THR Butterfly Flutters Over

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Are the TEDs critical to wear? Doesn't seem like a very good thing if they cut off circulation at knee.
And quite right too!

There is mounting evidence that they don't do what's 'written on the tin' but surgeons still keep using them! It's estimated that the NHS(UK) could save around £1.5million a year if they quit using them!

Personally, I also had issues with them cutting in and on day 4 decided for myself that the tourniquet effect was more of a hazard than being without them, so off they came! There was a bit of a kerfuffle on the ward about it but no-one said anything and then my surgeon turned up and sat on a chair to chat with me - which he'd never done before - and asked me how things were and so on. The TEDs were laying on the end of the bed and I could see he looked at them but he never said a word and neither did I! End of kerfuffle! :heehee:
 
Hi, Butterfly ... I'm very sorry I haven't logged on for a few days and didn't see your "S.O.S" about the bloated leg. It looks like Josephine has come to the rescue with sane advice. As I think I might have told you, I was able to contact my surgeon's office via emails and phone calls. (I hope you have this option, too, as it was a life-saver for me.) I looked up some old emails between me and the surgeon's nurse and had to laugh at the "memories." I was wanting to see what I could find about my swollen leg. Here is what I wrote NINE days after surgery:

I got a tape measure and measured my elephantine-size ankle and leg. Frightening. It looks like a balloon all blown up. Hideous.

I don't remember when it finally went down in size, but that's the last I wrote about it. It was always better in the a.m., when I first woke up, and at its worst when I went to bed at night.

I also saw where the PT who was making home visits didn't allow me to leave the apartment building and go out onto the sidewalk for two whole weeks, and I had to go with her the first time. The entrance to my building is on a street that goes downhill somewhat and she was worried about that. She also worried about me taking the walker into the elevator. I can't believe I'd forgotten how housebound I was for so long.

I hope you are feeling a little better about things. This is all so foreign. It's not just the pain. It's the restrictions and awkwardness.

Please don't talk about yourself as a worrywart. EVERYONE worries about this stuff. How could they not? They all do, trust me. And it's understandable.

On a lighter note, I could completely relate to what you've written about the home nurse and PT. I actually did tell off the nurse on his first visit. He was supposed to come the day after I got released, but instead showed up maybe as soon as an hour after I first got home. We tried to reschdule him for the next day, but he would NOT change his course. And he and the PT would never, ever commit to a solid time for their visits. It was always a "range" and sometimes they didn't show up, or would call at the last minute to reschedule. I was told that this is standard operating procedure for most of these agency employees. No choice but to sit around all day and wonder when they'd come.

Anyway, back to this nurse. He was a real piece of work. On that first day I got home, when I was shaky and not turning cartwheels, he immediately pounced on me, by telling me I'd purchased the "wrong" walker (it was the hospital's PT staff who picked out the walker for me in the first place). He said I should have bought one with a seat on it, since I would be taking it out on the streets the very next week and taking it on the bus or subway, to go to outpatient PT. I was just horrified at this notion and questioned him about it, telling him there was no way I'd be able to go on a subway or bus as soon as the very next week. He was very taken aback and kept insisting I'd feel like a million bucks the very next week, able to go out and about, etc. I don't think he was used to someone challenging him. Anyway, the PT visited me the next day and she said he was wrong to tell me all of that. And she didn't even release me to start going on the city busses for I think a month.

This nurse had all kinds of wacky topics. He kept pestering me about a low-sodium diet, even though I don't have high blood pressure. Then he pestered me for not having track lighting. And he pestered my cousin about building bookshelves on my walls. Mr. Home Decorator. He had all kinds of pronouncements. He created a big problem for me regarding my bandage, too, which I will save for another time (stay tuned for the next installment).

I too was very embarrassed to have him and the PT see my small, crowded, messy apartment. But I just had to say, to hell with it, they'll think what they think. And it turned out they said they'd seen much worse. In fact, my PT asked to use my bathroom, and she said she doesn't frequently want to ask to use a patient's bathroom because she'd seen such horribly dirty ones. So that made me feel pretty good. Because my bathroom was not "so clean you can eat off the floor."

The nurse, for all of the trauma and drama he created, was at least useful for checking my BP, which was important, and checking my elephantine leg. And he had a great digital camera, so he could take photos of my scar for me to email to my surgeon's nurse since my skin developed irritation from the bandage and they wanted to monitor it. He also provided great comic relief, as my cousin who was staying with me for the first few days and I made (still make) lots of jokes about all the dopey things he said to us.

