THR Down to one crutch already!

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Hi Jo,

Interested to understand what you mean by the protocol has it's logic please?

Thanks
Smja
 
To put it another way, surgeons have their logic but it would be impious of me to try and define what that is! :snork:
 
I've read a lot in this forum about pain meds, and I do understand that we're all different in our tolerance of pain. I also firmly believe that none of us wishes to endure unnecessary pain,and neither do our doctors and nurses want to inflict pain upon us, so I'm noting my experience more in the interests of balance than for any other reason. I've needed very little pain medication, and I'm beginning to think, from reading other posts, that my experience may be unusual. I wanted to tell you about it, not because I'm not a terrible wuss when it comes to pain (I am, I squeal when I have a blood test!), but as an endorsement of my surgeon's protocol. As I've mentioned before, he uses an epidural, a general anaesthetic and a local anaesthetic 'perfused'(?) into the wound. The object of this is to reduce the need for painkillers afterwards with the accompanying nausea and constipation. I can testify to this, as I had neither nausea nor constipation. What I find interesting is that the effect has persisted long after I left hospital.

Perhaps I should explain that I'm a nutritionist, so I have a natural aversion to medication. However, I am pathetic when it comes to pain, and welcomed whatever pain medication I was given in hospital. I can honestly say that I had practically no pain. The nurses would frequently ask us what our pain level was on a scale of 0-10. On Day 2 my highest score was a 3, but by the end of my 3 day stay it was 0. I was sent home with an array of painkillers: paracetamol, ibuprofen (with omeprazole) and 3 more days' worth of pregabalin. I won't take NSAIDs if I can possibly help it, as they upset my stomach, and I definitely won't take a proton pump inhibitor as don't want to risk malabsorption of minerals etc, so I didn't take those two at all. I finished the course of pregabalin, and reduced the paracetamol by half, and now, at Day 11, I'm taking nothing, except the blood thinner dabigatran. I'd rather be taking my own fish oils, but I know they may potentiate the dabigatran, and I'll go on taking it until the end of my 4 weeks' rest period, because as I've mentioned above I'm going to be confined to the house for that period and I don't want to tempt fate. I'm taking turmeric as a natural anit-inflammatory, but that's all.

Also (and I'm sure this is heresy in your eyes) because I've had no pain and no swelling of any kind, I haven't done the icing thing. Yes, hubby bought me some frozen peas, but I didn't fancy sitting around with a cold bag next to me if there wasn't a reason to do that. So I didn't.

Prior to surgery, I had asked my medical herbalist friend to prescribe me a bone healing and anti-inflammatory herbal mixture to take on my return from hospital. Unfortunately, neither of us realised that I would be sent home with a blood thinner, so sadly I won't be able to start the herbal mixture until I finish the dabigatran. The mixture contains, amongst other things, comfrey (the other name for which is knit-bone), and that would be antagonistic to a blood-thinner.

Please be assured I'm not saying I'm stronger than anyone else, or that painkillers are a bad thing. If I needed pain relief I'd be the first to ask for it. It's just that there is obviously a broad range of experience, and this is mine. I thought it might be helpful for others to read about?

This is a totally different subject, but I do have one small annoying problem, and I'd like to understand why it's happening and find out whether anyone else has experienced it. On the lower half of the shin of my operated leg, the skin is just flaking and falling off, as if I'd had very bad sunburn. Since I can't reach it, hubby has to rub handcream into it twice a day. It's not itchy, just rather irritating and unsightly. Any idea why might this be happening?
 
Hi Jane

I've never had dry skin in my life, but my arms are a little flaky, plus when I take my trousers off, it's like a snowstorm in there, particularly operated leg?? Anaesthetic maybe??

I sprinkle turmeric on the dog's dinner (and buy expensive salmon oil etc etc), can never be bothered to take these things myself though! I'm still taking diclofenac, have been taking it on and off for 2 years, pre-op I had some daysmy hips seized and I couldn't walk, took diclofenac and miracuosly better the next morning. Though I know it's not ideal to take it forever, perhaps I should try turmeric. Do you buy a supplement from a health food shop, or just the ordinary spice?
 
