TKR kmak's TKR recovery thread

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Happy 4th of July to all of you. Today is my 8 week left “kneeversary” and the last three weeks since I joined the forum have been the best of the recovery so far. I can’t believe it’s only been three weeks since you all joined me in my recovery. Thank you all for your courage, wisdom, humor, honesty, perseverance, and friendship. What have I learned in the last eight weeks?

1. Recovery is like line dancing – 2 steps forward, 1 step back and some weeks 1 step forward and 2 steps back – every now and then there is a side step, or plateau, thrown in for good measure.

2. We are all individuals – no two people recover the same – heck, no two knees in the same person recover the same (who knew?) – yet we all have a common need to vent, to seek (and give) advice and support, to laugh, cry, to share the story of our journey.

3. I have lots to be grateful for – my recovery, while slower than I might have imagined or desired, has been free of complications thus far and I have a tremendous support system with my spouse, friends, co-workers, PT, and all of the “smarties” who inspire and encourage me every day.

At the risk of boring you all, my post is fairly long. With another TKR in my future at some point and a memory like Dory I wanted to record my eight week progress in a little more detail.

Three weeks ago, after finding this forum by chance, I was overworking with a spreadsheet full of exercises that were keeping my knee inflamed and swollen; I was depressed, worried, and crying often, as my ROM seemed to be getting worse with each miserable day. I was in that dark place where I questioned why I did this to myself and would I ever be “normal” again.

As of today, I have cut out almost all exercises, except for spinning on the stationary bike for a short time 2-3 times a day, walking, a few heel slides when my knee feels good, and a few other stretches (primarily hamstrings and calves). This was a terribly hard transition for this worker bee – I still have a color-coded spreadsheet with probably too many exercises on it but have written “day off” on it the last four days and hope to let go of it for good this week.

My ROM seems to be slowly improving – being somewhat obsessive I have to refrain from regular measuring.
Most of all, I am much happier, easier to live with, and not worried quite as much (for a compulsive worrier that’s saying something!).

I see the OS in four weeks and am hopeful that with additional improvement by then he will not mention MUA (he did at the six week visit). Even if he does I am confident that I can politely decline, as I now believe I am getting better.

Sometimes, these weeks seem like months and we fail to recognize the little improvements we are making – maybe not in ROM but certainly in our ADLs and other activities that we add to our routine, and also in mood.

My focus over the past week has been on walking correctly. It is definitely not automatic as I have to repeat the mantra “heel, toe, push off the toe and drive the leg forward” but I am noticing great improvement this week with the intentional focus.

I can go upstairs foot over foot without the railing and am working on downstairs with a railing – not very confident with the down steps though it provides a good stretch.
I use the cane for longer walks to ensure proper gait and to be there for the inevitable “wobble” that my knee likes to do without warning.

Swelling is still an issue, so elevation and ice are necessary, but I have longer periods of the day with less swelling. I’m very stiff in the mornings and warming up the quad and hamstrings along with long stride heel to toe walking helps loosen things up.

Fortunately my pain is minimal during the day – I get achy in the shin and ankle on the operative leg, have the occasional stingy sensation, and have a bit of a naggy spot on the outside lower quadrant of the new knee.
The knee is not as painful as it was prior to surgery which makes me hopeful that over time the pain and achiness will subside.

Taking one 675 mg Tylenol during the day if needed and a Tylenol PM at nighttime (it is not as effective as Advil PM for drowsiness for me).

I still go to PT twice a week, as I find it helpful for working on balance, functional movement and overall confidence. The clinic is also a great social atmosphere with a big therapy area where I am sure to see other folks I know - we all support each other.
My PT is wonderful – as uptight/Type A as I am he is laid back; he has only measured twice in 8 weeks – day 1 and at 4 weeks and he really doesn’t seem to care what the numbers are. He patiently answers all of my worrisome questions and alternates movement exercises with massage or whatever I am interested in working on. The other advantage of continuing with PT is that this clinic has a zero gravity treadmill (Alter G) which we can use anytime free of charge as clients. I go in once or twice a week and walk for about 20 minutes at 40% of my body weight. When I started at 25% of body weight it was like walking on clouds. I highly recommend it if you can find one in your community. They have cameras set up so we can watch our gait.

My PT is moving away at the end of July so I might make a clean break after he leaves – unless he releases me sooner. I was really fortunate to get him as a therapist and I would wish for all of you to find a clinic/therapist with this gentle philosophy. That said, I will wait a few weeks before starting PT when I have my other knee done. With this knee I started outpatient PT the third day after surgery (I had been told it was a necessity to get started early – HA!). No need to start that soon. I have already picked out the person I want for PT the next time as I think she will be as good as my current therapist.

I started back to work during week 4 (just a few hours a day) which was too soon! I have been phasing in, but I was miserable by the end of each of the two days that I worked a full 8 hours. I can reasonably do about six hours now, if I take a break in the middle. I do not have a commute as the office is just a mile from my house but elevating at work is not the same as at home. It helps to go home at lunchtime for about 90 minutes to ice and elevate. I like working (aka workaholic), like my job and my colleagues, and probably have a misguided idea that I am needed at work. I started calling in to meetings during week three – ok full disclosure: I was making phone calls from my hospital bed the day after surgery.
Next time I will try to stay away from the office for at least 6 weeks, then gradually phase in, working from home as long as I can. My brain had energy for work long before my body did.

The area where I am still struggling the most is sleep. I probably have 2-3 good nights in a week. I’ve always been a light sleeper but this is ridiculous. I feel like a rotisserie chicken, rolling around during the night trying to get comfortable, rearranging pillows of all shapes and sizes. All sorts of boring magazines and books on the nightstand, which leave me wide-eyed each night.
To make matters worse there is a skunk in the neighborhood and I think he plants himself right outside my bedroom window each night – peeewww!

