moonie8404
junior member
Any UK patients here can provide some feedback/advice. I've been diagnosed with bilateral acetabular protrusion as well as bilateral hip impingement FAI (no labral tear). I also have Ankylosing Spondylitis and various bursitis (bilateral trochanteric bursitis and right ilioposas bursitis).
I'm really confused as I've been told I need a double hip replacement but due to my age (39) I'm to wait as long as I can until I can no longer take the pain. I've also been told that the inflammation from my AS is rife in my hips and needs to be under control, however my rheumatologist disagrees. I have also been told my protrusion needs monitoring as they don't want it going too far making hip replacements difficult.
I saw a registrar at the clinic last month, and told due to my complexities I need to be seen by the consultant but he was arranging SI joints injections to see if my pain improved or was coming from my hip. Anyway, today I get a letter telling me I've been discharged from orthopaedic care by the consultant as he feels I don't need their care anymore and what they have offered is sufficient.
I'm totally flabbergasted by it, as for someone with these issues I find it odd I'm not being monitored under their care. Is this normal?
I'm finding this just hard to deal with as I'm in a lot of pain everyday, I can't do half the things I want to do due to my hips, as well as my AS but to just be left, I feel totally neglected.
Please can anyone advise, if this is normal or not. This is the consultant who Sat on his WhatsApp messaging his wife about his kids, when proceeded to rake a personal call in the middle of my last appointment with him, leaving me alone with a student who injected my bursitis and clearly was inexperienced and caused a lot of pain and blood to go everywhere!
I'm so upset, I can't afford ongoing private care, but I feel so let down by my local hospital. I was seeing Dr Zahn at the William Harvey but sadly he has now left and I no longer see him - he was rhe most supportive and I paid privately to see him initially but it clearly was all a waste a time.
I'm really confused as I've been told I need a double hip replacement but due to my age (39) I'm to wait as long as I can until I can no longer take the pain. I've also been told that the inflammation from my AS is rife in my hips and needs to be under control, however my rheumatologist disagrees. I have also been told my protrusion needs monitoring as they don't want it going too far making hip replacements difficult.
I saw a registrar at the clinic last month, and told due to my complexities I need to be seen by the consultant but he was arranging SI joints injections to see if my pain improved or was coming from my hip. Anyway, today I get a letter telling me I've been discharged from orthopaedic care by the consultant as he feels I don't need their care anymore and what they have offered is sufficient.
I'm totally flabbergasted by it, as for someone with these issues I find it odd I'm not being monitored under their care. Is this normal?
I'm finding this just hard to deal with as I'm in a lot of pain everyday, I can't do half the things I want to do due to my hips, as well as my AS but to just be left, I feel totally neglected.
Please can anyone advise, if this is normal or not. This is the consultant who Sat on his WhatsApp messaging his wife about his kids, when proceeded to rake a personal call in the middle of my last appointment with him, leaving me alone with a student who injected my bursitis and clearly was inexperienced and caused a lot of pain and blood to go everywhere!
I'm so upset, I can't afford ongoing private care, but I feel so let down by my local hospital. I was seeing Dr Zahn at the William Harvey but sadly he has now left and I no longer see him - he was rhe most supportive and I paid privately to see him initially but it clearly was all a waste a time.