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[BILATERAL THRs] Tony2hips Recovery

Discussion in 'Hip Replacement Recovery Area' started by tony2hips, Jun 7, 2016.

  1. tony2hips

    tony2hips junior member
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    Hi all, I have just discovered this forum and found this thread so informative as I was starting to think I was going mad, with all the down moments and lack of concentration etc. It seems that I'm experiencing what everyone has, which while it puts my mind at rest, I sympathise with everyone who has gone through it. I certainly do not want to hijack @@AndyH99 excellent freak so please feel free to move / delete my post.

    My story is I finally had my bilateral hip replacement on 14th April 2016. I am self employed and had put it off way to long meaning hips were in really poor condition. I was told my left hip is worst they had seen in years and right not far behind. They also said I should not have been able to walk given their condition. Well the day came and I was in pre-op getting slightly concerned that a lot of staff did not know what procedure I was having. My wife sat there open mouthed when someone in theatre gowns announced himself as assisting with my surgery and asked about my knee. When I informed him I was about to have a bilateral hip replacement he spent the next 5 minutes telling me how brave I was, that he wouldn't have it done and all the possible complications I could suffer having both operated at same time. Not exactly what you want to hear just before being wheeled into theatre!

    I had surgery under epidural and sedatives and was a little surreal to wake up hearing hammering and feeling my leg being manipulated before telling someone and being given another dose. After a night in PACU where the morphine drip packed up and I had very little feeling it either leg, I woke up amazingly feeling no pain. I went to the ward later that morning and everything was uneventful apart from a very short walk on a Zimmer frame in the afternoon.

    The next day I was on crutches and considering pre op I was in extreme pain despite being on the highest dose Tramadol allowed, I was able to walk almost pain free to the end of the hallway, only taking paracetamol. Day 2, Saturday another walk and the step. Physios very happy and told me if I can do stairs on Sunday they will sign me off. Then 11.30am I am taken to Radiology. The ward nurse told the porter they had to be careful as I was a double hip, however there was only one radiologist who physically forced me to lay on my left hip less than 48hrs after coming out of theatre. I was in excruciating pain and asked her to stop but she said it would only take a minute. I had my whole body weight on the hip with no side rails on the bed to hold onto and support my weight. Certainly discovered a new pain level at that moment. She also took an xray with me flat on the bed with toes pointed inwards so big toes touched. Two positions I had read that you should never get into post op.

    Anyway after returning to the ward the pain subsided and I forgot about the incident. Day 3 completed physio and signed off. Monday, day 4, 9.30am, I am told to make phone calls to arrange going home. That's where it all went downhill. 9.50am the surgeon visits me and tells me there is a problem with my xray and that the acetabular liner has slipped meaning that I need a 2nd surgery which would take place the following Thursday. Obviously I was not happy.
     
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  2. skigirl

    skigirl SUPER MODERATOR Moderator

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    Tony, I moved your post into your own thread, so that it will be easier for you to see the responses to it. Welcome to Bonesmart. I am so sorry that you are having so many problems. I will page @Jaycey and @bottomshollow and @Josephine , our forum nurse who is also from the UK. They will be able to offer you advice. In the meantime, I will give you the readings from our library that we recommend to those with new hips. they are all short and easy to read.

    First are the BoneSmart mantras ....
    - rest, elevate, ice and take your pain meds by the clock
    - if it hurts, don't do it and don't allow anyone - especially a physiotherapist - to do it to you
    - if your leg swells more or gets stiffer in the 24 hours after doing it, don't do it again
    - if you won't die if it's not done, don't do it
    - never stand when you can sit, never sit when you can lie down, never stay awake when you can go to sleep!
    - be active as much as you need to be but not more than is necessary, meaning so much that you end up being in pain, exhausted or desperate to sit down or lay down!

    Pain management and the pain chart
    Healing: how long does it take?
    Chart representation of THR recovery
    Dislocation risk and 90 degree rule
    Energy drain for THRs
    Pain and swelling control: elevation is the key
    Activity progression for THRs
    Home physio (PT)
    Post op blues is a reality - be prepared for it
    Myth busting: on getting addicted to pain meds
    Sleep deprivation is pretty much inevitable - but what causes it?
     
  3. kwarendorf

    kwarendorf member

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    @tony2hips What an incredible story! How have things been since April?

    Kyle
     
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  4. Josephine

    Josephine FORUM ADMIN, NURSE DIRECTOR Administrator

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    @tony2hips I should think you are not! What with all that in theatre and now this, I should think your confidence in that hospital is dropped considerable.

    If I were you, after this surgery - where I expect they will just fit a new cup - I would ask your surgeon how come this happened? Because if the cup had been correctly implanted, it shouldn't have! It's reasonable to assume that it happened in the xray but I very much doubt it. Were your devices cemented or uncemented?