All in all, I’m doing reasonably well at the eight week mark. This recovery is not for sissies. . . . I keep telling myself “this too shall pass.”
 
Oh, she's a perfect age for this adventure! I'll be with you in spirit at Ghiardelli's, lol! If you have the time, be sure to take the boat trip out to Alcatraz for several reasons; the view from the water is outstanding, the boat ride is relaxing and a nice break for your knee, and the place is fascinating. You're going to have a blast!
 
Kmak, what a great summary of your first 8 weeks; honest, humorous, uplifting and without any sugar-coating! I enjoyed every, single word!:happydance:
 
Sleeping, or I should say the lack of sleep, is a common complaint. Many find that Tylenol PM works well for them. Other than sleeping problems, you sound like you're doing really well!
 
Thanks Pheebs and Paula - lots to be thankful for on this Independence Day.
 
Hi @kmak81230 and happy fourth to you and all my bonesmarties!
Just wanted to chime in on the sleep frustration, yesterday was my 6 week kneeversary and I spent the day at a friends lake house with very little difficulty getting around the grounds, helping out with cooking, and playing with the kids and dogs. Great day, and I was sure all the activity would help me doze off. But alas...
I usually get in about two hours from like midnight 2, then awake for 2-3 hours, and then maybe another 3. I return to work on Monday and have no idea how how I'm going to function like this. I have a perpetual headache and am extremely grumpy!
I was sleeping greAt for the first few weeks when I was taking Percocet at night but then had to admit to myself that I wasn't taking it for pain, only ,to put myself out, so I stopped about two weeks ago. I have had some success with ambien, but I'm more afraid of getting reliant on that than the Percocet, frankly (too many stories of weird behaviors and blackouts on that drug). Tylenol PM makes me restless. All to say you're not alone, and we have to take the bitter with the sweet along with another dose of patience!
 
I wish for you more sleep, particularly as you head back to work keefsmom - you will need the extra energy. Happy kneeversary by the way. I think we are not alone in the lack of sleep dept and hopefully it will get better soon. I'm not a napper either unfortunately.
 
Bet going back to work puts your sleep cycle straight @keefsmom. I have a feeling that for many, the lack of sleep has more to do with lack of routine than anything else. After all, we are creatures of habit, and a TKR sure changes our habits. Yeah..it does, kinda like a nuke to the whole routine system; pffft. BTW, Tylenol PM and all allergy type meds make me antsy; you are not alone. Carl Sagan would back me up on these last few words. :snork: I wonder if Melatonin would be helpful? It's worth a try. I do know what helped me and it was tossing the Oxy. Sounds strange, but the Oxy made my brain *buzzy* and that just wasn't conducive to sleep. Of course, pain wasn't either so I chose the pain-free route the first 4 weeks.

Sounds like you enjoyed a great day at your friend's lake house; woot!:happydance:
 
@keefsmom I have taken Ambien off and on for years because of my job and my extremely erratic sleeping schedule. I luckily have none of the weird side effects some people experience. However I never take a full dose, I usually cut my 10mg tablet into 2, 3 or even sometimes 4 pieces and just that little amount helps me to "settle down" and be be able to sleep when my mind is wide awake or in a different time zone.
 
I found that Oxy kept me awake, too. I'd sleep but only for about 30 minutes, then be awake for an hour or so.
 
Since the Tylenol pm is not effective for me I may go back to melatonin
 
I lot of people have success with that.
 
Well tonight's gonna be interesting since my oldest showed up to our cookout with his girlfriend and informed me that they're staying the night. Now they're both 25, and we like her and all but this little townhouse of mine is pretty darn intimate if ya get my drift! Ive got the air con unit on high and a fan going to drown out all possible noise, keeping my fingers crossed! :dubious:
 
@keefsmom, have your own...er...*party*? That'll keep 'em from staying over again.:snork:

@kmak81230, chamomile tea or Sleepy Time tea? If push come to shove, ask your PCP for Trazodone. It's a very old medication, originally developed for depression, but...it didn't work. It just made people sleepy. I took it when I hit menopause for about 2 years because I became an insomniac overnight. Worked like a charm with no morning *hangover* effect.
 
After a good weekend I was ready to show off at PT - thought I might even ask him to measure cuz I thought I could, maybe, possibly, hit the triple digit mark. But, while walking last night - I was doing my long stride heel to toe - I felt a pain in the back of my knee -- not horrible pain, but just like I had pulled or overstretched something back there. It doesn't happen with every stride but it sets me back to a bit of Frankenwalking when it happens. I have iced and avoided the longer strides today - but I still occasionally get the pain. I talked with my PT about it -- he did a lot of probing in the area which did not hurt, followed by a lot of massage - which also didn't hurt. He thinks it could be something muscular that is a little deeper than he could get to. I guess I will take it easy with the long strides and avoid any extension/hamstring stretches for a few days and see what happens. Guess my show and tell will have to wait awhile longer.
 
Many of us have had pain in the back of the knee. We suggest icing it along with the front of the knee. I bet it is muscular since it started with your long strides. I bet it'll go away just as quickly.
 
Thanks for the encouragement Paula! I am icing as I type :SUNsmile:
 
I get that now and then @kmak81230 and I do ice it. I think it helps, though a good night's sleep seems to help more. Sometimes I find myself pushing for too long of a stride, when really, all we want to be is *ahem* normal. I've also found that when it feels that way it 's best to avoid any extension exercises. So, with some rest and some ice it should go away quickly.
 
Thanks for the validation Pheebs -- will take it easy on the big strides and ditch the extension exercises for awhile -- it sure is a balance -- feeling good so do a bit more, then have to cut back, and repeat.
 
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