Thank you, Josephine, for helping with this issue. I don't know how the PA is with a needle, but my GP is excellent, and I'm considering asking him to do it if this doesn't resolve soon!
In response to your questions:
1 - pain levels vary by what I'm doing. Sitting -- 1-2 for an hour or so, after that increasing to 4-5; walking 2-3 for short periods, increasing after a block or two to 3-4 and after 3 or 4 blocks to 5-6 (so I'm not walking that far!); standing 1-2 for about 5-10 minutes, increasing rapidly after that to 6-7--MUST sit down; lying down -- 1 for the first 20 minutes; increasing to 3-4 after an hour or two, which eases some if I shift to another position. With any sudden movement, it shoots up to 7+ briefly and then slowly eases back down.
2 - I regularly take daily anti-inflammatories for my lupus: meloxicam 15 mg once daily, sulfasalazene 500 mg twice daily (also plaquenil 200 mg twice daily but I don't consider it pain med). For the THR, I was prescribed oxycodone 5 mg with acetaminophen 375 mg every 6 hours as needed. I had discontinued those until the last 3 weeks, when I returned to taking one if I awake during the night with pain (about every other night) and if I have pain during the day that I can't relieve by changing position or applying ice--maybe every third day. In between I take one or two Aleve every few days. I also have Voltaren Gel (diclofenac) that I put on both my hip and my knee at night and in the morning. (I used a sample Flector Patch on the hip and it worked fabulously, but my insurance won't cover it!)
3 - I ice my hip every night and at least once during the day. If it's more swollen or sore, I increase that. I do ice my knee, as well--mostly at night, switching the ice pack between hip and knee every 20 minutes or so.
4 - I elevate my leg at night. I have an adjustable bed, and it's easy to raise legs above head. I keep it that way most of the night, lowering it a few times a night to shift to sleeping on my side when I get stiff. I elevate my leg during the day whenever I'm sitting in the recliner (maybe 2-3 hours over the course of a day), but not quite high enough to count as elevation.
5 - I don't really know my ROM--I'm not facing a TKR quite yet and haven't had it measured. I think I have full ROM, but significant (sometimes debilitating) knee pain. My PT observed that the left knee tends to twist slightly when I walk.
6 - My activity level was getting pretty normal, but is slipping again because of the new pain. Currently, I'm doing the grocery shopping again, but I make more short trips rather than an untenable long weekly trip. I do an occasional load of laundry, but leave most of it to my husband. I have a cleaner now and don't do any mopping, dusting, vacuuming, etc. A little wiping up in the kitchen, but husband is doing the majority of the washing up. I'm self-employed and my work is sedentary. I can do almost everything but my weekly workshops from my recliner. I have great long-term students who are doing all the room set-up for my workshops for me, so even the workshops involve minimal activity.
7 - I discontinued PT about 2 weeks ago. I had worked up to twice weekly:
50 reps of hamstring curls, bridges, toe lifts, front and side kicks, and band extensions,
20 reps of clamshells,
3 modified lunge stretches (modified to limit knee involvement)
50 reps on the shuttle with minimum weight,
30 reps on the hip machine
10 minutes of stationary cycling with no resistance,
3 reps of 30 seconds balancing,
3 reps of 30 seconds calf stretches
5 minutes of isometric leg extension (15 sec up, 5 sec rest)
I can see typing it out that that was a crazy amount of PT! I am currently doing only 30-second knee to chest stretches X 3 reps twice daily and short (to the mailbox and back or around the pool and through the grocery store) walks 3-4 times a day.
Again, Josephine, I appreciate your help and heartily welcome any advice.
~Debby