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Shall I postpone my double hip replacement for a year?

Discussion in 'Hip Replacement Pre-Op Area' started by dannidb95, Oct 8, 2018.

  1. dannidb95

    dannidb95 new member
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    Hi everyone, I am new to this!

    I am 22 years old and I decided about 3 months ago I had enough of my bilateral hip pain that I had since I was about 14. I always thought it was a groin injury that I had put off for years as I was adamant I wanted to continue playing football. However I had enough of it because it was too painful too carry on playing football and I was in pain for 4 days after every match. I can't don't do simple things like get on a bike, do breast stroke or bring my knee to my chest past a 90 degree angle due to unbelievable stiffness.

    So after a couple of appointments I got referred to a hip specialist who then told me I had acetabular protrusio and looking at my xray it wasn't a pretty sight. My xray displayed the femoral head slightly projecting through my pelvis. The doctor then went onto say the only way I will ever get 100% recovery is a double hip replacement. At the age of 22 though it does not seem I should be having a double hip replacement, and would like to delay as long as possible as my pain threshold is pretty ok at the minute.

    I can walk around pretty pain free apart from short sharp stabbing pain that occurs a couple times throughout the day, but I do have problems with activities stated above. I am due to go travelling in March 5 months from now for at least 6 months and I would not want to delay the travelling the world for at least a year as I feel more than capable right now to follow through with it but that xray still daunts me.

    I wanted to know opinions if my pain is likely to get dramatically worse over the next year? Or even so, is the femoral head likely to grind its way through my entire pelvis in the next year? Unfortunately I don't to have my xray to hand so it's hard to picture my situation. But for now my pain is ok while I'm not doing cardio or over-stretching. I haven't taken any pain killers etc and still get around pretty pain free.

    Sorry for the essay but please help!!
    Thanks, Danni.
     
  2. Josephine

    Josephine FORUM ADMIN, NURSE DIRECTOR Administrator

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    It's okay, I've seen so many I can picture it!
    I know my reply will be scary but the fact of the matter is that not only will it 'grind through' into the pelvis, it's much more likely to simply collapse like a sink hole! If your xray already shows it protruding through, it's really only a centimetre away from total protrusion. So the sooner your get them done the better, my dear!

    Here's what a total protrusion or "coxa profunda" looks like. Look painful, don't they?

    total protrusio 3.JPG
     
  3. dannidb95

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    Hi there, yes that is extremely scary and would definitely want to avoid it at all costs. From what I can remember on my X-ray i think it showed the femoral head protruding past the ischioilial line not completely through my pelvis. My mistake. I do have a MRI scan booked in soon, will that tell me more?
     
  4. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    @dannidb95 Welcome to BoneSmart! I didn't have the same problem as you have but my left hip did collapse due to the fact I waited so long before having it diagnosed. That pain is horrid and you really don't want to go there. In addition the recovery if there is any collapse is a bit more complicated. For me it took over one year.

    As Jo says - the soon the better. You are far too young to be limiting any part of your life due to bad hips.
     
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  5. Ginny12

    Ginny12 junior member

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    Dear Danni,

    I just wanted to say how sorry i am that you are in this challenging situation. I am awaiting a LTHR soon but i am much older than you and i cannot imagine how you must be feeling. I hope you have family/friends who can support you thru this.

    My advice would be to really try and absorb the information in the above posts from Josephine and Jaycey. I am new here too but they really do know their stuff.

    Sending you the very best wishes to get back to full mobility soon.
     
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  6. dannidb95

    dannidb95 new member
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    @Jaycey @Ginny12
    Hi both. Thank you both for your concern, I am still very shocked about the diagnosis and did not think it would as worse as this! I still feel like I am in a sticky situation as doctors have said we wouldn't like to give a hip replacement on a person so young and would try and look and alternatives but as far as my research goes I think a double hip replacement is my only option. I hope I can get back to full mobility and maybe even I can get can back to playing football.

    Of course last thing i want is coxa profunda as Josephine stated above, it is not a pretty sight. But I am still majorly postponing my operation until a years time.

    Can you guys advise me as to how long the waiting list is for the hip replacement? So far I am see an Orthopaedic hip specialist who has referred me for an MRI scan (who knows how long it'll be until I get that) but then I got told i would have to be referred to young adult hip specialist hospital. How long have you been waiting for your THR?

    Thanks again. Really appreciate your communication
     
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  7. Ginny12

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    Hi Danni,

    I see that you are in the UK so you may be aware that the waiting lists have got longer on the NHS. However, i would be amazed that in your case there would be a problem getting an op ASAP due to the potential protrusion Josephine mentioned.

    I don't like saying things are not fair as it flies in the face of reality. But, i will break my rule as this really is not fair what you are having to deal with. Apart from the getting the surgery sorted out perhaps you could ask your GP for some talking therapy to try and process the new reality you find yourself in. I wish i could give you a massive hug as you must be totally shell shocked with the diagnosis.

