FiFiTrixy
junior member
My (now 15 year old) daughter had a SCFE operation on her right leg in December 2014 and she is still mostly bedbound over three years' later. We have a most excellent and trusted consultant who has continued treating her diagnostically. After the initial operation, all seemed well for the first 48 hours but then the pain amplified and despite much intensive physio, the pain continued at a level that has incapacitated her (a previously A* student has barely attended school since). In Feb 2016, the pin was removed to allow an MRI, together with a low level steroid injection which only gave minor relief for a week (and also assessed whether it may/may not be CRPS). MRI showed nothing and then in July 2016 a hip arthroscopy was performed, which finally showed the extent of the damage which had been caused to the femoral head by impingement (the surgeon said it looked like the bone of someone who had SCFE 25 years earlier). The hip arthroscopy had (until this week) slightly improved her pain levels and it took six months to mobilise again (albeit for very short periods). Most of her pain is caused/aggravated by the sitting position.
We are due to see the consultant in a couple of weeks' time, at which point, the time has come to make a decision on whether to a) carry out a femoral reconstruction; or b) consider a hip replacement. She will be 16 years old in July. No doubt, we will be lead by the consultant, however, having been labelled as a bit of a 'medical mystery' combined with the fact that my daughter seems to have great difficulty recovering from broken/fractured joints (an ankle fracture took nine months to heal in 2013 and a metatarsal injury took around four months to heal in 2012), on top of never having actually 'healed' from SCFE, I have grave reservations.
Does anyone else have a similar story or experience who would be willing to contact me?
We are due to see the consultant in a couple of weeks' time, at which point, the time has come to make a decision on whether to a) carry out a femoral reconstruction; or b) consider a hip replacement. She will be 16 years old in July. No doubt, we will be lead by the consultant, however, having been labelled as a bit of a 'medical mystery' combined with the fact that my daughter seems to have great difficulty recovering from broken/fractured joints (an ankle fracture took nine months to heal in 2013 and a metatarsal injury took around four months to heal in 2012), on top of never having actually 'healed' from SCFE, I have grave reservations.
Does anyone else have a similar story or experience who would be willing to contact me?