps my other pain but not knee pain. I can only tolerate IV paracetamol not oral or rectal. I've tried patches and TENS machine.

The GP's secretary is on with the referal, I just have to wait...
 
Yikes! That's a lot of things that haven't gone right, or do not go right for you. How challenging. Definitely calls for an expert surgeon.
 
Staph infections present the same way. The only difference between staph and MRSA, is that MRSA is resistant to a lot of antibotics. I really hope you don't have either type of infection, but if you do, they can get rid of them!
 
If my CRP and ESR levels are always normal on the blood tests, which they are, would that rule out a Staph or MRSA infection?
 
Just rang Wrightington enquiring about waiting times. Currently 8 to 11 weeks for Peter Kay. He is only doing one outpatient clinic a month. Robert Smith is not doing knees at the moment. Long long wait.................
 
Darn, such a long wait! But better to be waiting for a good surgeon.

My son has been having neurological symptoms since last Fall. He still has no diagnosis, and when he gets an appointment, it's months before he's seen. So we've learned not to expect much.
 
There is debate about the existence of low grade infections in TKRs. The CRP is a reliable marker for infection but it's not 100%. I think I had asked you previously whether you'd been tested for Lyme . . . ?
 
I've been reading Cyrano's post on 'Ups and downs after 7 weeks' this afternoon, particularly Josephine's reply about the mantras and crucial articles.

The information is the opposite to what I was given. If only I knew about it after surgery. The physio was very aggressive with my knee being forced to bend and straighten. The pain was unbearable and I didn't make much progress. Now I know why! Eventually they gave up on me, both physio and hydrotherapy. It took 6 months to see the surgeon after the original op.
 
maryo52

Sorry to hear about your son. It's hard when you don't get any answers.
 
Thank you. He is hoping his MRI tomorrow will yield answers . . . knowing that none of the answers will be good news.
 
maryo52

Thinking of you and your son today
 
I have been chasing up the referral. Apparently it went this Monday. Wrightington haven't received it as yet but quoted they are booked up to the end of September when I rang this morning.

I'm still struggling with insect bites. I got 2 more large ones last Saturday. They still itch. The antibiotics have got rid of the inflammation around the first one with a little help from a topical corticosteroid cream but the other 2 are still a little inflammed. I get cellulitis from the bites. Doing some research about cellulitis from insect bites I came up with a staph infection maybe being the cause. Could it be the knee and the bites inflammation are linked and are caused by a staph infection?
 
I have been away for a weeks holiday last week. I chased up the referral first thing Monday morning as I still haven't got an appointment through. Wrightington received it on the 25th July and its with Peter Kay at the moment. Still 8 to 11 weeks waiting list.

My knee has got pregressively worse from last Wednesday, even hurting at rest and elevated at times. Any twisting puts the pain level right up. Swelling as bad as ever. I'm loosing ROM, now less than 90, I think it is the inflammation that is doing it.

Had follow up with Rheumy yesterday. He is still very concerned. When I told him about wait for 2nd opinion he said he was going to write to GP to try and speed it up. He doesn't want me to take any more antibiotics until he has contacted the Micro Biologist at the hospital. He's thinking that I need to be on them all the time and not starting and stopping them as at present or they will stop working. He even considered another white blood cell scan but decided not to. Had a temperature of 38.2 degrees yesterday but down today. This keeps happening.

So I'm a little down today and trying to be as positive as I can be. I'm really glad I bought a mobility scooter a few weeks ago, at least I can get around without putting much weight on the bad knee. My arms and shoulders ache from being on crutches for over 3 years. I also have carpal tunnel syndrome which they won't do anything about until my knee is fixed. I'm having a flair up of my Fibromyalgia. All trigger points were positive yesterday.

I have real problems with pain relief. Tapentadol was suggested yesterday but when I looked up drug interactions and side effects it isn't a goer.
 
Hello,

Just saw you on Lanie's thread! I have had a time with my knee as well, but Dr. Maale took care of it! :happydance:

I wish you lived in the states and I would get you in! They know my voice before I even say my name now! LOL

I wish you much success in finding a great revisionist that will take you seriously! Has Jo talked to you? She knows most of the revisionists in the UK. :wink:
 
Got an appointment through today to see Mr Kay on the 25 September. Almost 6 weeks to wait still. My knee is getting worse, the swelling, pain and warmth. I'm spending most of my time with it elevated. Painkillers not working. Even hurts laying still in bed. Girth around my knee cap has increased by about 2 cm since earlier this year. It has started to swell below my knee which is new. GP is on holiday until next week. I have an appointment on Monday with her. Had no reply from micro biologist yet.
 
What other symptoms are you experiencing? Anything like emotions running wild, headaches, aching tired, fatigue deep down, losing the ability to care about how you feel etc?

I have had a lot of experience (unfortunately unwanted) but experience anyway, with 8 total rounds of MRSA, so I know how an infection can drag you down. I pray in your case that it isn't an infection but something a lot more simple! :angel:
 
RestAssured Thank you.

The answer is yes to your questions. I'm feeling exhausted all the time. Not sleeping above a couple of hours at one time, trouble getting to sleep. Lethargic, not much interest in anything, just managing what I have to do. My hobbies lay untouched. Don't want to watch TV. I thought it was depression setting in. I ache all over, but I do have fibromyalgia. It feels like a massive flare up. I'm walking as little as possible. Just sitting/laying with my knee elevated as much as possible. Hope to get some joy on Monday from GP. I'm at a loss for painkillers as I've tried most and been through pain management. Lets hope the microbiologist has come up with something. If I take antibiotics I feel so much better, then I start to go downhill a few days to a week after the course is finished.

Take care and have a great vacation. I had a week away at the end of July and although I wasn't very active it did me the world of good. My scooter got very good use.
 
Please call your Microbiologist! It sounds like they need to put a rush on things and for heavens sake get you back on antibiotics! Pain pills didn't touch the pain! The antibiotic the on call surgeon had me on was too weak! I suffered for 5 excruciating days! They need to get you fixed up ASAP, if this is an infection! Please stay on the phone until the microbiologist gives you answers! I will be praying for you!
 
RestAssured

I can't do anything until Monday morning when I see the GP. It was my Rheumy who was getting in touch with the Microbiologist for a recommendation and then get in touch with my GP to prescribe. He was also going to get in touch with the GP to try and bring my appointment with the new orthopedic consultant forward. The Rheumy is the most helpful doctor I have and is concerned about my knee.

I should be copied in on the GPs letter and I haven't received anything yet. I've managed so far so and hopefully be alright until Monday. The GP should be able to do something then.
 
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