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Hip Infection* Same pain, second surgery

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36andTired

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I am so sorry I have not been on here, on September 9th I woke up and couldn’t move my left leg, I tried to force myself on with my day. I ended up taking myself to the hospital, my surgical site (which was closed) was very swollen and red. I ended up having Sepsis and a Staph infection. I was transferred to a major hospital about an hour away from where I was. On the 10th I had a revision but they only changed the liner of the cup and the ball at the end of the femoral stem. Unfortunately a hematoma formed and I had to have an additional surgery. I am still in ICU, my thigh is still hurting really bad, and the groin pain is almost unbearable. I know you guys like us to post all medications but I am not sure right now, several IV antibiotics is all I know. I will come back to post more details.
 

Mojo333

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Oh my stars....so stressful for you and I hate to see you having to struggle through this.
I'm guessing they have an arsenal to attack this with and get things back on track.
Sincerest best wishes and healing vibes for you.:console2:
 

Izabel

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Oh my goodness, what an unpleasant journey you are on. Thankfully an infection was found and identified that is being treated but unfortunately you have had to go through two further surgeries.

I am sure this is all very distressing for you but please keep the faith and hang in there. I am sure you are in good hands and remember you have mental support here on BoneSmart.

Hang .. Better.jpeg Izabel
 
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36andTired

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Hello. It’s been a while since I have been on... I saw my doctor a couple weeks ago, first appointment since sepsis and infection, I am on hip number four now, they removed the screws that they put in during 2nd revision. I still have horrible thigh pain and upper button pain which I believe to be piroformis syndrome based on what I have read here. So July 5th 2018 was my first surgery, last one was September 13th (I could be off one day) 2019. Doctors won’t do a bone scan until the end of January becasue it’s too soon. My question is when does a doctor say you have reached maximum medical improvement? Some people say a year from most recent surgery some say other wise. I know there is never a exact answer, I’m just worried they will say it’s as good as it’s going to get.
 

Debru4

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You have been through a lot in this past 1 1/2 years.....one thing after another. I can only imagine how worn down, and frustrated you must feel. My own surgery recovery was pretty uneventful, but I do know that while most of my healing was done prior to a year, there have been some things, that continued to improve even past a year.

It would seem to me that with all of your surgeries coming back to back, your soft tissue has taken quite a beating, and you still have a lot of healing to do. There are so many muscles, tendons, ligaments in the region of your surgery, that it makes perfect sense that one or more of them has been affected and will need attention. But it seems you'd need to wait until a bit longer after your last surgery to see what might take care of itself. I understand why you are so concerned about that.

Perhaps others with more specific experience will be able to share their experiences with you. I hope things turn around for you soon, and you can get past the terrible pain and worry you now have.
 

Pumpkln

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Some people say a year from most recent surgery some say other wise. I know there is never a exact answer, I’m just worried they will say it’s as good as it’s going to get.
Your hip has been through a lot and will need extra time to recover.
Even if they say it is a good as it can get, It means it looks good to them, it doesn't mean you are through healing.
I am still improving 5+ years after my revision, I get stronger, lost weight, and can do more even this long after my revision.
 

Jamie

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Are the surgeons you've seen so far all working under Workman's Comp? I ask because if that's the case, it might be good if you are able to get out of that network and into the hands of a surgeon who could offer more help to you. I don't know the details of how Workman's Comp works and I believe it is different from state to state. Could you talk with a representative from Workman's Comp and get a list of surgeons you could see for additional opinions in your area? If I knew you could seek out your own surgeon, I could help you find someone, if you like.

You didn't mention whether or not an infectious disease specialist was brought into your case at any point. I would hope that happened. Sometimes infections can be difficult to conquer and they need experienced doctors monitoring what is going on.

Do you know if when they did the last 2 procedures on your hip, did they do a washout procedure as well as replace the cup liner and ball for the first one and remove screws on the second?

I'm so sorry you've had this horrible experience. Please do not give up and think this is as good as your hip is going to be. It may be that you just need the right person looking at your case.
 
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36andTired

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Yes this is all under workers comp, I have been able to select my own doctors and surgeons (sometimes workers comp makes me go to a second opinion they choose). All second opinions have agreed with what my surgeon said initially. The original replacement was 7/5/18, the first revision was 7/9/19 with a new surgeon (Louisville Kentucky) September 10th (2019) was replacement of liner and ball, September 12th 2019 was removal of screws, another new cup and another new ball (same surgeon 2,3,4). I do have an infectious disease doctor, I take 6,000 MG of keflex per day for 12 months, I had a PICC line for 10 weeks. The groin pain I have had since the first surgery. Thigh pain since second surgery (first revision). This entire situation has turned my life upside down, it’s hard having someone else dictate my life. I have never had a test done other than x-Ray. So I am hoping on January 30th we are able to look into something else. I see all of these people quickly getting back to life and now things just keep getting pushed back. Sometimes I wonder if I am weak, or I wonder if my pain is hardly anything compared to someone with arthritis or something else. I thought this was going to be a one and done, and now we are on number 4 and I don’t feel even close to recovered. I know I ramble, and for some reason in my last post it said button but it was supposed to say “buttock” LoL
 

Debru4

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I don't blame you for being discouraged.....I don't think any of us would be able to go through all that you have without a sense of frustration, anger, and loss. It sounds like you have stayed on top of things and keep trying to move forward and get more info.

I think your idea about wanting testing in addition to xrays is a really good idea. Since you've had some of the pain since your first surgery, and other pains keep adding on, if it were me, I'd want more data.

I think I also would like someone with completely fresh eyes to look at my case and see if they had any other thoughts. I am not a medical person, but I do know that often people fall into "group think" where we tend to go along with the prevailing opinion. In your case, maybe that has happened some? Hang in there, and don't give up.
 

CricketHip

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Oh, you poor thing! You really have been put through the wringer.. I am so sorry. As for your question about the timing for healing, recovery and improvements?
I remember with my left THR that I felt so great at 12 months and thought it couldn't get any better and then around 15 months realizing I felt even more improvement. Your soft tissue has had a lot of disruptions so please stay strong and I hope you will be back here to update that you are continuing to feel improvements!

Wishing you a wonderful Holiday Season.
:snow:
 

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