Hi everyone! It's been a while since I've been on the forum, but you can find out all my history on my botched knee replacement, surgery, UAM, PT and subsequent 2nd TKR on the same knee in past postings. I won't go into all the details in this post. However, the 2nd TKR is failing, and the RSD/CRPS pain has never left. As of last week, my surgeon (not the one that did the botched job - he put the pieces in crooked!) who corrected the rotation of the components has put me in a removeable leg cast to try to "calm the knee and leg down from the pain" I experience every day. Again...please read old posts for details...thanks! ...anyway, I wear the cast (which goes from mid thigh to my ankle) for 8 or more hours a day, and remove it at night. The cast is set at about 10 degrees of "bend", and when it's on, the leg cannot bend or straighten. Since the knee is very "loose" and could not be tightened after the 2nd surgery (RSD issues) because Dr. was fearful that getting it too tight would cause the knee not to bend. Well...I can't bend it anyway because when I do, the looseness causes "clunking" and "thunking", thus causing pain and aggravating the RSD. We've dealt with this since last September (2010) and nothing has helped....except this cast!
Having the cast on makes my knee/leg rock solid! I can be almost free of pain when I'm in it, as there is no looseness and things are TIGHT! (Please note, Dr. says he could put a larger spacer in, but there has been so much trauma to the knee already, he's not sure that would do any good to help "fix" the looseness). I found out today that any type of surgery won't be an option until sometime next spring (2012) due to risk factors of infection, healing, etc. So...I'm in this cast (or another one, if this one gets nasty, ha ha ha!) for at least 9 months. I can honestly say, I'm GLAD! Being almost free of pain and not having to take countless pain meds just to get through the day is FANTASTIC! So what if I can't bend my leg...I'm NOT in pain!
So....I told my Dr. that I was on BoneSmart, and he suggested to find out if there is anybody out there who has had a failed TKR for whatever reason, and has had their knee fused. I am trying to get as much information as I can. The good, the bad and the ugly. Bring it on!!!! Also note, that I have not been able to climb or descend stairs now for a year and a half, and have been in a brace since Sept. 2010 (after the first TKR) I've read about people that are very unhappy after they have had their knee fused because they didn't realize what life would be like with a "straight" leg. I've been living with a straight leg now for 9 months, so this would be nothing new to me.
I'm wondering if we decided to fuse the knee, if that would eliminate the pain as well as the cast does. Obviously, I can't go the rest of my life in a cast, so something...at some point...is going to need to be done, and fusion is looking pretty good to me right now. But...I need more info. I hope there is somebody in our forum that has or knows of somebody that has had this done. THANKS to anyone who can give me more info. :doggieshmooze: