Recent content by Flowerfloosey69

  1. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Update: I am again three months post op on my 3 rd revision of LTHRevision am feeling stronger in general but still have weakness and some stiffness and pain. It seems my biggest issue now is my spine which has gotten way worse thru this whole mess. There is no surgeon who will touch my spine...
  2. Flowerfloosey69

    PKR Clunky Knee

    I'm so sorry you are still dealing with this. It can be so discouraging. I hope you get good answers and help at your new appt!
  3. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Thank you all for your well wishes and support! It really helps❤️
  4. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Thank you Polarice! I appreciate all the real life experience info I can read!
  5. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    @PolarIce What was your surgeons reason for using it for your replacement? What do you notice with it?
  6. Flowerfloosey69

    Anyone go through THR replacement w/ medius gluteus repair?

    How are you doing? Did you have both dual mobility cup and constrained liner??
  7. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Thank you! It's been quite a journey. I would like to follow someone with a dual mobility cup?
  8. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Thank you all. It's a year almost to the date since my second revision. The metal ring on the constrained liner fractured. I believe because of the malpositioned cup from first revision. It's never felt right. My surgery date is July 13. They know the precarious position I'm in so will do all...
  9. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Thank you! Third revision, 5 TH surgery on this poor hip! Hoping that changing the alignment will help me recover. Wondering what precautions I will have. I remember when they do work on the bone, it's much more painful
  10. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Dr Sah called and asked if I had fallen etc but no I hadn't. He said either he or his associate would do the revision. He will realign the cup and put in a liner that gives more movement. I forgot the name of it. It's a bigger surgery because of having to remove the cup so I expect more pain and...
  11. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Well, here I go again! Last revision was July 22. I've been recovering since then after the infection/surgery/ antibiotic infusions. The second revision placed a constrained liner To stop the dislocations (4) with the original revision having a misaligned cup, it has never felt right. The...
  12. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Now to find the right PT! I live in a small mountain town in the Sierra Foothills and we are limited as for specialists in anything unfortunately. I will be checking it out tho.
  13. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    I've never heard of those? I have a book about the Muldowney method for Ehlers Danlos.
  14. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    Thank you Cricket and Jamie. The twisted feeling I think is coming from misaligned cup and constrained liner. I have wondered if the pain could be spine related as my spine is very loose and I have run out of options there other than a back brace. But.. it is very localized and has gotten worse...
  15. Flowerfloosey69

    Revision THR Complex Revision poor outcome Ehlers Danlos

    BTW.. using arthritis strength Tylenol once in am sometimes combined. With Advil. I have to make sure I have something in my stomach first.
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