TKR STILL not doing good....

[maryo52]

Pamo, I am a nurse, and what you're describing I've seen. It makes me so mad.

So a couple of words of advice. One is to try to craft how you present yourself with as little emotion as possible. Imagine yourself to be some brilliant scientist who scientifically describes their symptoms. The doctor's offices do see their share of drama queens and they may have made the mistake of seeing you as one of those, or perhaps as a "head case" (which happened to my son this year).

Secondly, in my previous post I mentioned a drug, pregabalin a/k/a Lyrica. I wonder if you have given that serious thought. It helps with nerve pain, with sleep, and and even with anxiety in addition to fibromyalgia, which is one of its labeled uses. It very well could lower your pain level significantly although it is not a pain drug.

Thirdly, is it possible for you to find a more fibromyalgia-friendly GP? There are medical people out there who think of fibromyalgia as a problem-patient disease rather than a valid disease. The scenario you're describing is ridiculous but if you are persistent, and as I mention, stick with an analytical manner, I'm hoping you can make some headway toward getting proper pain management.

 

[kneeper]

^Good ideas maryo52. My rheumatologist said lyrica works well for a lot of people. Regular pain killers are often of minimal help with fibro. There are various approaches. Do you have a rheumatologist pamo? That's who diagnosed me. I know rheumys should be well informed about it. Some (not all) GPs don't understand it and what they don't understand they dismiss. :(

 

[pamo]

ok 10 weeks out , my leg is on fire! it burns so bad (why) and doc will not do anything

 

[bettysgone-Sept-5-2013]

I'm guessing that by 'On fire' you mean painful. Is that correc?
I've had shin pain in both legs 3 times since TKR sept.5, 2013. When it got really cold here (yes, Houston can get cold) both legs hurt. I put my giant heating pad on them and hope it goes away. It isn't horrible pain but very noticeable.
Someone knowledgable will be along soon to help you.
Take care. I hope you get relief soon. My bone pain lasted 3-14 days and went away.
Betty

 

[pdx]

Is this new? Is it constant? Does icing & elevating your leg help?
Is your calf swollen and hot? Is there any kind of knot in your calf? If either is true, go to the ER.
Is the heat concentrated along your incision? Is that red and swollen? Does it look like the incision is pulling apart?
Are you running a fever? If so, you may -- may -- have an infection. Call your regular doctor if your surgeon won't see you; tell them it's urgent.

 

[tashia]

I am going to page Josephine for you. I don't like the fact you are in so much pain and what do mean the doctors won't do anything about it? Are you taking pain pills. You don't have any lumps in the back of the leg? I am very concerned about this. There is aways the ER to go to and get help. Please keep us informed on how you are doing. As pdx says please be concerned about this. Joesephine should be coming soon to ask more questions. Are you on pain pills. Pain should be taken care off. Please be careful. We care. Tashia

 

[judgar]

Iam 10 weeks out to I woke up this morning with my leg hot. its not red. I will just watch it today

 

[justacoach]

I too am 10 weeks out and beginning to have some pains that are "different" than the ones I have grown used to. Please keep us updated on what you find out! Praying that you get relief soon!

 

[I'm so ready]

I also am at 10 weeks and having burning and heat in leg. Ice doesn't seem to help. I try to walk it off and take a warm to hot shower which sometimes helps.. OS is going to manipulate the right leg when I have surgery on Left on Dec. 16th.

 

[maryo52]

Pain described as "burning" is most likely nerve pain. Forget your ortho, go to your regular doctor. Something on the order of Lyrica could be a big help.

 

[Josephine]

I have some questions to ask you:

1. what are your pain levels right now?
(remember the 1-10 scale: 1 = no pain and 10 = the worst you can imagine. And don't forget that 'pain' also includes soreness, burning, stabbing, throbbing, aching, swelling and stiffness)

2. are you still taking any pain medications, if so, what, how much (in mg please) and how often?

3. are you still icing your knee and if so how often and for how long?

4. are you still elevating your knee and if so how high, how often and for how long?

5. what is the detail of your daily activities? What do you do in the way of housework, cooking, cleaning, shopping, etc., and

6. what kind of PT/exercises are you doing? How much and how often? Details would are required!

I'll be back shortly!

 

[I'm so ready]

I am up again with burning pain. The pain pulsated an makes me cringe much like the pain I had with shingles. I do think it is nerve pain. I am going to ask my pcp for something after I get home from my ltkr surgery on Monday. Josephine do they have a suave that you could rub on that area.

 

[puffin]

I still get burning pain - I describe it has having my feet in boiling water. I have been told it is nerve pain and should disappear by itself eventually. However it is worse at night which makes sleeping difficult

 

[tmwillia]

I would like to chime in on this. I've had nerve pain for quite a while with fibromyalgia. I agree with Maryo52, that Lyrica can be really helpful. It didn't work well for me, so I take Gabapentin (brand name is Neurontin) and since my TKR, I've experienced new nerve pain in my knee, thigh and calf so I've increased it from 300 to 600 mg before bedtime since that seems to be the worst time for me.
I guess my point is that there are some good medications for this so call your primary care doc and ask if you can try one of them. There's no need to suffer, it just holds you back from recovery.


Sent from my iPad using BoneSmart®

 

[I'm so ready]

I was on Gabapentin for shingles the pain was so bad, it took over 2 years before the pain went away.

 

[pamo]

It has been 10 months and still my knee doesn't work right and still in pain, never again! And they want to do the other one LOL to that.

 

[Pumpkin]

@pamo,
Sorry to hear you are having so much trouble with your knee.
Have you thought about obtaining a second opinion to figure out why?
I would not want the other one done either, until I knew what was going on with the first one, and not until I had another surgeon.
Hope you find some answers to your questions,

 

[judgar]

I will be 10 months in a few days. What kind of problems you having. My leg is so stiff. It hurts when I get up to walk. I have to take a few steps then it will feel better. I still limp. It has been a rough road. Just wondering what your going through

 

[pamo]

I will be 10 months in a few days. What kind of problems you having. My leg is so stiff. It hurts when I get up to walk. I have to take a few steps then it will feel better. I still limp. It has been a rough road. Just wondering what your going through

you and i are twins because i am the same way you are. Some times i feel like something is poking me in the knee and i can't stand or walk long. When i sit with my leg down i cant get up very well also. Lost my job because of my knees and trying to find a new one is not easy, sorry i could go on and on, I don't know what to tell you but go see your doctor, wish i could but ins ran out good luck hun hope you get some answers!!

 

[Jamie]

Pamo....I'm confused about your last post. You indicate you are in Canada, yet you talk about not having insurance. My understanding is that Canada's medical system will allow you to see another doctor at no charge to you provided you use the public medical program. Am I mistaken? If things aren't right, you really do need to see someone for a second opinion.

Also, can you please describe your pain in more detail....like pain levels, when it occurs, where the pain is, and what (if anything) makes it better or worse.