Scared newbie... Hip is shot. What if it doesn't work!!??

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I am totally new and researching for best surgeon in my area. Friends tease me I am irrationally scared about THR as "they do these every day and everyone is always fine." But this is new to me and scary. Hoping to connect with someone else in similar situation to be a "buddy" to support through their procedure and hear about first hand and do's/dont's. anyone interested?


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@dickinson Quite the wordsmith, ain'tcha?! Snow in the Middle East!? That's like Christmas in July!! Wow (and they say there's no global warming... Hah!). Yes, indeed, thank God it's a natural disaster & not the other kind. So how do you cope with that crazy weather? Do the kids love it? Must make driving crazy. Is it sticking? Don't imagine Israeli cities have snow plows at the ready! OY!!

Yup, the anti-gravity chair looks good. Saw one advertised in a special "back" store for about $2500!! Obviously, not a lawn chair. Pampering works... Or helps. As you said, it's the walking that hurts. Me, too. Also got a wonderful contoured wedge pillow for elevation purposes. Will definitely put my "toes above my nose" as directed without having to pile up a bunch of annoying, tumbling pillows. Any little bit, you know... Well, hubby is summoning me for dinner. He's in charge these days; I just supervise. Shalom, my friend.

Ellen
 
@shrinkette I can feel your pain from your post. I can't say I know exactly how you feel, because no one can, but I sure know pretty close to how you feel, because I was there just a couple months ago. The unrelenting pain and inability to do anything just wears down your very soul to a point where you don't know if you can go on, or, sometimes in the wee hours, if you even want to. You just get to feeling useless and hopeless, and always the pain is there and the fear. And it so hard to believe that this surgery will really make the pain go away. It is a very fearsome place to be. There were many times I didn't think Id get through it -- I would think "I'm old and useless anyway, what's the point?" Those were the times I'd come on here and rant and ramble on and whine and ask for help -- that's all I could do, and it helped. Family was sympathetic, but no one can really know what horrible chronic pain does to you until they have been there. It sucks out your patience, your humor, your joy in living, your interest in things that used to fascinate you, as well as even the small things you used to care about. It becomes the absolute epicenter of your shrinking world.

I have arthritis in other joints as well -- hands, knees and shoulders, one ankle and an elbow I broke many years ago, and my lumbar spine. I could live with what I had in those, at least so far I can, but I could not live with that awful pain in the hips that kept me pretty much confined to my recliner.

The one thing I focused on during the last month or so before the first surgery (I became very depressed) was that everyone on here, my surgeon, my chiropractor and my GP told me it would be successful and it helps absolutely almost everyone who has it done. I am still pretty clunky and ungraceful in my walking with my cane, but that awful grinding pain is gone. I can get across my kitchen without hip pain. I still limp a bit when not using the cane, but then I'm only 10 weeks and 6 weeks out. I feel I am getting better most every day. I do worry about my knee, as it is acting up, but I am putting that out of my mind for now, as my surgeon told me to do. He says it may get better on its own as my pelvic tilt adjusts (I've had one leg shorter than the other all my life), and the new leg length (he says he evened them up) may cause it to take a while for my muscles and tendons, etc. to adjust].

I've realized that I may never get back to the strength and fitness I had when I was 50, and I've accepted that's OK. Well, I'd rather have that back, but I'm far from 50 now , so it's unlikely. I'm not going to get back the face I had when I was 50, either. BUT, I can get to the point where I can live everyday life without pain and get around and do for myself and go shopping, go out to do things to stay involved in the world, walk my dogs, and take care of myself. If I can't ever ride my bike again, I can accept that, but I couldn't accept living in my recliner in pain.

As to the "bravery" in getting them both done, they were both awful, and I wasn't brave enough to face the rest of my life in the condition I was in, so I had to face the lesser of two evils, i.e., the surgeries. Just fixing one hip wasn't going to help all that much, and I had to do it while I still had my resolve. If you do find that you have to have the other one done, too, I'd urge you to do them as close together as possible, so you can get it behind you and get on with your life.

I don't know that I would ever get up the courage to have a knee done. From what I've read it is a much longer and more painful recovery than the hips, which really DO almost take care of themselves, as Josephine says. You've been through a knee and have come through it fine, so I think you will be fine with the hip. As much as I could, in the days and weeks right before the surgery I tried to focus very hard on the gift of getting rid of the pain. I was an emotional basket case, though. I also found the pre-op stuff very stressful, as I was terrified they would find something wrong that would preclude the surgery. I started out being terrified I'd have to have the surgery and ended up being terrified I couldn't have it. (weird, huh?)

