THR Recovery greetings from an Aussie - my journey

@Merrimay and @zauberflöte, thank you both for such lovely responses. It was very sweet of you both to write such heartfelt messages.

Are there some improvements? Sure. Am I becoming more certain that I'm going to need a revision? Absolutely. These pains and clunkings can’t be normal even with hypermobility.

I’m going to not so gracefully tap out. Today is the day I’ve given up hope on getting better. I don’t believe I’ll be walking unaided ever again, and I know enough that that does happen to some people. I just don’t have the energy to keep fighting anymore and I’m tired of having my body ripped apart and put back together (I had 3 sun cancers cut out shortly before I had to go into surgery). I’m done but I thank you all for listening.
 
:hi: @Mintae

I was just reading through your thread....
What a lot you're had to deal with and alot of recovery time so I'm sure this recovery seems like an extension of unrealized return to healthy and happy.:unsure:
But, truly in regard to hip replacement...you are right where so many of us were at this point in recovery... dealing with the same issues...Tightness, groin pain, log leg, knee tweaks, malaise, boredom, etc, etc....
You have some other underlying issues
I have Undifferentiated connective tissue disease, a 3 level lumbar spinal fusion from a graft taken from my right hip, arthritis all through my spine and hypermobility
But you went through all of it and put those walking aides to rest, as I believe you could do again.
I'm sorry the super-human stories played on your concerns but many new hippies have used aides for many months and have laid them to rest.
I know I haven’t dislocated, but I am still scared that I will. It was drilled into me to be hyper-aware of doing anything that could bring it on because of my hypermobility. When do you stop worrying of that possibility?
Fellow staffer @PolarIce has Ehlers-Danlos Syndrome and hypermobility, so perhaps she can lend her thoughts on how to keep those worrisome thoughts at bay.
I’ve been a good girl and pretty much stayed in bed today. I’m not going to lie, I’m disappointed that I’m not one of those “ superhumans” (as I call them), who are back to normal after just a few weeks - I wanted to be one of them. Obviously, that just isn't me
You really don't want to stay in bed too much as you need those muscles and tendons to stay toned to the extent possible and short walks and some fresh air really can work wonders.

According to my reading you also are not alone with fighting depression.
Overall, patients with UCTD (Undifferentiated connective tissue disease) have an excellent prognosis.
Although patients with UCTD typically do not have major organ damage or severe symptoms that require long-term immunosuppressive medications, they often suffer from fatigue, depression, and anxiety which can lead to impaired quality of life.

This could be your biggest struggle and I do hope you also can see what your surgeon or primary care can do to help with this... have you ever talked with them about your anxiety?

I can't imagine how much harder my BTHR recovery would've been with the overwhelming Impending Doom feelings over-riding what really is normal recovery struggles.
I had my pity parties but tried not to let them turn into soirees.
:console2:

I hope your appointment next week
helps to reassure you, and One Day At A Time is how we get through it.
I'm rooting for you.:friends:
 
I’m going to not so gracefully tap out. Today is the day I’ve given up hope on getting better. I don’t believe I’ll be walking unaided ever again, and I know enough that that does happen to some people. I just don’t have the energy to keep fighting anymore and I’m tired of having my body ripped apart and put back together (I had 3 sun cancers cut out shortly before I had to go into surgery). I’m done but I thank you all for listening.
I am taking your words seriously and ask that you please consider contacting a medical professional to speak with. Sadly, you seem to be in a place of despair and it's heartbreaking. Your discouragement is understandable, but your situation is not hopeless. I am sorry for all you've endured and all that you are currently struggling with and hope that you will reach out for help in dealing with not only the physical, but also the emotional aspect of your journey. We are here for support and encouragement whenever you're feeling the need. We do care. :console2:
 
@Mintae , I agree with Layla. Are you currently receiving help for your depression?

Edith Piaf once wrote that every day she woke up having to fight for enough light. Given all you've been through, you're now in that fight. Do you have someone who can sit with you in person and give you a hug? Are you eating well? Do you have a counselor you can call or a doctor who might write you a prescription for something that can aid in clarity? Because that energy you don't have now is being robbed by severe and disabling Depression.

No one wants to realize that they may never walk unassisted again. But I taught a 35-year-old student who was left paralyzed in both legs after a car accident. She required assistance to get from her home to the classroom, then to the next class and the next, to the dining hall, and back home. She was also funny and added so much to my class. I loved teaching her. The other students enjoyed her and were happy to help her in the halls. She graduated with honors and now works as a paralegal. She volunteers at an animal shelter. She has an organic garden. I know if you met her, you wouldn't tell her to give up, even though she is the first to admit that thetes not a day that goes by that she doesn't miss her mobility. Yet your depression is telling you to give up. Don't listen to it. It's a load of dark ****.