The PT was really delightful, and was very helpful about "occupational therapy" things; helped me determine right off the bat that it would be a waste of money to buy a shower seat since my tub is so old and oddly shaped. Also, it's too high for me to have put my operated leg over it to stand inside it and take a shower, so she immediately just told me to forget all that and take sponge baths standing at the sink. She then taught me a simple exercise to strengthen my leg and after a couple of weeks, I think it was, I got my leg over the tub! She helped reassure me when I thought I was violating a restriction and she was just a good egg to come by and check on me. I was grateful to her. She didn't put me through the wringer regarding PT exercises; though she did show me many and made suggestions for how to modify everyday activities. She was by my side practicing stairway steps and walking on the street and monitored my gait and gave helpful feedback.

I hope things have sorted out okay with your at-home people. I think it's luck of the draw if you get good ones or not. Try not to let them stress you out. They are temporary visitors and you don't have to obey them. In fact, make sure you verify anything they say that doesn't seem right by running it by your surgeon.

I hope you are feeling a little better. I admire how brave you are, scheduling your next hip for November.
You hang in there, okay? Just remember, it's really a wacky ride on the wild side, this recovery thing. But all the twists and turns really are universal for all of us.
 
@ peaches Thank you so much for writing me. I saw your earlier post and thought "how will I manage if Peaches leaves the forum?" You've always been so down to earth and helpful to me and have understand where I am coming from. Maybe it is because we both live alone and HAVE to figure out how we are going to do things.
I so appreciate your guidance and kindness. Thank you for the words about your leg. It tells me that I am not the only one this has ever happened to and has eased my worry. The first thing I always think when something strange happens is "Oh my God, I'm, going to die! I've got a blood clot or some dread infection and will have to be having surgery for the rest of my life." Not, oh, this is probably normal.

I am doing OK -- I've just hit the post op blues or something. Everything is just so complicated anymore when I can't do the smallest errand or anything for yourself. Right now I am trying to figure out how to get my dot to the vet -- she has chewed on herself and opened up a big awful place on her hip. I can't just let her suffer, but I cannot take her myself and I don't want to have to ask my DIL to do that -- she has so much on her plate to do for me already. I'm going to call the vet i the AM and see if she can prescribe something I can put on it. I think she is going to need a medicated bath, though. Oh well, I'll get it figured out.

The only reason I am doing the other one on the 4th is that it it just as bad as the other one and I just want this over with. I also won't have to repeat a bunch of the pre-op stuff and that will save time, frustration, worry and money. I just want this over with. Like you, I am just so sick of it all. It is mostly my fault that it has, because I procrastinated and procrastinated for years because I was scared, and because I wanted to keep on working as long as I could.

That PT person was OK, I guess -- I just wish they would find a way to ask the questions they ask that isn't so offensive. She asked my DIL, not me, if I was able to read my pill bottles and understand my medication schedule. And I was right there in the room! Just because I have grey hair and am over 65 does not make me senile or stupid. And a bunch of stuff like that -- I finally had to say "HEY --I AM RIGHT HERE IN THE ROOM; talk to ME.:" I am tired of feeling invisible because I am old. She also asked me about 13 times if I were incontinent. Again, just because I have grey hair . . . . I came very close to using some of Glynis' oft-mentioned colorful language, but I didn't.

Oh well, I will get through this, because I HAVE to. I cannot live with the pain. And I need to get on with my life. Do some volunteer work or something.

I wish I could communicate with my OS office by e-mail or even effectively by phone, but they don't do patient e-mail and OS has this unsympathetic CRAB that takes his calls. I feel like I could point out to her that perhaps she could manage a "good morning" once in a while. Perhaps I will point it out to the surgeon once this is over with.

Love to you, and please don't leave the forum!

Milli
 
glynis Hi. What's going on with you? Done anything fun lately? No more falling out of airplanes, I hope!

Peace and love,

Milli
 
Hi Butterfly

I'm fine, thank you. Yesterday I wrote you a long reply, filled with profound thoughts and brilliant witticisms. It would have brought you tears of joy, and bright sparkling laughter, as you read my exquisite prose. As it turned out, I'll never have to justify that critique of my own work, because when I pressed Post Reply the whole thing just dissolved into dust and disappeared. Perhaps it was just too lovely for the site. (Or perhaps not...)

Anyway, it was just to say that I'm glad things are going pretty well for you overall, despite a few hiccups. Take it slowly, give it time... all those sorts of things.

I smile every time I think of that idiotic woman who was so determined to get the answer she really wanted, when she persistently asked you if you were incontinent. When she asked for the 13th time you should have said: "Why? Are you?"

We've all met these annoying "professionals", with their useless "advice". Sometimes I wonder if they really are trying, in their own ways, to be helpful, but just keep sort of messing it up, somehow. I bet you they've all been on more in-depth training courses than we've had hot dinners. But I reckon there's one thing that can't be either taught or learnt, and that is Common Sense.

Next week we are going on a cruise with some US friends, from Texas. Looking forward to that. After the cruise we're staying on for a while in France, so I won't be around for a while. I'll check in to see how you're getting on when I get back. (Such a pity you and the GoshCruise party couldn't join us.)