    You should read this Cemented and uncemented hips
     
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  5. AndyH99

    AndyH99 graduate

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    @tony2hips

    All I can say without expletives is OUCH!, I'm sitting here 10 months on and the thought of the X-ray table and the 2nd surgery for the slippage gave me cold shivers.

    I wish you the best of luck getting through this challenging journey and I hope it works out once they fix it. I can honestly say that despite the problems I had I'd do it again tomorrow for the outcome I have now.

    Good luck again, stick with Bonesmart as this is a great site for support and have a great healing day (2nd fix allowing)

    Andy


    Sent from my iPhone using BoneSmart Forum
     
  6. Mscant

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    @tony2hips
    Wow! You got put through the ringer, buddy. I am about 12 days out after a LTHR, and I know that at some point in the future I will have to do the right hip too. Doing them both at the same time was never discussed with me, but I think I would have been too afraid to do it anyway. The thought of someone asking you to lay on your side makes me cringe. That must have been incredibly painful. Im pretty sure I would have refused to do anything like that. I'm sorry that you have to go back in.

    Hopefully, things will get put right and you can continue on to a more comfortable existence. Let's us know about your progress.
     
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  7. Horseshoe

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    @tony2hips , Wow, you've had quite an ordeal, I certainly admire your fortitude. I cannot fathom how an x ray tech would forcibly move your legs into such painful positions. Ouch, ouch, ouch. How are you doing now?
     
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  8. tony2hips

    tony2hips junior member
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    Thank you for all the comments, this is a great forum.
    Well the fun continued on the following Thursday (21st) in pre op. I was obviously feeling apprehensive about the revision surgery, which again wasn't helped by nobody knowing what surgery I was having or the fact that I had undergone a THR just 7 days earlier. I got so concerned that in the end I asked someone to draw the arrow on my leg just for peace of mind. The surgery seemed to go OK. I was in theatre for over 90 minutes. According to my notes they replaced the acetabular liner and had to remove the femoral head, so I assume they replaced that with a new one as well, although I twice asked if they had to remove the head whilst in recovery and back on the ward and was told no so I really don't know! One thing they did do was xrays while I was still out of it before going to PACU.

    My recovery was amazingly quick and I was up walking the following day and walked up two flights of stairs with a physio (who seemed amazed I could do it) on the Saturday and was again signed off. Unfortunately my stay was extended by the fact that the joint was bloody when they reopened it and they were concerned there may be an infection so they sent of a sample for testing. Thankfully by Monday I was given the all clear and able to go home, although on strict restrictions as to what I could and could not do for 6 weeks.

    I have to say at this point that all the staff and physios on the ward were great, very professional, smiling faces and a good sense of, humour it was what went on around them that left a lot to be desired. I even on checking my messages discovered that the hospital phoned me to discuss my admission and fasting for my 2nd surgery while I was laid up in their ward, dying of boredom.

    After 12 days in hospital it was so good to be home. Exercises were made much harder, as all the ones in the booklet where if you had a single THR, and the revision surgery meant I couldn't stand full weight bearing on that leg to exercise the right hip. I experienced the highs and lows, the inability to concentrate, unable to sleep, then falling asleep at the drop of a hat. The one thing I was not experiencing was a lot of pain, possibly because of the acute pain I was in before! The TEDS and daily anti clotting injections caused more discomfort than the after effects of the op. I was even able to get around my flat without crutches. I was getting frustrated that there had been no contact regarding physio or for an appointment to see the specialist as I was told on discharge that he wanted to see me in two weeks. It was now 5 weeks since primary surgery, 4 weeks after revision.

    I was starting to think how easy it was until I dozed of in the armchair one evening. When my wife woke me, I screamed out in pain and experienced a popping in my revised hip. It really felt as if it had come out and gone back in. The pain went and I was able to stand, nervously at first. I went back to the hospital the following day for xrays. After the incident in Radiology previously I refused to lay on my side. Their response, 'no problem we can do same xray with me standing up'. I finally found out that the xray was alright after finally managing to get an appointment with my surgeon two weeks later. When I asked him about the xray he said it looked good but was then concerned when I told him why I had it done as he had not been told of the event in the armchair. I have since been led to believe I probably suffered what I think is called a subluxation of hip.

    As far as physio I had my 1st session 6 weeks and a day after the primary surgery, where thy gave me some different exercises to do and told me to concentrate on my actual walking style as I am still limping because I am walking as I discussed pre op. I have to really thing about putting one foot in front of the other and stepping heel, toe sequence rather than my right foot almost following an arc pattern and stepping full foot down. I have been out for plenty of walks on both crutches, starting with trips to shop, then walks in Richmond Park etc. The physio has told me try using just the one crutch but it was causing severe back pain so I have gone back to two when out until my second physio visit this week.