Joanna, I wasn't in anything like as much pain as you before the surgery. We can't really compare. It would be unprofessional of me to advise you to substitute your prescribed meds with nutritional supplements, but it wouldn't hurt to add culinary turmeric to your curries, rice etc.

Yes, the dry skin may be from the anaesthetic, but why only the one leg?
 
It's likely the surgeon used a technique where the leg is prepped all the way down to the mid calf or even ankle. This might mean it's painted with providone iodine and might also be covered with an adhesive plastic drape. Some surgeons like to have the entire leg covered that way so they can more easily see anatomical landmarks. Both the iodine and the adhesive can cause skin flaking and dryness. This is only a guess but I've seen it happen a number of times.
 
That makes sense, my arms are a little flaky but only really the right leg from hip down to knee quite badly and it was covered in pinky red stuff after surgery, took a few days to wash off completely.
 
Ah! They used chlorhexidine instead of providone iodine - but it has much the same effect on some people.
 
I also had very low pain levels - far less than I was expecting. One of the painkillers I was given in hospital was liquid morphine, which I took for three days, and which did NOT agree with me, and while I was sent home with a bottle of the stuff, I never touched it. For a couple of weeks after I got home, I took ibuprofen three times a day and a co-codamol tablet when I went to bed, as codeine tends to make me sleepy, and I figured that I needed all the help I could get while I was sleeping on my back. But by the end of three weeks, I was painkiller-less and very grateful for it. I was able to cope with very limited pain relief before I had the operation, which I think made a huge difference to my ability to cope afterwards as well. And, largely, I've had very little pain in the ten weeks since the operation. The worst pain is occasionally my whole leg aches as if it has rheumatism, generally if I've overdone it, but it helps if I stretch it properly.

I never did any icing, I don't think it was ever suggested to me. My leg didn't swell at all, as far as we could tell, and it didn't seem necessary. Thank goodness.
 
Jane,

So good to hear you're doing well. I will say that the OS directions on the 2/4 week protocol is different, but I'm going with the surgeon knows best here. Take the advice and follow those directions. As far as swelling, I didn't do too much of it either and only iced my leg a couple of days. Keep up your good work and stay well!

Buffi
 
I'm really having problems sleeping on my back, but I'm not complaining, as that's my only problem. Anyway, it means that I spend a lot of the night sleepless, trying to get comfortable. Have tried sleeping on my side with a pillow between my legs but it seems to stretch the wound somewhat, so I only do it for a few minutes at a time. So I take my smartphone under the covers and read some of the truly inspirational threads in this forum. Some of them have put me firmly in my place, too. I'm having such an easy ride, it breaks my heart to read what pain some of you have been through, or are going through now. Nanamac and Juliep especially come to mind. My thoughts are often with you two in the middle of the night. And it does lead me to reflect, at the very least, that the second time might not be as easy as the first.

I just wanted to check in because it's my two week anniversary today. Which means that today I start my four week rest period. Last night, the final night of my liberation, I went to my Tai Chi class, which was wonderful. I've been doing Tai Chi (Yang family, long form, i.e. the most traditional of all) for about 7 years now, and find it hugely helpful. I couldn't do 'the form' last night of course, because I can't move yet without a crutch, but I can stand up unaided, so could join in the preparatory exercises and the qi gong exercises, and did some of them sitting down too. It was just great to see all my Tai Chi friends, and I was especially grateful to Jan, our teacher, for designing some of the exercises specifically for me and my hip.

And today, after breakfast, I retired to the sofa like a good girl. This is going to be hard, and it may lead to fisticuffs, I'm afraid, in our household. Hubby is trying to be very strict with me, bless him, and I'm trying to find ways to subvert him all the time. Unfortunately he was with me when the consultant gave me these instructions so he's a witness and intends to take it very seriously. He already thinks that I'm shaping up to be the patient from hell! I've let him agree that I can do the cooking, washing and ironing as long as I don't stand up for too long. So I've designed a daily schedule: morning on the sofa reading, a couple of hours at the computer, trying to finish my MSc dissertation (and posting on Bonesmart, and catching up on emails), bed in the afternoon, followed by Tai Chi practice, cook and eat dinner, then lie on the sofa again doing my tapestry and watching TV.