All the best.

Glynis
 
glynis I've had that dissolving message problem too. Wonder where they go?

WOW, a cruise and then France! You do get around! Right about now, I'd settle for a short shopping trip to the local mall, just to DO something. I liked France, but more so the countryside than the big cities Paris was dazzling, of course, especially the cathedral.

I'm doing better, and my swelling is decreasing. I think the problem was, as many on here have said, that I was up too much ("up" includes sitting at my computer) so I am spending more time elevating the leg. The swelling is down a lot today (almost hate to say that out loud, for fear it will jinx it). SO, I have more weeks of elevating. Hope I don't run out of Netflix before the time is over.

I think the trouble with a lot of those visiting healthcare types is they have some kind of stereotype of older people that says if you have grey hair you are falling apart -- thus you must be senile and incontinent (and incompetent). Somebody should give them the big newsflash that a lot of older people function just fine and carry on full lives -- even run big corporations and governments! We are not all sitting in a corner of a nursing home drooling. I just resent the assumptions they make -- can I read my prescription bottles? Of course I can! Good grief! One of them seemed quite astonished that I knew about the internet. I'm only 67, not 106.

Oh well,enough of my soapbox. I hope you have a wonderful time on your trip, and please stay in touch. By the time you get back I'll probably have the other hip done and have found something new to worry about about that recovery.

Peace and love,

Milli
 
Greetings, Milli. Just thought I'd stop by and say 'hi'. You sound like you're doing better, yes? I agree with your rant about the treatment of older people (like us). I remember when my mom was ill (in her early 70s & had all her marbles), how annoyed she became when certain insensitive medical personnel addressed their comments to ME -- not her!! Very disrespectful and insulting. Now that I'm at almost that age, I'm on my guard. Hmpf!!!

Anyway, hope you're on the mend and basically making progress. I did see an OS and was favorably impressed and encouraged. Now all I've gotta do is say WHEN -- my choice. Will do anterior with robotic MAKOplasty. Stay strong... You've already inspired me.
 
Hi, there, Butterfly ... so the swelling has gone down! Woo-hoo! You are right that "being up too much" can mean just sitting in a chair for too long. At your stage--actually, at my stage, too, and I'm an old lady at six months out--you have to mix it up: you can't sit, lie down, or stand for too long. I THINK one of Josephine's rules for the early days is something like this: "Don't stand when you can sit; don't sit when you can lie down." Well, something like that.

These early days you are not only getting accustomed to your new hip and the absence of the old hip and how it affected your life. You are also dealing with POST SURGERY life. AND those weird restrictions. So it's a triple whammy. That's a lot. It shakes your world up. And your world was already all shook up for who knows how long, thanks to the bum hip, needing a walker, suddenly retiring. So give yourself not only a break, but a huge pat on the back. You've done so well ... you really have! I know your story has inspired others.

Oh, and the post-op blues. Yes yes yes. We all it seems go through that. I weeped a lot. I mean a lot. Mostly so scared of "what if" since I'm alone. The logistics blues. But then the murky blues, where you aren't sure why you are blue. I think I was really blue when I got released from the OS at six weeks and he said don't come back for a year unless you have issues. I felt abandoned or something. Kind of missed being "in the system" and being an "active patient."

I'm very sorry your OS's office doesn't offer the email option. Are you sure about that? Is The Crab a receptionist/secretary type and is she the only entryway toward speaking with him? Or does he have a Physician's Assistant or nurse you could contact? I think this is something the OS doesn't broadcast loudly, but surely it's worth asking him about. Those crazy visiting nurses can't be your only source.

I didn't have quite the problem you did with the "visitors from hell" asking my cousin if I could read my prescription bottles. But I think that's because she took a bit of a back seat and let me do the driving. I don't quite remember. But I got a ton of unsolicited commentary and tips from the visiting nurse that were unhelpful, a time suck, and sometimes unnecessarily alarming.

I'm very sorry about your dog! What happened? How is she doing now?

Keep us posted and if you can, try to use your milestones--like the deflation of your leg--as encouragement. Much if not all of this stuff that happens is talked about by Josephine and her BoneSmarts ... it's just part of "the process." Have a good day.
 
Peaches As always, thanks for your kind and supportive note. You always manage to cheer me up -- a kindred spirit, I feel.

My dog is a lot better. She has serious skin issues that can become life threatening with secondary infections. My vet (a lovely woman whom I've been seeing for I don't know how long -- near 30 years, I imagine -- with my long assortment of big black doggies) put up a scrip for Emily (my dog) and my DIL picked it up. It is working very well and the big red weepy bloody place is drying out and not spreading, So I believe Emily is on the mend. She goes out and wallers (my mother's word for rolling around in) the dirt. If she gets a bug bite or something she will dig at it and dig at it until it is open and raw and spreading. That's how the mess starts. So I have to watch her skin carefully. A couple years ago I almost lost her to secondary skin stuff that just wouldn't clear up. Finally the vet found something that helped,but it doesn't always. Anyway, I believe she is healing up fine.

