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Perthes disease to Left THR

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Hip Op Dj

junior member
Joined
Sep 12, 2009
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South Africa
<o:smarttagtype namespaceuri="urn:schemas-microsoft-com:office:smarttags" name="country-region"></o:smarttagtype><o:smarttagtype namespaceuri="urn:schemas-microsoft-com:office:smarttags" name="place"></o:smarttagtype><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> </w:Compatibility> <w:BrowserLevel>MicrosoftInternetExplorer4</w:BrowserLevel> </w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" LatentStyleCount="156"> </w:LatentStyles> </xml><![endif]--><!--[if !mso]><object classid="clsid:38481807-CA0E-42D2-BF39-B33AF135CC4D" id=ieooui></object> <style> st1\:*{behavior:url(#ieooui) } </style> <![endif]--><!--[if gte mso 10]> <style> /* Style Definitions */ table.MsoNormalTable {mso-style-name:"Table Normal"; mso-tstyle-rowband-size:0; mso-tstyle-colband-size:0; mso-style-noshow:yes; mso-style-parent:""; mso-padding-alt:0cm 5.4pt 0cm 5.4pt; mso-para-margin:0cm; mso-para-margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:10.0pt; font-family:"Times New Roman"; mso-ansi-language:#0400; mso-fareast-language:#0400; mso-bidi-language:#0400;} </style> <![endif]--> Hi all,
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I have been looking around the forum for the past week or so and found some interesting info that has put my mind to rest. The most valuable so far is that it is normal for my new hip to “clunk” – thanks for that! I have fairly long story and would like to share it - not only for my own benefit (I don’t have much to do right now) - but also in the hope that it may help someone else.<o>

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I am a 37 year old (turn 38 tomorrow, actually) South African man and received a Left THR on 3 September 2009. I had Perthes disease as a young child which was only diagnosed when I was about 16 or 17 when it was too late to do anything about it. It resulted in a flattened and widened femoral head (doctor’s called it mushroom head) and shortened left leg, about an inch or 2.5cm. The socket of my hip had formed to fit the malformed head perfectly and while the range of motion was limited it was not chronically painful. The doctors told me that the malformation would increase friction and thus expedite the onset of osteoarthritis and that a THR was inevitable. A case of WHEN and not IF!<o>

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I led and active life until about 3 years ago when severe pain resulted in me undergoing a hip arthroscopy, debridement and microfracture, followed by annual hydro cortisone injections and manipulations when the pain recurred. However, at the beginning of 2009 the pain got worse and nothing else was helping and my surgeon advised that now was the right time to undergo the THR. Having always known this day would come I was fairly resigned to my fate and cleared my diary for a September (spring in <st1:country-region w:st="on"><st1>South Africa</st1></st1:country-region>) operation. The deterioration of the hip prior to the operation was rapid and I crawled into the hospital – looking forward to the operation and the relief and I had been told it would bring.<o>

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Things have gone fairly routinely. However, even though I have always known that I would need to undergo this operation nothing really ever prepares you for what it is actually like. Perhaps we don’t want to think about how much of a major operation this is before hand or we might no go through with it. A form of denial, I guess.<o>

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The pain was severe for 3 days post-op and then tapered off. I was sent home 5 days post the op. The pain dropped off again significantly on day 8 post-op. I am pretty mobile although I am now experiencing acute pain within the joint on some movements (this is new and started 14 days post-op).

I am now 16 days post-op and I feel like I am on the mend – although I am totally paranoid about a dislocation. I have been told that young(er) people are more prone to dislocations as we often recover quicker and therefore have the ability to get into positions and do the things we are not supposed to do. I detest having to sleep on my back and the thought of 4 more weeks depresses me - so I try not to think about it.

I am interested to be able to share my experience and to be able to check in with others so at to make sure what is normal and what I can expect from my new hip. Hopefully this will allow me to stave off some of my paranoia and stop myself from bugging my surgeon or physio- therapists with stupid questions.<o>
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Kind regards<o></o>
Gavin
 
Hello Gavin,
WELCOME!!
Goodness you have been through the wringer! I am with you on the paranoia! Gives me chills to think about dislocating.
And the back issue....arrrggghhh! I HATE sleeping on my back. I usually sleep on one side then spend all night flipping back and forth. Not any more darnit. I have put 2 pillows between my legs and kinda laid on my side. Did not last long because of the paranoia (haha) but it was nice.
So how is health care in your part of the world?
Erika
PS. Happy early birthday. Hope it is a good one!
 
hey Gavin Welcome i am a knee but I have seen so many hips If you just do what you are told you will be just fine alot of hips come thru here and i have to say so far i haven't heard of one dislocating......Im glad your doing well.......Take it easy Oh and HAPPY BIRTHDAY!!!!!!!!!!!!
 
