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THR Pain developed after 14 months<

Jaycey

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Each post has a number. It's located at the very bottom of the post. But if you are using a phone to access the forum you might not see it.

I've replied to your PM.
 
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Sunnysept

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It’s me again. Latest update.
My psoas pain is still pain and restricting my movement but I’m now being troubled by a lot more pain on the side of my leg, near the trochanter. Psoas pain affects walking up hills, leg lifting into car and dressing etc and steep steps. Unfortunately the latest pain, which started in about March of this year, is now bothering me walking on the flat and is overtaking the pain from my psoas.
I initially thought this side of hip pain was trochanteric bursitis as I do have a little bursitis there. However, I went to a physio today who is trained in ultrasound and he had a close look at all the tissues in that area. He found a distinct thickening of the ITB, so much so it feels like a little fat pad when massaging the area. Lower than the trochanter in location, no fluid present there. It’s certinly the area that hurts when I’m walking and tender to the touch.
My question is, what can I do about this? Really what I need is a consultant who specialises in the tendons and tissues and not just the joint mechanics and who really understands the area holistically. It may be that the psoas issues have caused this or my tight ITB (was pinging within days of my original thr) May have caused the psoas - who knows? But I’m worried if one area is focussed on without a whole hip approach then I’ll never get right. I certainly can’t cope with this level of pain and lack of range of movement until my hip is ready to be revised.
Does anyone know who in the country (UK) preferably Birmingham, London, Bristol, Oxford, Coventry etc that I could go to see who thinks in a whole hip way and not just “lets try this, and let’s try that “in isolation?
Any other ideas? Is there anything I can do for myself to break down this scar tissue ? Just fed up. I see all these people, friends etc who have their hips replaced who have a new lease of life and I’m going backwards fast. Soon I won’t be anymore mobile than I was before my replacement. @Josephine do you have any insight or suggestions as to who I can see or what I can do? I have saved some money so I can get a third opinion privately. Thank you so much in advance.
 

Layla

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Hi @Sunnysept
I'm really sorry you're still struggling with pain. Josephine is away from the forum recovering from knee revision surgery and won't be back for several weeks. I'll tag @Jamie for you and also @Jaycey who resides in the U.K. and see if either of them have advice or possible contacts for you to pursue.
Hopefully it will be first steps in finding the help and relief you deserve. Wishing you comfort and a pleasant weekend.
 

Jws.

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@Sunnysept , ....I am 3 weeks post psoas release/tenotomy and trochanteric bursectomy . Prior to the release I had groin pain, difficulty getting in and out of car, (car sign), and walking was becoming progressively worse. I felt despondent as hell as I was 15 months post thr and increasingly getting worse not better. I had done PT (extensive) (never helped), had the psoas shot with cortisone (helped two days), and quite frankly was at the end of my rope.In fact i was miserable. I researched the hell out of google, seen at least 15 OS's , pain management docs, etc. -nothing! My prosthetic was fine on xray, no infection , no loosening, so since this was a soft tissue problem the OS;s couldn't and wouldn;t help....
I finally googled tenotomy, and read the posts here especiallt @SaraK and @Josephine (clear,concise and direct) and knew I wasn't going to get any better unless I took action and got the release.
I had docs and PT's that would tell me that I would end up with permanent weakness in my operative leg and why would you risk that.
Well it's just NOT true. I had weakness ONE DAY post op and then my strength in the leg started coming immediately back. By the second or third day I was close to normal again.
The end result I am still waiting for, as I am only three weeks and can't yet see all the improvements. I can get in and out of cars, I walk better with no pain (most of the time), ..basically I look to being pain free when the " surgical pain" all heals. I don't have any significant pain .
I can tell you the surgery was easy, the rehab is relatively easy and other than a revision which for me would have been a nightmare...this was a simple solution. You should find a doc who has done a number of releases as it's important. In addition I absolutely do NOT recommend this surgery being done "OPEN" as there are the possibility of too many complications.
I can tell you , I am at least out of that horrible funk of emotionally losing hope and am on the other side of having hope...EMOTIONALLY, it is like night and day! and a lifesaver. I know the heartache involved and I am more than willing to answer any questions you may have. Josephine I am hoping you are well with your knee surgery and will be back here soon.
 
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Sunnysept

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Thank you so much for this message of hope. I wish it was easier to find surgeons in the UK who do lots of these procedures . I really don’t know where to go next .
 
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Jamie

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Sunny, Jaycey may have some guidance for you as she is in the UK herself. Sometimes you have to do quite a bit of research for these specialized problems, as Jws. indicated he did. That means search for a Center of Excellence near you, make some phone calls and start asking questions about doctors who have dealt with this type of problem. That's pretty much what you have to do in the US as well. Keep looking and don't give up!
 

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