I like your description of the blues. I think I have a combination of the what if blues and the murky blues. Mostly the murky ones. Not enough to occupy my mind. I'm used to being very active and while working I dealt with multiple crises on a daily basis. Now my biggest crisis is what to watch on Netflix. My brain is going to mush. As soon as I am able I am going to get involved in some kind of volunteer work, hopefully involving dogs.

Unfortunately, the Crab is the only gateway to the surgeon or his PA, and there is NO WAY you are going to get past her. Honestly, if the surgeon wasn't so good, I would go elsewhere just because of her.

I am busily counting my blessings, and SO grateful the fat leg and foot went down. I go back to see the surgeon on Tuesday, for a post op check up and to discuss the upcoming Nov. 4 surgery. Just cant wait till all of this is behind me.

Love, and thanks again for the nice post.

Milli
 
Bionic woman2 Well, after the 4th of November (2nd hip), save me a place on the dance floor!

Hope you are doing well and not wrecking scooter carts into anyone in Home Depot!

Peace and love to you.
 
Hi Butterfly! How is everything going? Your second hip is coming up fast!
 
HaHA! Butterfly, I just told my son that I'm almost 5 weeks out on my new knee and I haven't done anything stupid yet. :headbang: I do have a birthday coming up, so that's subject to change. :happydance:

I will save you a spot my lady. :cheers2: You're gonna be doing the Merengue! Work those hips girl! :egypdance:
 
Never done the Merengue -- you will have to teach me. Hope it involves much hip swinging and leg showing HA! Can I wear a flirty skirt?

I'm almost three weeks out and haven't done anything VERY stupid. Have a fun birthday -- mine isn't till March, so maybe I'll be ready to do something WILD and REALLY STUPID (just as long as it doesn't involve incarceration or personal injury).

Peace and love to you. Hope you are doing well.
 
Hey Butterfly. Sorry I've been missing in recovery. Lol :heehee: :heehee: :heehee:

You sound like you are going really well...I can't believe your second hip is under a few weeks away. Time flys??!!??

It sounds like your gorgeous labs have hot spots. These are usually caused by the animals coat not drying properly after being wet...ie after swimming or bathing especially in the hot weather. The I dried hair / skin becomes itchy...the dog licks and bites the area usually brining through the skin because its so itchy which the introduces a bacterial infection which requires shaving and cleaning the area, antibiotics and cream. Very common in labs and golden retrievers

Hope they are better soon....you too :wink:
 
Good Monday morn Butterfly.I see that youve come to the point where you.re biggest crises is what to watch on netflix.Atta girl.That means youve graduated from worrying to much about your new hip issues,see we told you everything was going to be ok.So your new hip is approaching four weeks out?Hugh sounds like your juuuust about ready for round 2.Just when youve got a handle on this one you'll be thrown back into the meat grinder.But now you know your way tougher than even you thought.WOW am I proud of you.Your doing incredible.There were some pretty tough days though yes?It was all basic training for hip #2.Very soon this will all be a distant memory and you will long for the adventure this has been.It sure did break up the monotony of existance.Love ya Milli.Keep on keepin on.Peace.
 
Yes you can wear your "flirty skirt" it goes along perfectly with the Merengue, since it's a dance which is ALL ABOUT the Hips! :egypdance: So start shopping around now! :wink:

Take it easy like a Hippie! :flwrysmile: (By the way, I just made that up, but you can use it free of charge. :loll: )
 
You might want to use a bit of caution swinging those hips around. I was feeling pretty sassy after my first surgery a few months down the road and was dancing around. One quick movement I made was not a good one. I quickly put that one down to a mistake and have avoided it since! Just saying. . .
 
Hi, Butterfly ... how are you? where are you? I cannot believe you've past the first month mark. Isn't it amazing how far you've come? And you're talking about dancing and flirty skirts, etc. For some crazy reason I keep wishing I could go to a sixties theme party and do The Twist. Maybe my next email bugging my OS and his staff will be "When can I go to a sixties theme party and do The Twist?" They are so young, they possibly won't know really what The Twist is, much less have done it themselves. But I digress. Really, please do let us know how you are doing. We will be here for you for Hip Number Two. I'm sure many of us are already getting those music videos ready to go to put on your thread. Take care, dear Butterfly. (And if you are worrying a little, or a lot, don't worry about worrying: I mean, try not to, of course. But don't take yourself to task for worrying. EVERYONE worries about this surgery. It's normal and natural.)
 
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