Hi Gavin! Welcome to BoneSmart. So glad the forum has already been of help to you. And we're always here if you need us.

I think most of us going through joint replacement surgery have our moments of paranoia. The surgery is so major and there are scary parts for sure. It does help to be able to talk with people who understand and have been through it themselves. And, of course, having an expert like our forum nurse, Josephine, is the thing that makes BoneSmart work so well.

So post whenever you want....even just to say hello and chat. We're here to provide whatever support you need.
 
Gavin
Welcome. If the dates are correct and your birthday is the 20th you share that birthday with my wonderful son Tim. He will be 17 tomorrow. Happy Birthday.
With your ups and downs of pain sounds like what I went through. And about the 4 more weeks of sleeping on your back, it may be sooner that you can sleep on your non operated side with lots of pillows to prevent the rollover. I was very paranoid about dislocation as well.
My recovery was kind of 2 steps forward, one backward. i probably caused some of that by doing too much.
When ever my muscles get weak (from other conditions) I have the clunking feeling again. Once you get yuours strong that should stop.

Post anytime and welcome
Oh I do absoulutely love my new hip:wub:
judy
 
Thanks for all the welcomes, replies and words of encouragement. I am really looking forward to reaping the benefits of my new hip which include being able to be active with my 2 young children and working on getting my golf handicap a little lower.

Erika, the health care in SA is world class. It helps if you have private medical insurance, of course, but I am sure this applies almost the world over - but is probably particularly true in the developing world.

I am working on the paranoia and just talking helps!
 
Well, SA was where the first heart transplant occured, was it not!

As for the clunking, is it a bother? Or are you getting accustomed to it? There links to two videos on the subject here Videos: short lectures on noisy THRs that you might find of interest.

 
Welcome Gavin,
Glad you have joined us; always good to read another success surgery.
Main thing about this surgery, no matter your age, is to take the recupe slow and steady. Soon as you try to overdo things, which is when you are feeling better and stronger, fortunately, your new hip will tell you, you are overstepping the mark. It will tell you by giving you a good dose of pain or discomfort.
Personally, I wasn't too concerned about the dislocation, but I didn't have the same problems that you had, just worn out hips, bone on bone. There are threads on this forum regarding dislocations, and you may get some relief from reading them.
When you pluck up the courage to lay on your side, use lots of pillows as already suggested, including between your legs, and you should be okay. I couldn't have gone as long as you are planning on my back, and I had lots of soft padding.
All the best on your recupe and keep us posted on your journey. And a belated "Happy Birthday":yrk:

Glenys
LHR 5/28/09
RHR 7/23/09
 
Hi Gavin, Happy Birthday,

I had my RTHR at the end of August and am looking forward to the 6 week mark when I can stop wearing the horrible stockings and sleep on my operated side. Try to keep yourself busy by reading some good books and watching some good movies, or maybe watching golf on tv and the time will pass before you know it.

Hope you're enjoying your birthday.

Catwoman
 
Thank you for all the birthday wishes - we had some friends around for lunch and I sat at the table for a while which was nice. Feeling a bit tired but am resting again. It was still worth it as I was going a bit stir crazy!! So good for the soul!

@ Catwoman - interested to hear you are wearing stockings? I am not required to do that. Have been taking anti clotting drug from the night prior to op. Medication in form of small daily injection to the stomach - much the same as insulin.

The members on this site are primarily US and West European and I am interested to know whether anti-clotting drugs are being used by other members?
 
Hip....almost every person I know on the forum uses some type of anti-clotting medication following surgery....either shots or pills. I think it's pretty universal.
 
thanks ... i thought maybe the drugs and stockings where interchangeable and not used together? I guess just different doctors different recovery instructions etc ...
 