Fight for enough light. Focus on knowing that people care for you. Focus on finding help for the depression so that you are free to focus on finding creative ways to master whatever comes next in your mobility journey.

You have caring friends here. Please keep in touch, Mintae. :puppysmooze:
 
Hello, Hopefully you're having some brighter days dear Mintae. If not now, I'm certain you will soon. My assumption is that those of us that have been following your thread do care about your wellbeing and are ready to offer encouragement. Please know we're available for support if you need us. I hope you have a nice weekend.
@Mintae
 
Hi @Mintae
Sorry you are struggling emotionally.

Most people really don't get the brutality of what our bodies go through to get rid of the arthritis.

None of them are here.

Make sure you are combining icing any bruised or painful areas w elevating both feet on a wedge pillow.

I would put my frozen icepack in a ziplock bag, then put the ziplock inside a pillowcase.

Also make sure you have new shoes. New hips can get angry when we put on shoes w the old wear patterns. I literally threw any worn shoes out. My pre surgical hip was so awful.
 
I just wanted to quickly check in with you to let you know I’m ok. When I have more time I’ll do a proper update. When I did my last post here, I was at my absolute worst…and continued to be that way for about 3 days. But then a few things started to go right and a switch just flipped inside me. I’m back in my pool. Swimming for 50 mins and water walking for 30 mins. Sadly, my hip has refused to go into superhuman mode and I still have a crutch but I’m starting to walk unaided more - even if it is a Quasimodo walk.
 
Today marks my 8 week anniversary. I still don’t know whether that’s something to celebrate, but I’m here and slowly improving.

I’ve been swimming and water walking for the last 2 weeks and both are getting easier. Kicking doesn’t hurt anymore and the water walking (with a flotation belt to take the load of my joints), is becoming second nature. I just wish I could walk as well on dry land! The LLD is quite noticeable and I was told it would take 3-4 months for that to resolve, although I’m expecting that to take longer since I’m sadly not superhuman. I’m certainly doing much better in the water than I have in years.

I never realised how much muscle/tendon/ligament weakness had occurred before my op. I’m still getting a lot of pain and discomfort around the top of my leg (like someone put a belt around your leg/hip joint), but some days are better than others. I’m hoping it’s just all soft tissue problems but there’s always that little nagging voice in the back of your head telling you there’s something wrong. I’m hoping one day soon I’ll switch to a walking stick rather than a crutch, and that’s where I’ll have to lay down my undefeated crown of several decades. The crutch/cane, I believe, will be a permanent fixture.

I’ve pretty much resumed normal daily activities - doing the washing, cooking, etc. I even managed to cut my toenails at the 6 week mark as I was told I no longer have restrictions BUT when in doubt, feet together and knees apart as that drives the implant into the socket. Apparently I can even put on socks but because it’s summer here, I haven’t attempted that. The thought scares me, too.

I’m using Bio-Oil on my scar which is definitely evening out the lumpiness. The one thing I have in my favour is that I heal cleanly so the scar doesn’t look like much at all. If only all the inside bits could match it!
 
a few things started to go right and a switch just flipped inside me.
Wonderful news and so good to hear from you!
I’m hoping it’s just all soft tissue problems but there’s always that little nagging voice in the back of your head telling you there’s something wrong.
I believe many of us experience this to varying degrees. The odds are in your favor of all going the right way, so hold that thought! You're doing great...keep it up and enjoy the weekend.
 
I have been meaning to ask everyone about LLD. I was told they made my left leg 20mm longer which is now equal with my right. It’s been extremely difficult without walking aides to navigate that height difference. I have new shoes, I’m sticking with my crutch because form over function, and through all my research I’ve learned it takes approximately 3-6 months to get used to having “evenness” again. I’ve found I can walk relatively pain free and smoothly if I keep my left knee bent. I haven’t read of anyone experiencing this and whether I should be doing it or not. Any thoughts?
 
It’s been extremely difficult without walking aides to navigate that height difference.
Yes, it can take awhile for things to balance after this adjustment. Keep using your crutch if you need it.

I would recommend you try heel/toe walking:

This involves striking the ground with your heel first, then rolling through your heel to your toe, and pushing out of the step with your toe.

It takes a concentrated effort, but I believe you'll notice a difference. Give it a try.
[Bonesmart.org] Recovery greetings from an Aussie - my journey
 
I have Undifferentiated connective tissue disease, a 3 level lumbar spinal fusion from a graft taken from my right hip, arthritis all through my spine and hypermobility BUT, the reason I’m here is because I tore my labrum up pretty well.
Oh my goodness, this is a HUGE amount to have to deal with, no kidding! Just one of those items would set anyone back for weeks, never mind having to deal with this list. Remember to be kind to yourself first and not to put to high expectations on yourself as this can lead to disappointment when there are setbacks. I get the impression from your style of writing you are an achiever who possibly can be a little bit more demanding on the self whereas really right now, self kindness is needed.