Please try to hold on. You are getting close now to the day it will be behind you and you can start recovering. You are a dear friend and I want you to enjoy the miracle of having that pain GONE! You just have to get through this dark tunnel first. Try Belleruth Naperstek's CD on depression, and the one on preparing for surgery. They both helped me to calm down, even when I fell asleep listening to them. I still listen to them, particularly the one on depression. Amazon.com has them and they arrive petty quickly. They also have them for MP3 for downloading.

Love to you, and I wish you peace of mind and spirit.

Milli
 
@Butterfly Wow, Milli, you really know how to nail it! Everything you said resonates with me. You are such a darling for taking the time to extend incredible empathy. We know exactly how each other feels -- or felt, in your case -- although I can see that recovery is very much a process & you undoubtedly have your own version of bad days. I read one of your posts that I think said you've got the ok to drive... True? Have you done so?

What about your grandson? Any further news?

Well, I had my abscessed tooth extracted this morning. Uneventfully, thanks largely in part to having been given a shot of some form of "happy juice", which I think put me to sleep -- sort of. I don't even recall the novacaine shots! Came out of it fuzzy, but calm. My insurance paid for the procedure, but would you believe the "sedation" part -- not insured -- cost $530 !?

One last question: I am so bent over when I walk, even using the walker. Very painful when I try to straighten up, & it's mostly on that "other", not to-be-operated side. That's the most worrisome part right now! I'm just wondering whether this so-called other hip will resolve after surgery on the left. Were you bent over at all? You talk about your knee hopefully resolving now that your pelvic tilt is readjusting. I'm hoping for exactly the same thing. Fingers crossed. And btw, the knee thing wasn't so bad. If I hadn't had a hematoma which set me back & required intervention, my recovery would've been much easier. It's absolutely fine now.

Hope your weather has improved & that you're able to get out & about more, especially if you're driving.
Take good care of yourself. I may try those CDs; you've mentioned them before as have others. Are you still depressed or less so now that you're over this huge hump? Milli, I just can't tell you how much your input & perspective mean to me. Love, Ellen
 
@shrinkette Thanks for the kind words. Glad you got rid of that tooth, but shocked to hear how much the sedation costs! Does the insurance company expect you to just "tough out" having a tooth jerked out of your head? Was that cost just for the "happy juice" or did they not cover the novacaine either? I am blessed to have generally very good teeth but I got a surprise abscess Christmas eve last year. It was very painful and I thought my jaw was going to explode. I called the dentist's emergency number, and to my surprise he called me back from home and said meet him at his office right away. I was very surprised and grateful -- I was just hoping for a pain reliever or an antibiotic or something to get me thru the holiday. I've seen this dentist for years, and his father before him, but I never expected he would come out on a holiday eve to fix my tooth. He was able to save the tooth, but we were there a long time. The hardest part was finding a pharmacy open that time of night so I could fill my antbiotic prescription. Anyway, after some followup work in January, I still have that tooth and it seems fine. I felt pretty lousy through the holiday week, though, but I was so grateful to him to help me out.

About the being bent over -- yes, I was, and very much so. I had a hard time really straightening up. I think use of a walker encourages being bent over, but it was the only way I could get from one place to the other. Not only was I bent over, but I seriously leaned to one side from trying to take the weight off of the worst side. I looked like Quasimodo the Bellringer as I lurched along before the surgery. It got a bit better right away after the surgery, but I was still bent over as long as I used the walker all the time. I tried very hard to find a way to use the walker without being bent over, but in order to lean on it to support myself I had to lean over, at least somewhat. The home PT lady tried raising it up for me, but it really didn't help much at all.

I only began to be able to straighten up when I became able to use one cane. I STILL have to remind myself to try to stand straight and not lean either forward or to the one side. A lot of it is is habit that I have to unlearn, some of it is my lower back, and some of it is that my muscles have still not regained complete strength. I'm basically learning to walk all over again. I think a lot of the problem is I waited SO long to have the surgery and developed a really weird gait even before I had to go to the walker. Funny thing I learned is that I'm frequently unaware that I am not standing straight and have to stop and realign myself and straighten up and keep my shoulders back where they are supposed to be. It's a process, but I'm getting better at it.