Nope....most people do get both. But pretty much everyone gets the anti-clotting meds.
 
I get the shots from my hubby every day (he finally got over the nerves of doing it. Course the fact that I holler everytime he gives me a shot might have something to do with the nerves. Just cant pass up a good chance to mess with the dude!! After 21 yrs gotta get your fun somewhere :) )
The stockings were sent home with me from the hospital with the advice I could wear them if I wanted too and that I should. Come to think of it....I might go put one on, havent in several days.
Cheers,
Erika
 
Hi Gavin. Greetings from Toronto. I am 21 years of age and I was diagnosed with perthes when I was almost 4. This further led to Necrosis which caused a great deal of shortening in my left leg. My left leg was about 3.8 cm shorter than my right. I developed mild osteoarthritis at the age of 12 which became much more severe at the age of 19. LTHR was the only option left and it was the perfect time for me to get a new hip as I had crossed my maximum physical height growth period.

My LTHR was on July 15, 2009 and my surgeon lengthened my left leg by about 3 cm. The shortening now in my left leg is just 0.8 cm and that's considered very normal even for non-hip affected people. What I am trying to tell you is that I know EXACTLY how you feel and I have nothing but sympathy for you. I am glad that you got your THR and I can definitely tell you that your quality of life is going to improve drastically. Yes your leg will pain for the next couple of weeks (even months) but if you keep doing your physiotherapy regularly, you will notice a day and night difference in the next few weeks. I was prescribed morphine painkillers in order to soothen the pain but I tried to stay away from as many meds as possible. I wanted my recovery to be as natural as possible. Just remember to take lots of rest and please don't overstress yourself, IT'S NOT WORTH IT!

If you have any inquiries or any other questions, please PM me and I will be more than happy to help you out.

Btw, happy belated birthday! :thmb:
 
Another Perthes sufferer here...and a newbie to this forum. I am a 39-year-old man from North Yorkshire in the UK. My Perthes was diagnosed when I was about 4 or 5 and I had a femoral osteotomy at the age of 10/11. The necrosis was bad and pulled the femur head right up, the head was completely flattened and I ended up nearly 2 inches shorter on the right side with restricted movement.

It has gradually worsened over my adult life and eventually the cartilage wore away. I didn't helpo myself much by putting a lot of weight on (I made the mobility an excuse). Anyway, the inveitable time came when I could take no more and the pain was too bad and I had a THR on my right hip a week ago (18th September) at the James Cook University Hospital in Middlesbrough and have been at home a couple of days.

The op was probably the easiest bit. I had spinal and sedative and slept all the way through. The first day after was agony and I actually passed out when they got me up and out of bed for the first time. Luckily I was just sitting into a chair at the time.

Gradually I have moved from frame to walking sticks and have been working hard on the exercises and moving around to push on with my recovery. The worst bits at the moment are the lower back pain from sleeping on my back all the time. My home bed is just too soft. I am dying to roll onto my side, and don't know if I can, even on the non-operated side, so I'll stick to the back until I get told otherwise. Have an appointment to get the staples out (there are 33 staples) next week and can't wait. It itches like mad, and when there's any pressure on the wound from a seat it can be very uncomfortable.

I knew it wouldn't be easy. I just have to keep focused on the future rewards.
 
Hiya Jimmy,

As I said in my opening post the pain drops off drastically as time moves. I am basically off all pain meds right now, which is more than I can say before the op. There is some stiffness and discomfort in the joint but hardly what I would call real pain and it is not chronic and rather acute when certain movements are made. There is one major benefit to getting off the pain meds and that is your stomach starts working properly again.

I am only 2 weeks ahead of you but all I wanted to say is that it gets better. Right now I am just a bit frustrated, I don't like sleeping on my back and I wake up with a lot of stiffness in the leg. All in all considering what a massive op it is - I would say that not all that bad.

Gavin
 
Hey jimmy welcome and i wish the best for a It is tough but it will get easier you will feel better when the stitches come out........Keep your chin up hang in there....post anytime...........we have all been thru it and are here to help.............you will be so happy when this is all over its worth it................) good luck to you............


hey Hip I didnt like the back thing either but yes probably a few more weeks hopefully it will happen sooner that you can sleep on your side.....do you have a body pillow for between your knees that will help going on your side............best wishes as well.............)
 
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