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[TKR] Still Disabled-That's How it Feels

Judlepip

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Hello - 3 years post op. Am still suffering pain worse than pre-op and cannot stand from sitting without support. I really want to restart yoga, but being unable to bend or straighten this seems unlikely, Has anyone any similar experience?
 

newlybionic

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@Judlepip Have you had an appointment with an OS that does revisions? You might want to have your knee looked at with a fresh set of eyes.
 

referee54

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@Judlepip ---I moved your post to a thread of its own so others could see it and respond with advice and suggestions.

I would also agree with @newlybionic --you need to see another OS who specializes in revisions---at least get an objective diagnosis so you have a strong idea of what the issue is with your nee.
 

Celle

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I'm sorry you're still having so much pain.
I agree with the others. It's time to let someone new look at your knee. A knee revision specialist sees problem knees every working day. He/she will look at your knee with new eyes and may be able to spot something your own surgeon has missed, and suggest a solution. That could mean a revision, but it could also mean a simpler solution than that.
 

Pumpkln

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Judlepip,
Sorry to hear you are still having troubles with your knee, as I recall you had quite a mal alignment, and had sought out a second opinion.
I agree another opinion is in order. @Josephine may be able to guide you to someone in the UK that will be able to give you some answers.
Here is a link for your first recovery thread, if you would like it opened for posting let us know.
http://bonesmart.org/forum/threads/judlepip-has-turned-a-corner.23900/
 

34120

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Sorry to hear about your pain. I suffered for 9 years, wishing I had never had the RTKR. Don't let this happen to you! The recovery was so painful, I vowed I would not go through it again. Well, the left one got so bad, I had to go to an OS. I mentioned my fears (new doc, new state) and he checked out the old one. Long story short, my spacer was the wrong size and knee was very unstable. Had both fixed at the same time and already feel better!

Sent from my SM-G920V using Tapatalk
 

gazelle7777

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@Judlepip What does your OS say about this?? Seems like he would have suggested something to right this issue. Three years is a long time to suffer after surgery.
 

kneeper

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Does it feel like it's in the quad muscle or the knee itself?
 
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Judlepip

Judlepip

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Well, it so nice to hear all your views, thank you! I'm afraid I have seen three different OSs, the last of which was the Royal National Orthopaedic as Josephine advised. Their advice was the same as others; it's a good replacement (despite mal-alignment!) and nothing further will help. They did suggest that maybe a cleanup or replacement of the patella MIGHT help, but they clearly thought not and I decided I'd taken up enough NHS time. I declined and have just been getting on with it! I just thought that Yoga might help.

P.S. I see the header to this thread says 'In great pain' - that's not strictly true. I am in pain for sure, but not great pain; just more than pre-op. It's not being able to bend or get up from sitting which really frustrates me.
 
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Judlepip

Judlepip

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Yes please. How about - 'Still disabled' - that's how it feels!
 

Jamie

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I'm so sorry to hear about this. I just can't understand why the surgeons would fluff you off and say it's a "good replacement" if it's not aligned properly. Under those conditions, it's no wonder you have pain. I'd say we need to enlist @Josephine's assistance again. And....don't EVER feel like you've taken enough NHS time. My friend, you pay royally for that service through taxation and it is owed to you. Don't give up!
 

Josephine

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  1. So Judles, tell me about the interviews with the surgeons - did they actually comment on the malalignment?
  2. And if so, what reason (excuse) did they give for not doing anything about it?
  3. Did you actually ask them if they would do a revision or if you didn't, why not?
  4. If you did, what reason (excuse) did they give for not considering it?
 
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Judlepip

Judlepip

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Hello to all (@Jamie and @Josephine) who are kindly trying to find answers for me. As far as the specialists go, they were all fairly unanimous in saying that it was a good replacement and the mal-alignment was within normal limits. I did ask about revision, but at least two of the three said it did not warrant a revision and that the pain, although they couldn't find a cause, may be something I have to get used to! My original surgeon actually had to cheek to write to my GP saying something on the lines of "this patient says she is finding aerobics painful and it could be that she may have to accept that aerobics are not sensible with her knee replacement!" I was actually incensed as I do 'light walk-aerobics' and had explained the level of this to him! He further said ..."her apparent valgus is not obviously significant clinically or radiographically". Further - "I feel very strongly that her expectations of the knee are in excess of what a replaced knee can achieve". Well. I have to accept all of that - he's the expert and presumably knows what he's talking about. Well, you saw the photograph of the knee Josephine. What can I say?!
 
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Judlepip

Judlepip

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@Josephine. I read your recovery thread and can only comment that you were lucky! I was unlucky - on reading of your initial return home, it brought to mind my return home (OK I'm years older), but I was in such pain I went into shock - shivering, then spasms. It was frightening. I did write to the hospital commenting that I thought they should rethink their discharge policy of older patients (I was 73 then), but of course did not receive a reply. My recovery was undoubtably the most painful experience of my entire life and I've had a few! The whole thing has sadly aged me considerably. I was a very active and, dare I say, vibrant person. Now I am a typical aging 75 year old. I would not want through replacement again and therefore my other knee will remain with me!
 

Josephine

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OK I'm years older
Judles, you should check again - we are the same age! In fact I checked and you are a mere 4 weeks older than me!

Your story just confirms to me the saying, everybody's different which is true. I wasn't luck, I had a good recovery though I did have some downtime in it. I remember your recovery and it shouted loudly at me that your pain meds did not suit you. This is unfortunate because sometimes, nothing seems to suit some patients and they're stuckered.
 

Jamie

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So, @Josephine.....what can be done for a patient that the doctors have basically "written off" with this knee? Isn't it possible that there could be an imbalance in the soft tissue of the joint that's contributing to the pain and dysfunction? That wouldn't show in an xray. It sounds to me like they are giving up on Judlepip solely because of her age and I find that very disheartening!

Looking back at Judlepip's knee, I find it difficult to imagine anyone saying this is a good alignment. Even you thought it was badly misaligned, Jo!

upload_2016-11-12_16-3-53.png
 
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Pumpkln

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I agree, the sharp angle of your right knee stands out even without the lines Josephine drew for you. OUCH!
 

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