@imjustme62, Welcome to the BoneSmart forum. Pleased to make your acquaintance. It's been a week since you shared, so I wonder how you'd doing now. It sounds to me like your recovery is actually going well, despite the bumps in the road you've shared. ALL of us get discouraged, frustrated, sad, dissatisfied, and painful. The good news is that we share that burden with others on here who understand, and provide information, support, and encouragement. I hope you feel the love!
I'm going to throw in a radical idea about pain meds here, only because I think it's at least something to consider. Let me stress that I have absolutely no professional experience in health care, and I don't even have any experience with any health care problems except for my arthritic knees. On the other hand, or maybe because of that, I really spent A LOT of time plugging through research studies available on the PubMed website. They are difficult to get through because of all the technical terminology, and there is a danger of lay people not understanding. On the other hand, they always have a brief summary of the conclusion of the experiment, and that's usually more straightforward. That said:
I believe there is a possibility that narcotics, while definitely a great option to reduce pain, may actually
cause pain. We all know how addictive they are, and we also know that many people can become addicted after having a legitimate prescription for medically necessary pain relief. There is some research suggesting that the addictive nature of these drugs is a result of your body creating pain to result in more narcotics. This pain is produced by the brain and is directed to the original location of the pain in the first place.
I am experiencing an amazing recovery and I have many co-existing theories about why that is the case. I'm healthy, my knees weren't as bad as some others even before surgery, I have a rock-star doctor, my physical therapists have been way better than average, I have lots of help at home, and lastly, having been through another TKR, I'm way more confident and relaxed this time and way less anxious. One other potential reason is that I haven't taken any oxy. The reason for that is because it made me extremely nauseous - and it wasn't because I'm tough. I am much more of a wimp that just about everyone in BoneSmart! And I have a high fear of pain and a low pain threshold!
During my first recovery, I developed a long list of strategies for pain relief, since I was so freaked out about not being able to take oxy. I actually wrote the list out, and took notes on when each worked and when it didn't. It's the things that everyone on here suggests, but I like having my own written list right here for when the pain ramps up. Each person's list is different, but here's a taste of mine: Moving around, Ice, Elevation, Compression (my ice machine has this feature), Ankle pumps, Warmth on various non-knee spots on my body, and Distraction. I try to get deeply involved in a gripping t.v. show or movie and sometimes just taking my mind off the knee really helps. Lastly, my P.T called my doctor and asked if I could add ibuprofen to the Tylenol and Tramadol I was taking. She came up with a schedule so I could take one of these pills every two hours without exceeding the daily limits on any of them. I've always turned to ibuprofen for other pain, and I really felt it helped with my TKRs too.
I hope I haven't upset anyone here, but I decided my experience might help others. Hope the last week has shown you some tangible improvements! Hang in there.