OS says I'm still supposed to use the walker when I go out of the house, but I'm really not doing that unless there is snow or ice. I've been just using the cane for about a week and a half now, and doing pretty good.

Still concerned about my knee and don't know how that is going to sort out. It's not too bad at this point. Thanks for what you said about your knee replacement. I hope I do not have to face that. I've read a lot of scary stuff about knees.

I guess you won't really know about your other hip until you get the first one fixed. It could just be strained because you are struggling so and favoring the other one. Have they x-rayed it? If it is bad, riddled with arthritis like mine was, do go ahead and get it fixed as soon as you can. For me, it was the best way and I am so glad I did it that way because my recovery will be less time in all.

Yes, I've been Ok'd to drive, just not too far (not planning any road trips) and not to carry heavy groceries in by myself. And I can't tak any narcotic pain relievers if I am going to drive (hardly ever take them anymore, anyway). But at least I can do simple errands myself now without scrounging a ride. I get in and out of my car (small and low) by putting the driver's seat back as far as it will go, leaning back and swinging my legs in, kinda like I get into bed. It works fine. I feel a lot better being able to get out on my own, too. It has helped relieve my cabin fever and my depression (which was largely the result of pain and immobility and fear, I believe).

You have a little less than a month to go, and I hope you can find at least a little peace whie you wait. You will truly feel better as soon as it is done and you can relax and heal. The waiting part truly is awful.

Peace and love toyou, dear friend.

Milli
 
Thank you SO much, @Butterfly for your input. I'm glad to know that being so bent over is not unusual, & I'd love for any other readers of this post to tell me if they, too, experienced the "Quasimodo syndrome". So maybe I'm not locked in that position for all eternity! I definitely agree with you that the walker encouraged being bent -- good point! You're now about almost 2 & 3 months out from the THRs & sound like you're doing fine. Maybe not perfect yet, but fine. I'll drink to THAT! (If I drank).

Haha... I get into my car, which is higher & a good size, the same way. Learned it in knee rehab. Entry & exits to car is FAR worse for me with a bad hip than it was for my knee -- even post-op -- because of having to TURN your leg to get it over the bottom rim or edge of the car... It kills. It must be wonderful to have some of your independence back.

Dentist: Insurance covers novacaine; the charge was only for me being sedated. A lot, but worth every bit of lost anxiety. But they did a good job: not one bit of pain since, & no painkillers. Frankly, I was hoping to take home an rx for a couple of Percocets (and I don't mean for my tooth!), but it didn't happen.


Were you having a knee problem BEFORE the hip op? Maybe walking better with better alignment will resolve that issue. All this stuff requires so much patience! Grrrr!

How are you spending the holidays? Is your son cooking again?

Love from the sunny south,
Quasi
 
@sharonslp... Hello again. I have a question for you. Regarding pain, I currently take 3,000mgs of Tylenol/day: I know the max is 4,000. Frankly, it doesn't do much for bone on bone, as has been discussed, but maybe it softens the edge -- who knows. Have I developed a tolerance to it by now after years of use that will affect its efficacy for post-surgical pain? Or are we talking about apples and oranges? Thanks so much for any input.
 
Shrinkette, I honestly don't know. But immediately after surgery, you'll be on stronger meds for a while. When the pain lessens and you taper off the hard stuff, then you'll start to fill in with Tylenol again. After my surgeries, I alternated Vicodin and tramadol. Once I stopped the Vicodin, I started alternating tramadol and tylenol. Gradually I moved to tylenol entirely, but not for long because it starts to upset my stomach when I take it regularly. I also took Celebrex for a good long while after both surgeries. I'm very pleased to be entirely drug-free now finally.

This is a question you should put to a pharmacist....that's a source I'd trust.

Sharon
 
@sharonslp Thanks so much for your prompt response. I remember you & others using Tylenol as the pain lessened & the hard stuff was no longer needed. I guess I was thinking that since the pain would be different -- theoretically -- maybe the Tylenol would/could work. But you're right: a pharmacist would have an answer or at least an educated guess. Or maybe I don't really want to know at this point if the answer is the wrong one!
Maybe it's just in the laps of the gods... Glad you're able to be off Celebrex, finally!

Anyway... How's the weather up there in the mitten? Hope you're continuing to do well.