    I have not found anyone who has had a THR followed by Revision Surgery 7 days later, neither have the physios, so recovery plans and what I can and cannot do seem to be based on, try it and see what happens, rather than a structured plan. I asked when I could try playing golf and was told it should be OK now, yet even without the enforced restrictions due to revision surgery, most hospitals recommend 3 months. I have noticed that if I'm stood up relaxed my right foot is at a 45° outward angle, I have to then think to place it into a forward pointing position, so need to find what that is all about. I am 7 weeks now and free from real pain, which is great but starting to experience more dull aches in the joints. I haven't taken pain killers for 3 weeks now, but am very nervous about possible dislocations ongoing as I understand the chances are greatly increased due to having undergone the revision surgery.

    Thanks again for comments and I will update after physio on Friday.
     
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  9. kwarendorf

    kwarendorf member

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    @tony2hips I'm glad your long and winding road to recovery seems to have straightened out :)

    This is one of my daily challenges too. I have to constantly remind myself that my new hips is OK and that I need to use it properly to avoid screwing up my gait.

    Kyle
     
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  10. marcsgirl102

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    @tony2hips
    Oh Tony...what a horrible ordeal! I am so sorry your experience has been so difficult and frightening...but am equally glad that the worst of it seems to be behind you now.

    Your up and down moods are not only completely understandable, they are absolutely predictable. We all go through them, to some degree or another, post-op. And I suspect that a lot of the mood changes are a direct result of what's going on with our recovery. The more complications or big unknowns, like what you've had, the more emotional upheaval you're likely to experience.

    Don't let that be a new burden for you. When I'm having a down day, I just tell my husband it's a down day and lay low, watch DVDs, read, nap and hibernate in bed. Inevitably, it passes within a day or two and I have a really good day. Don't set any expectations on yourself as to how you "should" be doing on any given day. Your recovery is on its own schedule, run by invisible forces over which you have little control. Best approach is to respond to your body moment by moment.

    Same with the brain fog and lack of concentration. Today is my 3-week mark on my second hip replacement, and I can still only work at my desk for about 3 hours total each day--it's almost like my brain runs out of fuel and simply grinds to a full stop! At that point, it's either time for a nap or a change in type of activity, like putting away dishes, doing a load of laundry, etc. I don't push it, because it'll be a total waste of time if I do.

    And if you get bored, you can always hop on here and read through some of the fantastic materials the BoneSmart nurses have put into the Library area. :)
     
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  11. jomarie58

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    Tony your story made me so mad! Why in heavens name would they make you lie on a newly operated hip when they could have accomplished the same thing standing? Good grief! I am now two weeks out from hip 2 and 5 months out from hip one. I am able to put my full weight on hip one now without even a twinge I think it tiki about 4 months to get to that point. Take it easy!


    RTHR 1/15/2016. Posterior approach. Due to AVN. LTHR on May 26, 2016.
     
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  12. Healer01

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    The general public,even the hospital staff does not realize how painful this is.It sounds like the X-ray person was aweful.I hope you do better soon


    Sent from my iPhone using BoneSmart Forum
     
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  13. Krista

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    @tony2hips, I am joining the chorus of people who are outraged on your behalf at the ignorance, incompetence and insensitivity of that x-ray technician. Most of us are not allowed to lie on our sides after THR for 6 weeks, much less than 2 days after surgery, on a hard x-ray table. I have never had to lie on my side for a hip x-ray. Unbelievable! Your whole story is full of great difficulties, with the revision, and then the hip incident after the revision. I hope the rest of your recovery is easier with no complications! Best of luck to you.
     
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  14. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    @tony2hips well you have certainly had your fair share of "fun" with this surgery. So sorry your experience has not been more positive.

    Can you have a frank conversation with your surgeon regarding your fears about dislocation? This is a partnership and it is certainly in your surgeon's interest as well as yours that you have a good result.
    I had my RTHR very near to your location (maybe at the same hospital?) and the instructions were don't do it if it hurts. No restrictions.

    Are you having physio at Kingston? I found them pretty good about gait issues. At 18 months out I am still working on my gait. It's hard to break habits. Keep at it - you'll get there!

    Please keep us updated! And welcome to BoneSmart!
     
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  15. tony2hips

    tony2hips junior member
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    @Jaycey . Very likely the same hospital. Physio is coming to me as my surgeon doesn't work through Kingston Hospital. I am having a meeting with the hospital and surgeon tomorrow. It is all so frustrating at the moment as it is hindering my recovery. Can stand on right leg to exercise left hip, but not comfortable standing on just left leg to exercise right hip.