    I don't know if you read self help books, but if you do one i would highly recommend is "The Reality Slap" by Russ Harris. The author is a medical Dr who is also a psychotherapist and the gist of the book is how to cope better when life hurts, indeed to also survive and thrive.

    xx
     
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  8. Eman85

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    Can't tell you anything about the UK. I do know about worn out hips, playing sports and waiting. Not much on medical terms but I had SFCE and had my L femur pinned at 14, both sides were bad but L worse. I played football and softball along with a lot of crazy other stuff no one would believe. At 30 I was in a surgeon's office looking at replacement hips. For the last 30 years or so if they x rayed my hips they wondered how I walked let alone run and work. I made the decision to wait and had my L done this year. My life, my call, no regrets.
     
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  9. Going4fun

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    Sorry to hear of your bad hips ...

    I would say find a surgeon who is totally on board and enthusiastic about replacing your hips. You want someone who you like and trust ... and who is highly skilled ... and who wants to get you out of pain ... and as important, into higher functioning.

    Yes, it's a shock .... but Josephine is amazing ... really if she's telling you you want to get it asap, you want to get it asap ...
     
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  10. Mojo333

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    Get it done ASAP..and next year will be yours!!
    My new hips gave me my life back!
    I know it's scary...but I am happy to be bionic.
    Back to four wheeling, salt water fishing....working hard and SLEEPING!
    You will be oh so happy to have this behind you!
     
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  11. Bionic

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    Hi @dannidb95
    I am a lot older than you and can only give my experience but I would say if you have the chance to get it done now then do it.
    I was going to have my hip replacement on the NHS 4 years ago but at the time I didn't think I was in enough pain for an operation that 'old people' have. How I regret that decision. I did have a year or so where the pain was ok'ish and I was dancing regularly but suddenly the pain became unbearable and the waiting list was over a year. I was in too much pain to wait that long and had to pay to have it done privately.
    That OA pain has now gone and the hip is doing really well.
    You will have to take time out to recover but the operation will change your life for the better.
     
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  12. dannidb95

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    Hi everyone. I can't say how much I appreciate all your comments on my post.

    Everyone has said I should get my hips replaced now rather than later, which I guess deep down you guys are right. I think it's just the reality of this whole situation and I am probably in denial about it all and just really wish it would fix by itself!

    Today, I had a call from the hospital who have said they have an MRI scan appointment available for me tomorrow, which is just one week after my referral. I am guessing that this isn't good news if they've rushed me in this quickly! I was expecting to wait at least 8 weeks until my scan. I am terribly nervous although I won't find out my results until I next see the doctors which isn't until 5th December.

    The only thing that is helping right now is that everyone I have had advice from has not said that they have regretted their replacement. Being a 22 year old do you guys think I can return to my old sporting ways? Bearing in mind my protruding hips have already put with me doing 3 half marathons, climb Mt Snowndon twice and play football for 13 years?

    Thanks again everyone!
     
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  13. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    You certainly will be able to get sporty again! We have may members who are still running, hiking, and more. That's what this surgery is all about!

    They may have had a cancellation in the MRI area - worry not. Can you get them to send the results to your GP as well. At least your GP can give you a copy of the report.
    Wait times are area dependent. In fact some areas are severely limiting elective orthopaedic surgery. However your case may not be deemed elective. Ask when you see your surgeon. And stand firm on having BTHR. They may suggest physio or pain management. All that will do is allow those hips to get worse.
     
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  14. Ginny12

    Ginny12 junior member

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    Hi Danni,

    I have nothing new really to say except i am thinking of you. Hang in there and i think you should be proud of yourself having the gumption to reach out and find this forum. x
     
  15. Uncivil

    Uncivil new member

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    Just wanted to wish you good luck with your MRI and appointment. I am 43 still on the young side and working towards bilateral THR. I know I have lots of good active years ahead of me so I want to enjoy them pain free! I am opting to do mine sooner vs. later, although my situation is not near as complicated.
     
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  16. Ginny12

    Ginny12 junior member

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    Morning danni,

    Just checking in and hope you are feeling OK. One thing i have discovered thru my own situation is the power of having support from people who really understand what one is going thru. There is so much help and support here so hopefully any concerns or questions can addressed before they seem to take on a life of their own.
     
  17. dannidb95

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    Hi everyone.

    I had my MRI appointment this morning, I was in there for just under an hour it's such a noisy device!! Nurse told me my results will passed on to my doctor who will hopefully write to me to discuss further. However I am definitely not looking forward to the day I get my results back, I am dreading it. Just wish there was another alternative.

    Thanks for all your support!
     
  18. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    @dannidb95 Well done on getting through your MRI. Yes they are very noisy and if you have claustrophobia they can be challenging.

    Did the technician say anything about what they saw. In my experience if they see something excessive they can't keep quiet about it. Don't expect the worst regarding your results though.
     
  19. dannidb95

    dannidb95 new member
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    Hi @Jaycey No I didn't ask anything about my results I think I'm just pretty scared about what its going to say, so I would rather just dismiss it while I can. I am hoping to hear from the doctor in the next couple of weeks though.
     
  20. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    Of course you are scared. We were all in this space pre-op. Just stick with us here. We do understand and will help you though this "maze".
     
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