Ellen
 
@shrinkette I think it's apples and oranges. Post surgery, I was given hydrocodone and oxycodone. The oxy is stronger, and I took that for a week or so and then moved down to hydrocodone. Interestingly enough, I took hydrocodone pre-op for a while because I was so bad, but it didn't really touch the pain. It worked well with the post op pain, though. Now, I take the tylenol as needed, but I don't need it much (at least not for my hips). For me, it was sort of a natural progression -- I hurt less so I took less pain stuff. Be guided by what your docs say, but don't be in a big rush to get off the stronger stuff if you need it. I'm a BIG believer in not suffering if I don't have to.

I won't ask you how the weather is down where you are -- I'm sure it is wonderful. Cold and damp here, a dusting of snow last night. It's usually not so damp here i the winter.

Are you hanging on OK waiting for the surgery? That was absolutely the worst part for me.

Love,

Milli
 
@Butterfly Hey Milli! Good answer. So maybe there's hope for Tylenol after all. I don't take anything else. And I've read enough here to know not to be in a hurry to ditch the pain meds too soon. I don't feel like being a martyr & assume I won't be an addict as the pain abates & I no longer need them.

Hate to tell you, but I think temp was about 81 degrees today. Went to movies & saw "Philomena" -- wonderful film!

Actually, I've been feeling fairly calm in the last few days -- don't know why. One good thing: it's probably way too early to say, but that pain in my non-surgery leg seems to have lessened, which I am attributing to my changing my gait after reading something here about walking heel first, rolling to ball of foot (which they had me doing in rehab for knee). I guess I haven't been doing that, but am doing it very deliberately now & for the first time in a month or two I didn't have that ache down my butt and down the back of my thigh. Its almost like some tightness has been relieved... is that possible? For however long it lasts, it's a nice respite.

How're you doing & what are your Xmas plans? Dinner with Bear, maybe? And how is your grandson?? We have no plans other than an early dinner with a few friends on New Years Eve.

My daughter has been trying to get signed up & pick a health insurance plan, but is having trouble & has waited till the last minute. She's frustrated & impatient with the website, & just hearing her rant on the phone was enough to raise my blood pressure. Considering the fact that we help her financially, I'm a little miffed that she didn't try harder, sooner. Now everybody's trying to get through! I really don't need this right now! Oh well.

I hope your holiday is a good one & that the weather is sunny & drier. Also hope that your knee holds up & that you continue on the road to pain-free independence. Here's to the miracle of joint replacement that makes life worth living again.

Love,
Ellen
 
just wanted to stop by and say hi
glad you found something that helps with pain...I think i'll try it
the big day is getting closer and I can finally say I'm (almost) looking forward to it
I had a grab bar put in my shower and it's great..i should have done it a long time ago.
take care, d
 
@dickinson... Thanks for dropping by! Always happy to hear from you. Do try my new & improved gait -- ya nevah know! They made a big point of doing this when I was rehabbing my new knee: heel down first, then roll onto ball of foot. Let me know if you see an improvement. I've only been doing it a few days and I've cut down on walking anyway in an effort at preservation until surgery.

Can't wait to hear your stories after your big day on 1/6/14! Ready -- if that's possible? Grab bars are a must. I was afraid of the suction kind as they are not weight-bearing, so I had them screwed into wall: a longer horizontal bar at about waist level, & a higher, short, vertical one at edge where you first step in/out.

Any New Years plans? Whatever you do, here's to a new start in life for us all. Stay in touch.

Ellen
 
Just a heads up - every year we have a major cyber New Years party here on BoneSmart. Starts at one end of the world and carries on for days. Check in on New Years Eve!
 
It is fun! A chance for members who haven't checked in in a while to say hi. And newer members always have fun connecting at a "party" with their fellow BoneSmarties. Everyone can have a cyber toast to the year. Watch for the announcement soon.
 
Ellen, the mitten is now is encased in ice. We had an ice storm last night...the kind that makes the trees look ethereally beautiful, but causes terrible damage to them down the road. Lots of branches down in my backyard. I'm feeling quite lucky though.....power is out for many people all around me, but my little world is electrically intact.

And yes, as you improve your gait overall, it will optimize the functioning of your other hip. That doesn't mean your other hip will magically be cured of arthritis. But it does mean your other hip MIGHT not need surgery right away. Although in my case I wanted it to need surgery right away so I could do both surgeries in the same year and essentially have the second one for free, since I'd already met my deductible and co-pay max. But it actually stayed pain-free for a full 9 months....just long enough to boost me into the next year. Oh well.

