@Josephine, I hear what you are saying. Could you give me a list of questions I should be asking. Prior to this surgery I just signed the consent form. I've never had post op complications before. My confidence is shot after this experience and the nightmare cases I saw at the rehab hospital. Most patients were having repeat surgeries within weeks or months, I was on a ortho unit. Don't get me started on all the septic knees and picc lines. It was just terrifying, I've decided no knee surgery for me. Luckily the hyper extending L knee is only moderate OA. Im starting to wonder if there's something wrong in our hospital system. So many repeat operations during my 10 week stay, most due to infection or loose screws. I don't know if we even have surgeons that specialize in revisions.
Plus most hip surgeons work out of my surgeons office, I had been referred to another surgeon in his office, but somehow got rerouted. His online line reviews look great. The other thing Alberta has streamlined the process by having 2-3 clinic that the surgeries are routed through, as they used an interdisplinary team approach. What do I say to my case manager. How do you break up with your surgeon.
I am sure they think I am non complaint as I didn't book further physio or a Dec follow up. I do the exercises, his physio gave me at home. Id gladly do a phone consult. Our hospital offers video conferencing. I am put off because the follow ups, there's no physical hands on evaluation, no x-ray, like at the 6 week follow up.
I'm still choked by my surgeon transferring me after the 1st dislocation with no x-ray to the rehab hospital, those toe raises did me in! I told him about the clunk and roll. I didn't get the x ray because I couldn't walk across the room to the too high stretcher, so I am listed as refusing an x ray, even after explaining the issue.
Next question how can a person walk with an anterior dislocation. I had got to my bed and had to get up to go to the washroom several times before getting it reduced. I have never felt pain like that in my life. I read on another forum someone had 2 revisions and still dislocated with them.
How much could partial paralysis and the 2 osteotomies be contributing to this. The paralysis is being suggested by some rehab professionals as the cause, your thoughts. I used to ride horses, climb into transport trucks and hike, pick ground level berries, so the partial paralysis didn't hamper me much, until the back issues raised their head. Then an explanation given for my 3rd dislocation was because I had swelling from the prior dislocation 1.5 hrs prior. I was lying flat on exam table and barely raised my butt so nurse could slide my pants on. She told me they had quite the time getting it in. No x ray was taken of those dislocations. Plus my surgeon hasn't done any since my 6 week follow up.
What should happen during a follow up appointment. We just talk, with my case manager and their PT attending. In the old day my peds ortho would make me do a walk, he would them do a hands on physical range of movement. It was very physical. I was blessed when he retired as a surgeon I was given all my records. Hes still around doing insurance claims. I had stopped by the office to say hi and was given my files. He had done all but my last 2 ortho surgeries.
Your comments are greatly appreciated, I hate not knowing. I will look into a revision, just don't know if theres a rock star in Edmonton. Our surgery wait times average 32 weeks after seeing a surgeon. It can be up to a yr to see certain surgeons. Do you have any info on Edmonton Ab hip surgeons. My surgeon is dr. Greg O Connor.
The great thing is I'm not paranoid of going under anymore, propofal is my friend! I used to freak out being put under, a reason I delayed having hip surgery since 1991. Having the reductions have cured that, as there was no one around to be with me. Propofal truly amazing, its like falling asleep in your own bed. There's no recall of much, which is freaky. My first reduction, I didn't even know it was done! I was still waiting for it to work, when sent to x ray. I had argued with the tech, I was still waiting for the reduction. She humoured me and called to check. Boy did I feel like an idiot.
I have photos of pre op hip, surgery planning, 1st dislocation, post dislocation. I had a nice OT at the rehab hospital, she showed me all my x rays even of my back. It was cool she let me use my iPhone to take photos. I know who has their skeletal x rays on their ph. My sons ortho gave me a disc with his hip x rays.
Which brings me to another question. My son was gifted with my beautiful hips.
He turned 16 on the 2nd. He's been having random hip pain and sore legs since this summer. Heavy lifting really aggravates it. I saw him stand up, try to step and fall with pain. The previous day he had been stocking the dairy case at work.
His history, pavlik harness from birth for 6 weeks, followed by closed reduction spica cast at 4 months, for 4 weeks. He managed to dislocate in the cast, so ended casting. Then at 18 months, under a different ortho a femoral osteotomy was done. Followed by tendon releases for both legs age 11, he walked like a ballerina. Havent seen ortho since 2012.
Questions are could he be needing further surgery, and are the bones finished growing. The surgeon was happy with surgical outcomes. Jamie had been born with the ball above the socket L hip. It wasn't even calcifying until the first surgery. Now there's a surgeon, who has a brilliant bedside manner, thorough explanations, very caring, even about my conditions! I wish he would work on adult hips!
So I was hoping to work on Jamie's issues this new year. We had to juggle his surgery with my back surgery in 2010, as he was supposed to have another hip surgery. I am worried I missed the benefit of growing bones. Also is this going to set him up for early OA as an adult. Last question would he benefit from PT. His leg is thinner and he does limp slightly. Why would that leg be thinner. I thought my leg thinness, was due to CP.
I worry about his hips ending up like mine. He is also very seditary. Any advice will be taken seriously. Sometimes I feel overwhelmed by all this or what comes first. Thanks again!!
So I've got to consider who to look after first! The problem is getting to the city to see the specialist. I have been reading most of the articles here, even the video. I cannot eat steak now, after seeing the video. I have great respect for the OR teams, its truly gross.