I am already planning to cheat tomorrow as a friend is coming by to pick me up and take me out to lunch, but I'm only going to walk a few steps, so that shouldn't really violate the rules. Trouble is, I feel so well and bursting with energy!

Luckily my 4 weeks enforced rest will be broken up by our Christmas visit to the Isle of Man where my stepdaughter and granddaughters live. We've already fixed up for me to have a wheelchair on the ferry, and we have a cabin so I can lie down. And my stepdaughter will be looking after me when we get there, so the time is going to pass pretty quickly I think. It will be so great to spend Christmas with the little girls (7 and 5). I'm Grandma Jane to them, even tho' they have a real Grandma too, so I never feel left out.

Love to you all out there in Bonesmart land. I'm going to post weekly from now on to chart my own progress, but I'll be following everyone else's threads during the long watches of the night.
 
Aww, thank you for your thoughts Jane. That is very kind of you.

I have to giggle reading your thread as what you plan on doing while you do "nothing" is more that I do in a day any day :th_heehee:! You must be a whirlwind on a good day! No wonder you are going to be feisty!

Seriouly though, have a wonderful holiday and try not to over do it. The trip sounds fantastic and Christmas is for children, isn't it? :sleigh:Enjoy the grandchildren!
 
I'm really having problems sleeping on my back, but I'm not complaining, as that's my only problem. Anyway, it means that I spend a lot of the night sleepless, trying to get comfortable. Have tried sleeping on my side with a pillow between my legs but it seems to stretch the wound somewhat, so I only do it for a few minutes at a time. So I take my smartphone under the covers and read some of the truly inspirational threads in this forum. Some of them have put me firmly in my place, too. I'm having such an easy ride, it breaks my heart to read what pain some of you have been through, or are going through now. Nanamac and Juliep especially come to mind. My thoughts are often with you two in the middle of the night. And it does lead me to reflect, at the very least, that the second time might not be as easy as the first.



Love to you all out there in Bonesmart land. I'm going to post weekly from now on to chart my own progress, but I'll be following everyone else's threads during the long watches of the night.

Jane, thanks so much for your thoughtfulness, it is greatly appreciated. :friends:

You have done so well with your recovery and that is such a good thing and you should be proud of it. I understand where you are coming from about the back sleeping. I HATED it. It's funny though how one ends up getting used to it when they have no choice. Once I was able to turn to my sides I was fortunate not to have to worry about incision since my is in front. I still tend from time to time to sleep with pillow between legs for a little of the night. I hope you find a comfortable position so you don't hide under the covers all night reading. :th_heehee:

Wishing a joyous and blessed Christmas with family and friends and your new hip. :mrych:
 
Well, I thought I wouldn't bore you all by writing frequently, but the price I pay is that I couldn't find my own thread till I'd got as far as page 4 in the hip recovery area! There's a lot of posting going on out there. I've read nearly every thread, but mostly on my phone and I'm hopeless at typing on it, hence not posting much, but it's so interesting to read all the different experiences that people have, and even if I don't reply, that doesn't mean I'm not with you in spirit.

However, I just wanted to log my own progress since last week. It will be 3 weeks tomorrow since my surgery and I'm progressing OK, but of course my OS's strange ideas have slowed me down somewhat, as I'm now a week into my 4 weeks rest period.

Here's what I've achieved since last week (and I do like to see some little sign of progress each day, to cheer me on my way):

I can sleep on my (unoperated) side most of the night. This makes me less likely to wake every couple of hours, so I'm sleeping more or less through the night. I have a pillow between my legs and another under the knee of the top (operated) leg, so it can't fall across the centre line. There's still a lot of thrashing around and rearranging pillows so dear hubby is still sleeping in the spare room.

I walk fine with just my stick, but I'm conscious that if I abandon it I'm not putting 100% weight on the operated leg with the result that I rock sideways when walking, which I'm sure is not a good thing. I do have a tendency to forget where I left that d*** stick, and have to rock across the room or into another room to get it.

I can walk upstairs in a normal fashion, albeit slowly and with the stick.

I can put my pants on without the grabber!

I am doing as much Tai Chi exercises as I can, which I find as helpful and strengthening as anything else.