My new year's eve plans include dancing. Always my favorite way to spend NYE.

Sharon
 
@shrinkette It sounds like you are more upbeat now that your surgery is getting closer. I hope so. It is SO easy to get SO down while you are waiting.

I went for a little walk down the street today, with my cane. I got about 1/2 block when I realized it was much colder than I thought it was and the wind was blowing so cold, so I turned around and came home. Fooey! I was hoping to get around the block, but it was way too cold, even with the sun shining.

What was athe film Philomena about? I haven't been to the movies in ages. It has gotten so expensive, I think the last film I went to was Titanic. But maybe it would be a nice treat for me to take myself to the movies. Did you have trouble maneuvering around in the dark theater? I'm scared to death of falling.

I don't really have any plans for the holidays. Bear is out of town thru the end of the year and Heather and the boys went out to California to see her dad. Freddie went off somewhere too. And for New Year's, I never do much of anything anyway.

I'm glad to hear your other hip is a bit less painful. Let's hope that it all goes away after the surgery. My OS says that struggling with one joint causes everythig else to get all messed up from compensating. I am also trying to do the heel down roll through thing. My gait has been so messed up for so long that I think it will take a while to get anywhere near nomal. I'm not ready to let go of the cane yet -- when I walk without the cane for more than a few steps, the limp creeps back, not as bad as before, of course, but the vestiges of it do creep back.

Sorry your daughter is being annoying about the insurance. They just don't plan ahead! I think I read somewhere that the extended the deadline to sign up, but I am not sure. She will just have to figure it out. How old is she?

Love,

Milli
 
@Butterfly Hi there! Yes, I have been a bit more upbeat as I get closer; not at all sure why, & I'll probably go through the terrors a few times before I get sliced & diced. I'm grateful for the better mood for as long as it lasts & just hope & pray that I make relatively normal progress afterwards with few bumps in the road. I'm not in competition with anyone & am in no hurry. Far from a Type A personality, I will have no trouble resting, elevating, & icing curled up with a good book. Hoping, of course, for adequate pain control.

Sorry to hear that your walk got detoured by necessity. How nice, though, to be able to be out with just a cane & feel secure. Hope you get some better weather soon.

The movie, "Philomena": you would LOVE it! Takes place in Ireland, based on true story of a woman forced to give up her baby by nuns and who, many years later, decides to try to find him. Stars Dame Judy Dench. Extremely well done. As for maneuvering in a dark theatre, interesting that you mention that. I have been using a portable wheelchair for the movies. We arrived a bit later than usual & encountered a long line. By the time we got into the actual theatre, the film had started & it was totally dark. My eyes didn't adjust, I felt kind of out of control although hubby was pushing me, but even HE got a bit confused. It was kind of scary until I could distinguish whether people were in seats before sliding into a row. I'm afraid we may have disturbed a few folks in the process, but it all worked out. Lesson learned: don't be late so that theatre isn't dark!! Yes, do treat yourself, if you can find this film. Trust me.

Other leg still doing well! I'm afraid to even say it out loud! And I think I may have stood up a little straighter tonight. If I know I can walk fairly pain-free on my UNOPERATED leg after surgery, I'd feel a lot better. Fingers crossed. Yup, keep doing that heel-first thing.

My daughter was here earlier tonight & we tried to make sense of the various medical plans. I swear you need a slide rule to figure this stuff out. We will try again Friday when she's off work. Unfortunately, even if she signs up then, she'll be without coverage from 1/1-2/1. Nothing to do about it at this point. She's very responsible normally, but given the problems with the website until recently coupled with procrastination & dread, here we are. She's 45, lives nearby in her own condo with long-time boyfriend, & has been a staunch support for me. Tonight she brought over a little potato/cheese pie in a nice crust made from scratch by boyfriend, who's quite a cook. He's English & goes through "pie periods". Was good! Also brought Bolognese sauce to use with pasta, also compliments of boyfriend. Oh -- she has the cutest beagle! Got him from a family that had to give him up.

Well, that's my story & I'm sticking to it! Good night, dear Milli. Hope you're warm & toasty & surrounded by your loving doggies.
Love,
Ellen
 
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