MUA It's been a long time.....

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^Yeah, I can't get across the ocean either. I think with your good letter and your questions written down, plus your husband (and the bonesmarties being virtually there) you will be well set for your appointment.
 
Nat, yes, the 70 to 80 even with an MUA is a concern. What my biggest concern is is hearing about the dislocations and falling going on. Dr. Maale explained that if they do not get every bit of the SC when they go in, it becomes a viscous problem again. It is like a weed, if you don't get the roots, it will grow back. He feels like they didn't get it all after listening to my account, but until he sees something, he can't be sure! :)
 
I sent it to you for that purpose my friend.

Data protection? It is yours. You own it
DRs poop stinks just like ours does. You are allowing them all to intimidate you and I dont think things will change til you do

And I truly say this with love and caring
You have to take control of this or they will keep on treating you so disrespectfully
 
I sent it to you for that purpose my friend.

Data protection? It is yours. You own it
DRs poop stinks just like ours does. You are allowing them all to intimidate you and I dont think things will change til you do

And I truly say this with love and caring
You have to take control of this or they will keep on treating you so disrespectfully
Thank you Merry xxx
 
Nat, yes, the 70 to 80 even with an MUA is a concern. What my biggest concern is is hearing about the dislocations and falling going on. Dr. Maale explained that if they do not get every bit of the SC when they go in, it becomes a viscous problem again. It is like a weed, if you don't get the roots, it will grow back. He feels like they didn't get it all after listening to my account, but until he sees something, he can't be sure! :)
Sonja that is exactly what it is like and even if it doesn't show on MRIs it can still be in their as this has happened before
 
Well then, you know your body! You know what is goin on Don't just say I am in terrible pain. Explain how the pain feels to him , weight bearing, non-weight bearing? Constant? Does it feel like a burning, or ache, or stabbing type of pain? Is is constant? Does it come and go? Does it happen at night? When you say your knee "gives out" do you have any warning before hand? Is there a feeling that hits before it, or is it a total surprise and you are tumbling down the stairs?

The more specific you can be, the more he will be able to answer! Remember, he specially blocked off 30 minutes for YOU! Be prepared! :happydance:
 
Thanks so much Sonja that is a great help :)

It's a constant pain it throbs when I am doing stuff such as walking and standing still for example in a queue or at the kitchen sink or oven.I have an intermittent pain in my ankle,calf and thigh which is there one day sharp stabbing and the next day it has gone.
I have a lot of pain in the inner area of my knee which radiates around the front and back and it is so severe that I cannot weight bear without being in agony.This is the constant pain and it is more severe at night.
When I stay in a position for too long it locks up and I have to spend time coaxing it out of its locked position.
I cannot sit with it in a downwards position as the pain is terrible so car journeys and sitting waiting at the hospital is horrible for me.When I do sit or lay down I have to position a pillow underneath it as I cannot extend it fully and to try and do so hurts.
When it gives way I have no warning whatsoever it jut goes and if I'm lucky I can catch myself before I fall but sometimes its impossible
 
Natalie, I just got back on site after our power outage and I want to wish you luck on Friday! You got some excellent advice from Sonja and others and your letter is spot on! :thumb:

Stay positive my friend! :friends: I look forward to hearing good news coming your way!
 
Natalie, I just got back on site after our power outage and I want to wish you luck on Friday! You got some excellent advice from Sonja and others and your letter is spot on! :thumb:

Stay positive my friend! :friends: I look forward to hearing good news coming your way!
I am so glad that you are ok! I was worried about you! Especially since they have been showing pictures of the devastation of the Northeast!
 
Thanks Sonja, we really feel for the people in New Jersey and New York City, and anyone in the path of devastation.
 
Well then, you know your body! You know what is goin on Don't just say I am in terrible pain. Explain how the pain feels to him , weight bearing, non-weight bearing? Constant? ....

Excellent advice, Sonja, as always. I was thinking the same thing as I read through it.

Not all surgeons are warm and fuzzy and can make an emotional connection to our pain. But if we can describe what happens as specific as possible, surgeons can move into analysis mode and relate our bumps, grunts and pain to the anatomy and the mechanics they know so well.

Also, I have a Smith and Nephew Journey knee (not hinged) and it is doing very well!
 
It's a constant pain it throbs when I am doing stuff such as walking and standing still for example in a queue or at the kitchen sink or oven.........

Natalie
I cannot even imagine what pain you are experiencing, my teeth actually hurt as I read your description. I hope that your surgeon finds a solution to your pain.

Thank goodness for Sonja, she is really a help here.

One suggestion, I had a visit shortly after my surgery and was having pain sitting in the waiting room. I told them at the desk, as well as they could see my pained face, and they took me directly back to a room where I could lie on the table. Perhaps you can call ahead and let them know your expectation is to be given a room as soon as you get there rather than sit in the waiting area.
 
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