Downsides: I still haven't regained my normal appetite, and still haven't replaced the weight I lost in hospital. The lack of appetite might be to do with lack of exercise. You may think this is an enviable situation, as I know some people struggle with keeping the weight down, but I probably haven't got over the fear of the cancer coming back, so weight loss is always a worry now.

I do miss going outdoors, must admit I've cheated a bit as we are feeding the birds like mad. Hubby bought a sack of black sunflower seeds and a sack of peanuts, and I'm filling up the feeders twice a day. It gives us so much pleasure to watch them, and we have tons of different species coming into the garden: blue tits, great tits, little flocks of long-tailed tits who swoop in, have a quick peck and swoop off again, coal tits (quite rare now), greenfinches, goldfinches, sparrows, robins, loads of chaffinches, and one beautiful iridescent bottle-green and purple pheasant who cleans up anything that's fallen on the ground.

We are off on Weds to the Isle of Man to stay with my stepdaughter and family for Christmas. Glad the snow has gone, and the crossing should be OK. We have a cabin on the boat so I can lie down and Susie the dog too (that's her in my avatar picture with last year's Christmas present, a stuffed rabbit, in her mouth). Poor Susie, she can't understand why I'm not going out for our usual walks, but patiently lies on the floor beside me when I'm resting on the sofa. Heroic hubby takes her out every single day for at least two hours, though, so her fitness is being kept up - so is his!

Can't wait for 10th Jan - my official release from the rest period. I'll be catching up with you all big time then!

Lots of love to everyone and have a happy and peaceful Christmas. :xcandle:
 
What a wonderful progress report Jane. Even with your rest period you seem to be doing well and moving along a bit further.

Your Susie looks like she enjoy her present last year and probably can't wait for her new one.

Enjoy a wonderful Christmas with your family.
 
The appetite loss happens to all of us. It's not the lack of exercise, it's the pain meds and the anaesthetic which, believe it or not, are still affecting your system. It's only three weeks after all. I think you're doing amazingly well and should be very proud of yourself. This pace is just about right so don't try to push it any harder.
 
Hello Jane,

I love the photo of Susie she is beautiful! You sound like your doing really well
There are quite a few of us all coming along together around the same pace which makes it more fun to read and learn what others are doing, the accomplishments plus their little things they might be struggling with the best part then someone writes in and says ahhhhh I've been dealing with same thing which personally brings me comfort I'm not alone :)

Thank goodness for hubby's helping out. Gosh are they selling them at Tesco's these days?!.!? Hehehehehe naughty me, no seriously what a gift to have them around to help!

I wish I had a lack of appetite I'm worried I'm eating like a race horse, that's why the walking part is important if not I'll need a crane to come and get me out of this place. I'm sure yours will come back soon. I've never had cancer so it's hard to relate to the fear of it coming back, your story...journey is a tough one I remember the first time reading and thinking to myself ughhhhhh!! My hope for you is that you have turned a huge corner and been given a new start at life now and all the other things are behind you, like a chapter that has been closed. Hope I'm wording this appropriately it's meant with such love behind it!

Have a fabulous trip Thursday nothing beats spending time with family during the holidays!

Merry Christmas to you and your loved ones....

Sarah

xxooxx
 
Sarah, thank you so much for your kind words. I try not to obsess about the cancer and I can usually forget about it. Considering it was a stage IIIb I came out of it remarkably well. I just wish I'd had access to a forum like this back then. Having a rare and embarrassing cancer that I couldn't bring myself to admit to, and being a nutritionist (i.e. someone who peddles a healthy lifestyle and is not supposed to get sick) I was a bit like the dancer Amy on this site not wanting people to see her out walking with a stick.

And now Jo has reassured me about the weight thing, hey that's a good way to get through Christmas! Have a THR with plenty of pain meds and lose weight effortlessly! Seriously though, it's strange that it's had the opposite effect on you. Just shows that we're all different. Maybe I should try some pecan pie...
 
Hi Jane

Just wanted to wish you a very happy time with your family and to let you know I am thinking of you.. Will chat soon :)
 
Hi Jane, Happy Christmas! Did you get my reply to your email?Great progress, be patient
Best wishes
Anne
 
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