    As far as the experience in Radiology, it was not pleasant. During my stay in the hospital, 13 patients passed through the ward of only 4 beds including mine and not one had an xray laid on their newly operated hip!

    The whole experience has been very poor, but I should have expected it when with the letter booking my pre-assessment they sent booklets and a dvd that they said where important to read and watch for KNEE REPLACEMENTION
     
  16. Josephine

    Josephine FORUM ADMIN, NURSE DIRECTOR Administrator

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    Oh brother, bet that boosted your confidence! NOT! :scary:
     
  17. StaceyJG1

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    It sounds like you've had one heck of a wild ride!! I hope you finally have relief after the revision surgery. At my two week post-op appt, I had x-rays taken and she offered to let me lay down. I told her NO, I would stand up, even though that was painful, as well. I can't imagine the pain! I had both hips done at the same time and it was 3 weeks before I could lay on my left side, I still can't lay on the right side, so at two weeks I would have screamed! Blessings to you!
     
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  18. tony2hips

    tony2hips junior member
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    Well I had my meeting at hospital. Evidently they had a meeting as to what went wrong with my operation and decided it was just 'one of the risks of having a THR'. As the surgeon has said he must not have seated the liner correctly, I do not understand how they can claim that. Infection, DVT, fractures, nerve damage are risks but a surgeon not fitting components properly? If that had been on the disclaimer I think I would have said no to the operation. I was also told I didn't suffer a subluxation and that it was just a stitch popping. That seems strange as the dressing had gone as had the dissolvable stitches and don't think that would have had me crying out in pain. They also stated that the dissociation of the acetabular liner could not have been a result of my treatment in Radiology as when they opened me back up the liner was 'jammed in place' not loose so have to take their word on that. I do wonder if the surgeon would be saying that if I was one of his £12000 to £15000 private patients rather than NHS and he had to cover the cost of the second operation and any fall out from patient.

    I have now noticed a clicking / grinding feeling in my left hip when I am doing exercise like lifting my knee up. I can actually feel it grind if I put my fingers on joint, yet told in phone consultation it is probably bursitis and I may need a steroid injection. I genuinely thought one of the benefits of a hip replacement was to no longer need steroid injections. This grinding is now giving me a deep ache in the hip bordering on real pain and my confidence in that hip is getting lower by the day

    Also told that because I didn't have a total hip revision, only the liner and femoral head replaced, that it doesn't increase the chances of dislocation etc in the future, but also told I may be the 1st person ever to have a revision surgery a week after bilateral hip replacement so not sure what statistics they are using to make such statements. I was surprised to be told that incidents such as mine are not recorDeducted with NJR. I would have thought for them to accurately record the success of THR's they would have to record figures on failed operations but evidently not.

    Finally they told me that patients having an xray laid full weight bearing on a hip less than 48 hours after replacement surgery is quite normal, so just wondering how many people on this forum had the pleasure of having an xray in that position? I find it strange that they say that but after revision surgery I was taken to xray while still under the effects of Epidural and sedatives so didn't know I had even been there but they only xray ed me flat on my back. Surely if they needed side view after, they would have needed it after revision surgery to be doubly sure it was successful.

    I am mystified by their actions and explanations and feel that I am being fobbed off. My right hip is great and feels like I never had a problem. Unfortunately my revised left hip doesn't feel as if it is justb7 days behind it in terms of recovery. I am getting aches, pains and weaknesses that I did not experience with my right hip operation.

    I can find no record worldwide of anyone undergoing revision hip surgery 7 days after a primary THR let alone a bilateral. I feel unhappy with what I am being told by the hospital and don't really know where to go from here. Any advice would be gratefully received.
     
  19. gregsohappy2

    gregsohappy2 new member

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    I do not know if the Dr. was at fault with your hip surgery.I know that if a Dr. who does not do a lot of THR and not very skilled at what he does,then he will fail from time to time with surgery .When I had my first THR I was worried about the Dr. that was going to do it.He done my hand surgery and it did not fix my hand. He did a mighty good job doing my left THR and a year later it's still doing good.I'm letting him do my right hip this Wednesday (22 of june 2016) and I hope he does it right .
    I truly hope you get the help you need and get that hip fix right ,because it should have been done right the very first time:(
     
    Last edited by a moderator: Jun 17, 2016
  20. Krista

    Krista post-grad

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    @tony2hips, I, for one, never had a hip x-ray while lying on my side. That cannot be normal. I just checked a thing online called the Positioning Atlas on WikiRadiography. All 6 of the types of hip xrays are done in the supine position. There was NO mention of doing a hip xray while on your side.

    And the immediate revision, just can't imagine...

    We need more icons we can click on that say things like "sad" or "angry" about a post. I am so sorry for you!
     

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