Accepting that your body isn't working the way you want to is not easy and it takes time. It took me a long time to accept that I needed a hip replacement - in fact it took me three years from when the surgeon told me that I needed it, to the point that I accepted the fact that I had to do it. Three years. The first time I heard the words, I burst into tears, boxed the idea away and went on a massive fitness campaign, losing loads of weight and building up muscle. Meanwhile my partner was getting more and more frustrated that I was trying to deny the evitable, something I just struggled to accept just fighting through the pain, and the later period of this time not able to do much at all. It took me this time, to get my head around what needed to be done, accept it and put myself in the right frame of mind to actually go through the operation, pain and recovery. I am telling you this story, as what you are emotionally feeling is very natural and it's ok to feel how you do. It is hard, it is ****, it's not what you want, it's not your choice, it's just something that you have to deal with as you don't have the choice. People who haven't gone through this, won't understand. It's not just fixing the body, there is an enormous mental health issue to manage aswell.

I have seen alot of people talk about this, some of it appears to be related to recovering from drugs used in the Op itself and the continued use of drugs for pain can have a massive impact, as depression can be a side effect. I came out of the op in an extremely good mood and this was maintained for two days, though I do think this was also a drug side effect, maybe the morphine. I am fortunate, this good mood seems to have continued post getting off the meds. I had prepared myself for feeling at times weepy, in pain and down as many have talked about this - maybe being prepared for it has helped, that it is normal.

Cabin fever is distructive and frustrating, the need to find a purpose while laid up not able to do alot. Some people are ok with this, I struggle with it, so I decided to take a history course that is taking up my spare time when I am not doing exercises. Have a think about what hobby or something you can do that may be able to help you focus your mind on something else to keep you occupied.

I bought a walker, however the PT at the hospital was genuinely very surprised and then made it clear that I am to use crutches!! I am in the UK - I think walkers are used in the US.

I wish you all the best with losing the nerve pain, that must be so difficult to deal with - it's a load of **** that you having to deal with now, but it will get better.
 
@Sukuma, admittedly I am well overdue to have Radiofrequency neurotomy done pretty much everywhere on my back - my SI joints especially. I go and see my pain specialist next week. I never thought I’d be looking forward to having RFN done!

And yes, I am very hard on myself. I keep killing myself to keep myself going, and that can get very tiring at times. Sometimes, you have to revel in your pity party and then shake it off and keep limping forward! The good news is that I graduated to a walking stick today! I can’t help thinking it’s going to be a forever thing but I hope I prove myself wrong.

I keep looking for little improvements now rather than huge ones. Like this morning I managed to put my underwear on without the use of tongs - winning! :rotfl:

@Jaycey, I have been doing the heel toe thing, and all it feel like is a more upright version of my Quasimodo walk. :heehee: But I keep doing it - promise.
 
Hi @Mintae Just catching up with your thread which is a heartbreaking read at points. What comes through to me is that with your high expectations you are often too hard on yourself and likely dipping into the #ODIC which, if course, then sets you back. Well done with the swimming and water walking "much better than in years" and with the underwear win. Being more upright has to be a positive - something I hadn't thought about but my son pointed out to me yesterday. Onwards and upwards, one day at a time!
 
It’s been extremely difficult without walking aides to navigate that height difference.
Yes, it can take awhile for things to balance after this adjustment. Keep using your crutch if you need it.

I would recommend you try heel/toe walking:

This involves striking the ground with your heel first, then rolling through your heel to your toe, and pushing out of the step with your toe.

It takes a concentrated effort, but I believe you'll notice a difference. Give it a try.
[Bonesmart.org] Recovery greetings from an Aussie - my journey
Really useful for me to follow aswell - thankyou.
 
I’ve learned it takes approximately 3-6 months to get used to having “evenness” again
I am experiencing this though probably behind you as this is my Post Op 12 day, so still reliant on my crutches. I find my walking to be very uneven, taking it slowly trying to walk correctly. Even with doing this it feels like my body lifts up on my operated leg and my unoperated leg just sails through the air higher than it should be in bringing it forward. The balance feels all wrong, But then I was walking with a leg that could not stretch out properly and with a bent knee due to the locked hip join for a very long time, so it's not surprising that I am having "to learn" how to walk again.
 
If I had to use crutches I would have needed additional surgery for whatever else I broke from falling! LOL! I just can't seem to get the hang of crutches.
They wanted me to use them when I had my ankle surgery. I opted for a rolling office chair in the house to get around, I loved it.
I used walker for my hip recovery, then graduated to cane and then one day realized I didn't need the cane either. I had many impatient days but I have to say I am now doing very, very well.
All my best.
 

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